Exercise And Rheumatoid Arthritis

SirsasanaAfter a more than two-month absence, Rheumatoid Arthritis Guy returned to the gym last week. While I had not worked out in the “traditional” sense, I do consider many of the days that I experienced during this past flare as some of the most difficult workouts of all.

When I say this, I am not being just metaphorical – I was surprised at how easily I was able to get back into the gym groove. I obviously had gotten exercise during the past two months, as I struggled to remain mobile. It was nice to realize this.

Right around the same time that I started exercising again, a couple of  fellow bloggers were also writing about their own returns to the gym. [Dual Sport Life’s Dos and Don’ts of a Successful Fitness Plan and RheumaBlog’s Apprehensive and Pep Talk.] This might sound silly, but I sort of felt like I was in a silent alliance with them…probably because I understand how difficult it is for those of us living with rheumatoid arthritis to maintain a regular exercise plan.

During the past few years I’ve had an on-again off-again relationship with my exercise plan, which consists primarily of power yoga, pilates, and some basic weight training. Early on in my life with rheumatoid arthritis is was more on-again, but most recently it’s been more off-again. I have come to accept that this will always be a part of my routine. There will be times when I can work out, and there will be times when I cannot work out.

While my gym is a little more costly than others in town, I have always thought it was worth the price, as it has the best instructors that I have found to date and is the only full-service fitness center in town. (I love the dry sauna during winter time!) But as I continued to lose more and more days out of each month, I did start to worry about continuing to pay for a membership that I could not fully use.

So the first thing I did before I returned to the gym last week was schedule a meeting with the owner. As some of you may remember, I did email her back in May after having missed three weeks that month, and she graciously gave me an extension for my lost time. While we resolved this as a one-time occurrence, it only recently became obvious to me that periods of absence would more than likely continue to happen in the future. I had an entire speech prepared in my mind, in which I was going to ask that my lost days not be counted against my monthly membership.

To my surprise, I never even got to speak these words that I had so carefully prepared. Immediately, she welcomed me back and told me that in the future I would not be charged for any missed days. She informed the reception desk, and let them know that I was going to be keeping track of my missed days and that my monthly membership was to be extended accordingly.

I also asked if there were any services that were more restorative in nature. (I have been going there almost two years and had never asked!) I was surprised to find out that one of the personal trainers is actually a practicing physical therapist. She also told me that some pilates reformer machines will be arriving in the coming months…and while there will be a lot of demand for available slots, that I could be given one of the spots as this would allow me to continue to exercise while reducing the strain on my joints.

Last week I went to the gym twice: one yoga class and one pilates class. This week I went four times: two yoga classes and two pilates classes. New week I hope to build up to six visits. While I am obviously feeling much better than I have been in the past month, my biggest rule has been not to push myself too hard. I am modifying my routine as needed – just this past week I did an entire vinyasa routine without using my wrists, and the following day did an entire pilates routing without using my hands. I can do one-legged postures on my right foot, but cannot do them with my left foot.

In yoga class, we typically close our routine with an freestanding headstand. I told myself that I was not even going to try this posture…how could I possibly do so after not having done a headstand for months? I then changed my mind. I told myself that I was going to move into the entry position, and then I was going to listen to my body. My body, and not my mind, was going to tell me if I was ready to move into headstand. Before I even knew it, I was in the full pose.

My yoga companions started clapping, which surprised me. After all, they have seen me enter into this pose many times before. It then hit me… They weren’t clapping because I was doing a headstand. They were clapping because they know that I live with rheumatoid arthritis, and they know what it means when I am not in class – especially for extended periods of time. They were clapping because I was back. Deep down inside, this made me feel good.

So instead of being completely on or completely off, I am learning to explore and adapt to that gray zone in between these two extremes. Hopefully, in this manner, I can continue to balance my exercise needs with the reality of living with rheumatoid arthritis. And in the process, I can continue to get to know my body even better.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

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Making Lemonade: Happy Fifth Anniversary RA

Well it’s been officially five years since I’ve been diagnosed with rheumatoid arthritis. Happy anniversary!! I think… Who would I be without RA? Well, most likely I would be working full time, hardly ever seeing my children. I certainly wouldn’t have been able to continue homeschooling the children after my husband left. I probably wouldn’t be living here either. Wow. It’s hard to think where I would be right now if there wasn’t RA.

