Comments on: What Being Disabled Means To Me http://www.rheumatoidarthritisguy.com/2009/10/what-being-disabled-means-to-me/ Adventures of a superhero on his journey through chronic pain and debilitating inflammation Fri, 22 Jul 2016 13:43:50 +0000 hourly 1 https://wordpress.org/?v=4.4.4 By: Brayden McDonald http://www.rheumatoidarthritisguy.com/2009/10/what-being-disabled-means-to-me/#comment-22375 Fri, 11 Sep 2015 03:16:51 +0000 http://www.rheumatoidarthritisguy.com/?p=7407#comment-22375 I don’t remember what I was researching, I only got confirmation today that I have this.
I have been trying to learn what I can, but I read this and am struggling with not breaking down right now.

I am 25 and scared shitless of having to tell people they can’t use something because its something I had to special order to be able to just eat.

But reading this has helped me some to cope a bit with the fact my whole life now has to change, no matter how much I want to fight this.

Thank you, for having this on here even if I cannot bring myself to read other comments, thank you.

]]> By: Katrina http://www.rheumatoidarthritisguy.com/2009/10/what-being-disabled-means-to-me/#comment-7161 Sat, 11 Aug 2012 05:30:48 +0000 http://www.rheumatoidarthritisguy.com/?p=7407#comment-7161 This is so inspiring. I will be going to see my doctor soon and am going to be asking to get a disabled parking permit. I’m printing out the paperwork this week for my appointment in September. I’ve had a few people suggest it to me and have decided it will make my life a lot easier. I walk as slow as a zombie and I have to stop a lot. It’s exhausting and parking five or even three places farther away is a big deal now. It’s hard, but I need it. I have to remember I am doing this for ME, no one else. Thanks for the encouragement. :)

]]> By: Patty http://www.rheumatoidarthritisguy.com/2009/10/what-being-disabled-means-to-me/#comment-4355 Tue, 09 Aug 2011 23:41:02 +0000 http://www.rheumatoidarthritisguy.com/?p=7407#comment-4355 I love how you are able to be so introspective as to put into words what is emotional, personal loss, and previously not put into narrative. — Wait — that sentence sounds and feels very academic.
Thanks, RA Guy, for helping us understand ourselves so much better.
I haven’t been able to drive for 5 years due to total loss of my right foot/ankle. But, after having no major surgeries since 12/’09, some physical improvement, and psychiatric therapy and an anti-depressant, I’m ready to take my final driving test with my OT on Wednesday. I will drive with a left-foot pedal and use my walker to get around — in a new city — for a new life. It’s scary, but it’s New Life. I have to go for it!
Painless Hugs to you, Patty

]]> By: Miss Waxie http://www.rheumatoidarthritisguy.com/2009/10/what-being-disabled-means-to-me/#comment-2766 Wed, 09 Jun 2010 05:34:55 +0000 http://www.rheumatoidarthritisguy.com/?p=7407#comment-2766 Dear, dear RA Guy,

I know i have been LOOOONG absent…but I’m so glad to see you’re still going strong and still so positive. I really look forward to tuning into your adventures more regularly!

I’m [finally] going back to writing about my illness via comic too and I hope you stop by and check out my latest episode whenever you have the chance.

Good to see you buddy!

– Miss Waxie
http://acomiclifeindeed.wordpress.com

]]> By: Martha Alonso http://www.rheumatoidarthritisguy.com/2009/10/what-being-disabled-means-to-me/#comment-2648 Thu, 29 Apr 2010 15:59:56 +0000 http://www.rheumatoidarthritisguy.com/?p=7407#comment-2648 HI, RA guy. I just got done reading your story. I always thought I was an optimistic person my self, not so much lately. With every agonizing keystroke I think you’re an inspiration. I was diagnosed with RA when I was 25 yrs old. I am now 36 years old. I have tried to stay positive all these years but I am losing that positive sprit with every year that goes by. I recently had a complete shoulder replacement and might have to have wrist surgery as well. I’m a medical assistant and I love what I do. I have always enjoyed helping people but lately I can’t even help my self. I have a disabled placard in my car and I also have had my share of stares and the finger pointing. I am amazed how people are so quick to judge a person. I wish I could reach over and touch someone on the arm So that they get a sense of what type of pain I am in every day of my life. Maybe then they would not be so quick to judge me. How do I stay positive when I’m in so much pain? Is there a time where you just want to throw in the towel? I have seriously considered having my Dr. put me on disability but my heart tells me otherwise. What should I do? I’m torn between the pain and my joy for helping others.

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