6 Months Later…

RA Guy Adventures of RA Guy 5 Comments

Six months ago today, Rheumatoid Arthritis Guy wrote his first blog post.

Rheumatoid Arthritis Guy Saves The World!
RA Guy on April 24, 2009

Okay, so maybe I didn’t save the world – yet. But I did launch this blog, and on a Friday afternoon no less. Now I can kick back and relax over the weekend. I’ll go back to saving the world on Monday.

The idea to start my own blog has been simmering around in my head for a while, but upon hearing for the third time in a month “Why don’t you start your own blog?” I finally decided to give it a go.  I put aside my self-paced iPhone application development training (and corresponding new MacBook Air – what a lovely thing) and jumped into the world of Adobe Illustrator (illustrations on the right) and WordPress (blog publishing software, for those who are not familiar).

I hope to have fun sharing adventures of my journey through chronic pain and debilitating inflammation.  My rheumatoid arthritis has undergone a major progression during the past few months, and I need to turn my daily routine of putting on and taking off my wrist guards and ankle protectors into something fun.  Hence, Rheumatoid Arthritis Guy and his tungsten wrist guards and titanium ankle protectors.

And yes, I really do still have a full head of hair.  Although two weeks ago I started taking Arava for my rheumatoid arthritis, and one of the most common side effects of this drug seems to be hair loss.  Here’s hoping that I don’t become follically challenged.  (Although I guess being able to comfortably lift a brush is more important than having a full head of hair – darn those wrists!)

So welcome to my world and welcome to my blog.  Don’t be shy – I would love to hear from you.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

Original Post: http://www.rheumatoidarthritisguy.com/2009/04/hello-world/

Have I saved the world? Maybe not yet – but I do think that I have started to do my part in helping to raise awareness of what it’s like to live with rheumatoid arthritis. Along the way, I have met many other wonderful superheroes. It’s been a great journey up to now. I can’t wait to see what’s next!

FYI, I eventually did start losing my hair, after being on Arava for a few months…but I am still able to lift a brush!

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy

Comments 5

  1. Leslie

    hey lifting a brush is very important! plus…bald guys are sexy! bald women…not so much….but we do have some great wigs to choose from 😉 I haven’t experienced hair loss with methotrexate….hopefully that wont happen.

    I’ve read on your blog in the past about your problems with gluten. Have you read how they are doing studies to show the connection between the immune response from gluten and RA? I have been gluten free for a week and I feel much better….still not great but its a start. There is a lot of interesting info online about it…

  2. Lana

    It has been amazing ride, hasn’t it? Your blog is inspirational. I didn’t blog much about my RA in the beginning, and I only started blogging about my RA after I started following your blog. Thanks for pushing towards awareness. It is the single most important thing that we can do change the criteria for diagnosis, research better treatment,and hopefully, lead to a cure. What I learned in my journey, it takes a lot of work to live in chronic pain. I do it everyday, being a mother, working fulltime, working on my masters, etc. A superhero can only do it.

    Note to self: Stay away from Arava.

  3. Wren

    Yours is an excellent RA blog, Guy. You’ve found so much helpful — and yes, FUN — information and made it all so easy to access. And your posts are invariably kind, thought-provoking, humorous and honest.

    Let me return the favor just a little: I’ve been taking Arava for 13 months now. For the first 10 months I lost a lot of hair, too (a rather upsetting phenomenon for a woman!). But then it stopped, and now my hair seems to be thickening up again and becoming less brittle. Here’s hoping the same happens for you.

    Keep up the great blogging. You’re absolutely an inspiration to those of us who also fight RA and other autoimmune diseases. Thank you!

  4. Mallen

    I LOVE your blog RAGuy!! You have helped many people connect with others, find more information, and realize that someone understands what we are feeling. Thank you for reaching out to us and I hope that you will continue for a long time.

    Congratulations on six months of blogging!!


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