Read More: http://mlpinky.blogspot.com/2009/10/happy-fifth-anniversary-ra.html

What a great idea, celebrating the anniversary of your RA diagnosis! Thank you for sharing…now I’ll have to go figure out my diagnosis date so that I too can celebrate my RA anniversary.

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Hand In Hand For RA

Hand In Hand For RA

People with RA no longer have to feel like they are “held back” by their disease. In fact, a new survey of people with RA showed that the exact opposite is true — they are looking for ways to do more.

Hand in Hand for RA is a national awareness campaign that aspires to tap into the community’s “can do” spirit by empowering the approximately 1.3 million Americans living with RA, their loved ones and friends to join the ever-growing national movement of volunteering and public service.

More Info: http://handinhandforra.com

Hand In Hand for RA is a national awareness campaign developed by Genentech and Biogen Idec with the grassroots advocacy group CreakyJoints.

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My Warm Giraffe Heat Pack

Rheumatoid Arthritis Guy really likes items that are not only functional, but that are whimsical as well. They need not always be humorous in nature. Just as long as they are designed with design in mind, I love them. (It must be the design student that still exists inside of me.)

So this past year, when I was visiting one of my favorite stores in San Francisco (Rainbow Grocery), I was thrilled to find this scented heat pack in the form of a giraffe. Not only do I love giraffes (they actually had a wide assortment of animals), but I loved the notion of taking a somewhat mundane scented heat pack and wrapping it up with a stuffed animal.

The heat pack is easy to take in and out, and heats up in seconds in a microwave. When the scent begins to wear out, all you have to do is douse it with a few drops of your favorite aromatherapy essential oil.

So while I’m heading into warmer weather (these past few days have been some of the warmest all year), I thought some of my friends up in the northern hemisphere might like to share in my recent discovery, as they move into the cold winter months! After all, how could you not like a heat pack that smiles at you?

PRODUCT INFORMATION

Hot Hugs Giraffe
Aroma Home Hot Hugs Microwavable Giraffe Heat Pack with Lavender and Chamomile Pure Essential Oil – Made in England

Heat packs are fabulous to use for aches and pains, muscular tension, stress or cramps. Can’t sleep on a cold night? A cozy heat pack will work its magic. Cold Feet? Heat packs keep your footsies warm and comfortable. Heat packs soothe and calm children. Children love to cuddle with plush warm companions. Heat packs are easy to travel with, especially on a long flight or bus ride. Beneath this giraffe’s furry tummy is a wheat sachet. Simply heat it in the microwave and enjoy a warm cuddle every time. Just give them a big hug and bask in the aroma of pure lavender and chamomile, which promotes sleep and well-being. Yummy, sweet smelling animals. Hot Hugs are innovatively packaged and are 100% natural making them the perfect gift. Go on, spread some animal magic. Made in England.

More Info:Aroma Home Hot Hugs

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

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Rheumatoid Arthritis Shouldn’t Be A Barrier To Work

“People with rheumatoid arthritis want and should have the right to work and contribute to society. Three quarters of people are of working-age when they are diagnosed with RA1. It is therefore vital that these individuals have access to the services they need to help them stay in work. We must also raise awareness amongst local employers in Sheffield about the importance of creating flexible and accessible workplace environments to assist employees with long-term conditions, such as RA to stay in work.”

42% of people with RA are registered disabled within three years and four fifths are moderately to severely disabled within 20 years of diagnosis. The condition can shorten life expectancy from around 6-10 years and can have a major impact on a person’s life as well as impacting on the rest of the family.

Read More: http://www.labourmatters.com/sheffield-central-labour/rheumatoid-arthritis-shouldnt-be-a-barrier-to-work/

Chester Campaigner For Disabled Visits Westminster

A well known disabled campaigner went to Westminster to help Parliamentarians learn more about the impact of rheumatoid arthritis on people’s working lives.

Lynda Hesketh, a leading light in the Chester Ad-PHAB club for disabled and non-disabled people, and other National Rheumatoid Arthritis Society members, joined MPs on World Arthritis Day, including Chester MP Christine Russell.

MPs were told RA is an “incredibly painful disease” affecting more than 580,000 people in England and can cause severe disability. It mainly affects the joints but can impact on other organs.

Read More: http://www.chesterfirst.co.uk/news/80956/chester-campaigner-for-disabled-visits-westminster.aspx

NRASAilsa Bosworth, chief executive and founder of the National Rheumatoid Arthritis Society, said: “Policymakers must consider the economic burden imposed on individuals, families and society if people with RA are unable to work.

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