Comments on: On Becoming Visible http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/ Adventures of a superhero on his journey through chronic pain and debilitating inflammation Wed, 10 Mar 2010 18:41:12 -0400 http://wordpress.org/?v=2.8.1 hourly 1 By: Pollyanna Penguin http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-2042 Pollyanna Penguin Mon, 07 Dec 2009 17:00:47 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-2042 Must be great to have the physique to get away with saying you're a soccer player though ... if anyone saw me hobbling about (which they rarely do - I have two canes but largely they live in the car!), they'd probably just assume I fell down the stairs ... or strained myself changing the TV channel or something ... Must be great to have the physique to get away with saying you’re a soccer player though … if anyone saw me hobbling about (which they rarely do – I have two canes but largely they live in the car!), they’d probably just assume I fell down the stairs … or strained myself changing the TV channel or something …

]]> By: Robert http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-683 Robert Fri, 10 Jul 2009 12:45:46 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-683 "Uh, I got into a cage match with my immune system, and my immune system seems to have won." Hahahahahah... I'm still laughing. Your magnificent sense of humor will certainly help you along 'till you're an old man. I wish you a long life, dude! “Uh, I got into a cage match with my immune system, and my immune system seems to have won.”

Hahahahahah… I’m still laughing. Your magnificent sense of humor will certainly help you along ’till you’re an old man.

I wish you a long life, dude!

]]> By: Erika http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-98 Erika Fri, 15 May 2009 18:13:21 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-98 I have the Dr. House flame cane made by the same company that made his for the show. I like to think it gives me the appearance of going faster, with the flames and all. One of my friends had a hay day with my rinky dink in case of emergency fold up cane. You know the kind with the bungee cord on the inside? She'd fold it up and then *snap* it would unfold itself into place. I have the Dr. House flame cane made by the same company that made his for the show. I like to think it gives me the appearance of going faster, with the flames and all.

One of my friends had a hay day with my rinky dink in case of emergency fold up cane. You know the kind with the bungee cord on the inside? She’d fold it up and then *snap* it would unfold itself into place.

]]> By: Kali http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-41 Kali Sun, 03 May 2009 16:46:23 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-41 Personally, with my bad wrists, forearm crutches are a better choice. I have a pair of these - http://walkeasy.com/shop/product_details.asp?ProductCode=490 (but in the kids' size, because I am very petite). A couple months ago, I was walking down the street, on my way from my apartment to class. This random person walking the other direction said to me 'I'll pray for the Lord to heal you!' I said, "Well, He made my genetic disorder, so I think I'm stuck this way." The other person was quite flummoxed. Apparently the idea that not all of us PWDs like people pitying us and praying for us was a shock to him. ~Kali Personally, with my bad wrists, forearm crutches are a better choice. I have a pair of these – http://walkeasy.com/shop/produ.....ctCode=490 (but in the kids’ size, because I am very petite).

A couple months ago, I was walking down the street, on my way from my apartment to class. This random person walking the other direction said to me ‘I’ll pray for the Lord to heal you!’

I said, “Well, He made my genetic disorder, so I think I’m stuck this way.”

The other person was quite flummoxed. Apparently the idea that not all of us PWDs like people pitying us and praying for us was a shock to him.

~Kali

]]> By: RA Guy http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-34 RA Guy Sat, 02 May 2009 03:00:32 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-34 Milicent, thank you for the kind comments. Amy, glad you could share my humor. Cathy, it's complicated trying to use a cane with wrist problems, I'm still warming up to it myself. I don't think there is any idea solution, but right now I am trying to use a forearm brace that protects the wrist and hand as well. It it not relieving all the pressure on the wrist but it is helping a little. Maybe down the road I can share how it's working out for me. Milicent, thank you for the kind comments. Amy, glad you could share my humor. Cathy, it’s complicated trying to use a cane with wrist problems, I’m still warming up to it myself. I don’t think there is any idea solution, but right now I am trying to use a forearm brace that protects the wrist and hand as well. It it not relieving all the pressure on the wrist but it is helping a little. Maybe down the road I can share how it’s working out for me.

]]> By: Cathy http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-33 Cathy Sat, 02 May 2009 02:04:23 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-33 Many people have suggested a cane but I always wonder....is it difficult to use if your wrists are sore and weak? It seems like you can't have any inflammation in the wrists to use a cane. Do you find this to be true? Thanks, Cathy Many people have suggested a cane but I always wonder….is it difficult to use if your wrists are sore and weak? It seems like you can’t have any inflammation in the wrists to use a cane. Do you find this to be true? Thanks, Cathy

]]> By: Amy Vandyke (aka BeautifullyBroken) http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-32 Amy Vandyke (aka BeautifullyBroken) Fri, 01 May 2009 17:02:05 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-32 *lol* well i was diagnosed with ra when i was 6 yrs old, i am 27 now, so needless to say i have gotten alot of glares as i am hobbling along on my cane or crutch. i would never have thought to tell them i got into a cage match with my immune system *L* thats soo perfect. i love your light hearted approach to all of this. it does help with dealing. i have always been sort of a class clown when it comes to things like this. i hope you feel better soon. with summer here now we can always go out to bake in the sun for a little bit. always, amy *lol* well i was diagnosed with ra when i was 6 yrs old, i am 27 now, so needless to say i have gotten alot of glares as i am hobbling along on my cane or crutch. i would never have thought to tell them i got into a cage match with my immune system *L* thats soo perfect. i love your light hearted approach to all of this. it does help with dealing. i have always been sort of a class clown when it comes to things like this. i hope you feel better soon. with summer here now we can always go out to bake in the sun for a little bit.

always,
amy

]]> By: Milicent http://www.rheumatoidarthritisguy.com/2009/05/on-becoming-visible/#comment-31 Milicent Fri, 01 May 2009 14:14:49 +0000 http://www.rheumatoidarthritisguy.com/?p=383#comment-31 I have added your blogsite to my favorites, because you have a way of making something very serious into a most enjoyable read. My daughter was diagnosed with RA a year & a half ago, & it is a constant journey. Hang tough, RA Guy--you have my admiration & respect for fighting this battle & making it sound like it's just another day at the superhero office! I have added your blogsite to my favorites, because you have a way of making something very serious into a most enjoyable read. My daughter was diagnosed with RA a year & a half ago, & it is a constant journey. Hang tough, RA Guy–you have my admiration & respect for fighting this battle & making it sound like it’s just another day at the superhero office!

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