Comments on: Living With Rheumatoid Arthritis: Navigating the Medical System

By: Rheann

Rheann — Fri, 09 Oct 2009 13:40:57 +0000

You are truly a Superhero with double Super Powers! TYVM ~RockinRhea

By: Connie

Connie — Fri, 09 Oct 2009 13:40:40 +0000

I’m an LPN with RA and back in school getting my RN. Hoping I don’t drop everything I pick up from the weaknes in my hands. And praying it is a day that my medicine doesn’t make my hands shake. Some of us nurses do give the best care we can to everyone with all the compassion we can have because we also know what it feels like to live with pain and to live with it feeling like no one else understands because “you don’t look sick.”

By: Deborah

Deborah — Fri, 09 Oct 2009 13:40:19 +0000

That’s sad though Marianne, everyone deserves the best care the nurses and staff can give, shouldn’t have to bribe them with candy!

By: Marianne

Marianne — Fri, 09 Oct 2009 13:39:57 +0000

My husband and I bring large bags of candy to the nurses and staff at my Rheumy’s office. We get something special for the office vampire (phlebotomist who draws my blood every visit!), because she’s armed with needles! (we call her that in the office – she likes it!) Anyway, we find if we show them some special attention, they do the same with me.

By: Rebecca

Rebecca — Fri, 09 Oct 2009 13:39:37 +0000

I agree, Michael. I’d like to see the AF or some other organization provide guidance to those with RA. I’ve had it 30 years and sometimes I could still use help navigating the healthcare industry!