Comments on: This Is My Life http://www.rheumatoidarthritisguy.com/2009/08/this-is-my-life/ Adventures of a superhero on his journey through chronic pain and debilitating inflammation Sat, 29 Jun 2013 14:09:31 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: Lana http://www.rheumatoidarthritisguy.com/2009/08/this-is-my-life/#comment-1129 Lana Tue, 25 Aug 2009 18:24:25 +0000 http://www.rheumatoidarthritisguy.com/?p=6137#comment-1129 Thanks for the heads up. I have my moments too. I will know how to respond now when I have one of “those” moments.

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By: ann marie http://www.rheumatoidarthritisguy.com/2009/08/this-is-my-life/#comment-1128 ann marie Tue, 25 Aug 2009 15:54:19 +0000 http://www.rheumatoidarthritisguy.com/?p=6137#comment-1128 i spent my first seven years with RA telling myself and everyone else that this was the best thing that ever happened to me. RA is my teacher, i would say, and i am so grateful for what i am learning. meanwhile, on a less conscious level i was fighting it with everything i had. i was in denial, to a degree.

positive thinking is wonderful, as long as it’s not used to put a lid on a can of worms of negative feelings, as i had.

you seem to have come so far so fast, RAGuy, in your acceptance of your situation. much respect to you for that. i know that our degree of acceptance goes up and down, and sometimes we fight it and sometimes we don’t, but after 12 years with RA i find that it’s only been in the last couple of months that i have really begun to face the reality of this illness and the very real possibility… -probability- that this is something i will be dealing with for the rest of my life.

this is my life.

RA is not something for which i can receive an early-release based on good behavior. tried that. it’s not a punishment for various personal failings of mine. although sometimes i still catch myself feeling that way. This disease is not an entity, a being that enjoys causing me pain, even though it can seem that way sometimes. RA is simply a fact of my life. i can accept it or suffer all kinds of unnecessary shit. this is my life.

with this realization comes sorrow and then, eventually a sense of relief almost: ok, now i can stop fighting. i don’t have to spend my precious energy holding a perpetual stance of resistance. i don’t have to feel crushed with disappointment / anger / feeling i’ve failed every time things go on the down-swing. no. when i can remain aware, stay close to the RA, as you so wisely put it, it can’t take me by surprise so easily. I can say “oh. hello. i see you’ve come for another visit. well, come on in.” it is far less stressful and therefore more healing than to see a flare and put your dukes up: “YOU! AGAIN? LEAVE ME THE F**K ALONE! CAN YOU GIVE ME NO PEACE?” That was me, many, many, many times.

thank you for your post. this site is a great help for those of us who are interested in keepin it real. may all of you, all of us, enjoy the good moments that come today. amen.
(suddenly felt like i’d just given a sermon!)

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By: Hazel http://www.rheumatoidarthritisguy.com/2009/08/this-is-my-life/#comment-1127 Hazel Tue, 25 Aug 2009 12:15:27 +0000 http://www.rheumatoidarthritisguy.com/?p=6137#comment-1127 Acceptance is a practice. Some days it comes easier than others. Thanks for the reminder:)

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By: IamRaynydaze http://www.rheumatoidarthritisguy.com/2009/08/this-is-my-life/#comment-1126 IamRaynydaze Tue, 25 Aug 2009 11:58:30 +0000 http://www.rheumatoidarthritisguy.com/?p=6137#comment-1126 I can’t tell you how many times I have myself thought this very thing. This is my life. Sometimes it is a positive affirmation that there is life with and beyond RA. Other times it has been a curse of self loating and fear. Today I take you and these words to work with me, today I am feeling physically able to accomplish my tasks. I don’t know what tomorrow will hold and try not to care too much, because for today,this is my life.

So thank you for sharing your thoughts with us and I hope many others see the joy of the words.. This is MY life.

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