Comments on: Breaking The Pride Barrier

By: betsy

betsy — Sat, 04 Jul 2009 00:22:04 +0000

oh, yeah, i know this feeling so well! in fact, 2 of my boys, age 22 and 26, have decided that if i don’t ask for help, it’s their role in life to lecture me! therefore, now i sometimes ask for help…it beats the alternative!

thanks, RAGuy–you are truly a superhero!

By: mur

mur — Thu, 02 Jul 2009 04:47:12 +0000

Asking for help is very difficult for me too. I am here at Disney with my boys, and have brought along the ‘CHAIR’…the hardest thing for me is having to make others wait while I get boarded on the bus. First thing I notice is the bus shimming down lower to the curb, then the driver pushes some magic button and this ‘contraption’ folds out an inclined platform, allowing my oldest to ‘roll’ me up…while my youngest starts humming some ‘Darth Vadar Emperor’ type music…(he’s a lil’ stinker). I didn’t realize how ‘prideful’ I am. I will try to be better at accepting help. I was able to have a nice time with my boys, and my ankles did not swell up like they use to. So, I am grateful I swallowed my pride, dealt with the chair and I am now hopeful for more vacations. Thanks RA guy for your sharing. You and the others have really given me the encouragement to ‘keep on keeping on’. May God bless you all!
Love,
Mur

By: Barbara

Barbara — Thu, 02 Jul 2009 03:27:48 +0000

New to your site although not to RA(25 yrs. & running). Just want to say that I am enjoying your humor inspired spin on issues we all can relate to. You are very inspiring and I will look forward to keeping up with you. And it never gets easier to ask for help!! Thanks to everyone for sharing.

By: Kim H

Kim H — Thu, 02 Jul 2009 02:02:35 +0000

Oh jeez — this is such a difficult matter, isn’t it — especially when you suffer from an invisible disease ( a ala “But you don’t look sick….”). I have struggled with it, too. But in the end, I’ve just asked for help. Still, it bites.

By: Florida Sue

Florida Sue — Thu, 02 Jul 2009 00:38:50 +0000

I just feel relieved that I have found your site. I am about to start the DMARDS, and even though I was a nurse in another life, I am scared. I am scared of the sudden onset of this disease and I am scared of eventually losing my independence. I feel mystified at the level of pain I have been experiencing and I feel downright ticked off at my fatigue. It’s a whole new ballgame and I don’t know the rules. I have had many patients with RA in my career, but none of that matters in trying to sort this out in my own head. I am avidly reading your previous posts and comments. Thank You.

Sue.