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Out of Joint
RA Guy on May 20, 2009

Out of Joint“She begins, in the morning, by casing her joints: Can her ankles take the stairs? Will her fingers open a jar? Peel an orange? But it was not always this way for Mary Felstiner, who went to bed one night an active professional and healthy young mother, and woke the next morning literally out of joint. With wrists and elbows no longer working right, she’d discovered one of the first signs of rheumatoid arthritis, the most virulent form of a common disease. Out of Joint is her account of living through arthritis, a distinction she shares with seventy million Americans. While arthritis pain affects one out of three Americans, this book is the first to tell the personal story of the nation’s most common yet neglected disease. Part memoir, part medical and social history, Out of Joint folds the author’s private experience into far-reaching investigations of a socially hidden ailment and of any chronic condition—how to handle love, work, sexuality, fatigue, betrayal, pain, time, mortality, rights, myths, and memory. Moving from the 1940s to the present, this story of one life with arthritis exposes little-known medical research and provocative social issues: alarming controversies over arthritis miracle drugs, intense demands concerning disability, and the surprising and disproportionate number of women affected by chronic illness. From this prize-winning historian comes a call for healing through history, a moving meditation on the way chronic conditions can be treated by enlisting the past.”

Read More:

Read the response from Mary Felstiner to Rheumatoid Arthritis Guy: Out Of Joint, Pt. 2

Comments 2

  1. Cheryl

    I have Rheumatoid Arthritis and I no longer have insurance. The company is giving me the Remicade for free, but my doctor’s office is charging me $252 for each treatment. It is an aweful feeling knowing there is a drug that can help me, but no place to give it to me. How does one overcome that?

  2. Moira

    Can they consider “Humira” for you Cheryl?, it was a really good drug for me for a while… it is a biologic (expensive) but I was lucky to get funding in New Zealand for a couple of years. I was able to inject myself at home, once a fortnight. I know what you’re saying though… I used to have to pay to have gold injections done by a nurse (a diff sort of injection I wasn’t allowed to do myself) but it pissed me right off – I was subsidized hundreds of dollars for the drug, but had to pay weekly to have it injected! it wasn’t nearly as much as yours, but it was bankrupting me at the time and there’s no way to get out of it if you need the drug to work/live.

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