RA Guy Adventures of RA Guy 8 Comments

50-50-logoOne of the aspects of living with rheumatoid arthritis that has been most difficult for me to come to terms with has been the roller coaster fluctuations from good to bad. Sometimes these ups and downs take place over the course of weeks and days, and at other times they take place over the course of hours and minutes.

I’m getting a little more used to this, though…and instead of continuing to be annoyed by the unpredictable nature of my illness, I have actually grown to see this variety as something that definitely makes my days not boring. It’s definitely good to plan ahead, but it’s also sort of fun to live for the moment.

Over the past ten days or so, my rheumatoid arthritis has been 50:50. Who would have known it? Just yesterday in a SAT tutoring class the topic that we studied was ratios, as in “to find a ratio, put the number associated with the word of on top and the quantity associated with the word to on the bottom and reduce.” I can already see the test question now:

Rheumatoid Arthritis Guy’s illness is very active from 11pm until 11am. From 11am until 11pm, it is almost unnoticeable that he has rheumatoid arthritis. What is the ratio of his active RA time to his non-active RA time?

Having experienced both extremes, from 1:100 (remission) to 100:1 (extreme flare), I am more than happy to be at 50:50…especially when those active hours take place during the nighttime/morning hours. Sure, the time that I roll out of bed has been drastically pushed back due to morning pain and stiffness…but at the same time, my RA activity during the night has not affected my sleep.

So all in all, I am a happy camper at the moment – even if I do have to meet my rheumatoid arthritis halfway!

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

Comments 8

  1. Lana

    “Sometimes these ups and downs take place over the course of weeks and days, and at other times they take place over the course of hours and minutes.” I don’t know often how I’ve written that, said that, or thought it. Planning, Planning, Planning – really that is you can do when it comes to the unpredictability of RA flares. I like how you add to optimism even when the going (RA) gets tough. You rock RA guy!

  2. Jane

    Another great post! Dealing with 50:50 is OK and actually feels like a normal life. REALLY don’t care for the 100:1 times or even the 80:20. However, your are right, it does keep life from getting boring! Here’s to mostly 50:50 and better days for 2010. Thanks RA guy!

  3. Jennifer

    Hi RA Guy,
    Yet another BRILLIANT post! Currently at home with mum in the country and I got her to read your post as you explain it better than I could. Mum was there when I was diagnosed at 13 yo, which was 17 years a go however I have never been able to explain how I am feeling. So thank you for doing it for me.

    Yesterday I was having a great day up until just after lunch. I got so tired, I ached, could not make any decisions and mum relaised I just needed a nap. Once I had that nap I felt so much better – I was able to function. I was able to wash the car – it took me a while to do but I was able to do it in the cool of the evening. But if I had not had that nap I would not have been able to it. This is just another example of how fustrating RA is.

  4. Sally

    Morning is often a bad time for RA- stiffness and feeling exhausted despite a long sleep. Evening is often the best for me- I am fortunate that I work from home and can get a lot done during the evening when I feel my best. Thanks for putting the 50:50 day into perspective! People without RA just can’t realize how much we appreciate the time that we feel at our best.

  5. Chelsea

    It takes a while of switching around meds, and times of day or night that you take certain meds (nsaids/prednisone) to figure out what works for that stiffness. And then weather can still go and mess that up. But keep working on it.

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