Comments on: Marianne Hoynes

By: John M.

John M. — Fri, 04 Dec 2009 21:48:43 +0000

Marianne,

Strong voice in the wilderness. Take care of yourself.

Any permanently disabled worker in New Jersey should
apply to their County Disability Review Team for enrollment in NJ Work Ability health insurance. Extremely good governemt plan and most prescriptions are covered.

Happy Holidays!
and most meds are

By: RA Superb*tch

RA Superb*tch — Fri, 13 Nov 2009 18:12:19 +0000

Marianne,

Thank you so much for the sweet comments about my blog! My husband and I sent your news link to friends and family back when Keith Oberman first reported on the story. We were incensed that men could be so insensitive.

If I am writing anything worthwhile, it must only be because I am encouraged by people like you!!! You spoke with such grace and dignity. And the RA community recognizes that you aren’t just telling YOUR story, you are telling OUR story.

Do us a favor. Put up a paypal link so we can send donations for your house. And we will spread the word among our friends.

– RA SB

By: RA Mom

RA Mom — Fri, 13 Nov 2009 16:56:41 +0000

Thank you so much for sharing you story, your thoughts, etc. You truly are a hero to the RA community!–not to mention an inspiration!! God Bless….RA Guy’s Mom

By: marinne hoynes

marinne hoynes — Thu, 12 Nov 2009 21:16:27 +0000

Thanks to all of my “friends” in the MS, RA, and Fibro community. I am grateful, and always uplifted, by your support, kind messages and encouragement.

I don’t see myself as being an especially courageous person. We all cope the best we can with chronic illness, and it warms my heart that we all take time to give to each other.

In regards to our atrocious lack of health care in this country, and the appalling greed of our government and the health care industry, I was just sick of it, sick of being financially drained and making choices about medication or paying for food and my home.

Society works best when we stand up and speak against oppression and wrongdoing. I am the daughter of an ex-Catholic priest and a community organizer. it is actually harder to sit and suffer in silence, than to protest.
I wanted very much to go speak on Capitol Hill during all of this debate and fear mongering, of politicians who care more about not letting the other guy look good, than the health and welfare of the people they represent. I guess my message was too threatening – I had no response from my Congressman Frank Pallone, or my senators Lautenberg and Menendez, and they were “not available” when I called and spoke to staff.

People are really suffering in this country. We are all responsible, for how silent we have been, are being, as we learn more and more, the personal stories of wrongful death at the hands of an insurance company, the statistics for homelessness because one family member becomes ill, or because you give birth to a special needs child, or have a terrible car accident.

I have a friend with Lou Gherigs disease, ALS. She said this to me today, after she told me she could not afford her medication, ” I can’t afford my medicine so my doctor and I have discussed it and it is what it is. I am not going to go berserk over it. I will die sooner but I will be with God sooner. I have had a good life and I will continue to live it as best as I can.” She is already a cancer survivor, and was a Career NJ Corrections Officer. She is courageous.

Thanks all of you, thanks RAGuy.

By: Wren

Wren — Thu, 12 Nov 2009 18:29:26 +0000

Who could fail to be inspired by Marianne’s bravery in regards to her stand at that town hall meeting? Or by her story? And who could fail to be disgusted by the people in that audience — our fellow Americans — who hooted at her, shouted insults and attempted to keep her from speaking out about the desperate need for health care insurance reform? Even months later, that video appalls and astonishes me even as Marianne’s courage works to steel my resolve.

Guy, thanks for posting these profiles. And Marianne: Bravo!