Comments on: Rough Start

By: Lene

Lene — Fri, 22 Jan 2010 16:24:26 +0000

I think it’s wonderful that your body finds a way of releasing the pain and sadness -once you sort of get a handle on what it is and what it means, I think it might make it easier to get through the day because you’ve acknowledged the feelings. When I was 11, I was in a rehab hospital for three with months and it was an awful place. It’s where I learned that crying doesn’t change anything, so I stopped. And 35 years later, I’ve come to realize that holding it all in just makes it worse – it actually increases my pain levels, so I’m trying to learn to cry again. I’m told it can be healing.

The one good thing that the rehab hospital taught me, though, is this: set your alarm clock to about two hours or so before you have to get up, take some painkillers with a bite of apple or some crackers (it gives your stomach something to do with the pills instead of trying to eat itself). That way when you get up, the painkillers are working and it’s easier to get going. I also take painkillers before I go to bed, which means the pain is controlled enough that I can get some restful sleep.

By: Lana

Lana — Fri, 22 Jan 2010 11:37:36 +0000

RA Guy, you are not alone. I have had similar nights. I think that is just all part of the disease. Hang in there superhero.

By: Sunita

Sunita — Thu, 21 Jan 2010 09:11:30 +0000

I felt so sad when I read your words. I hope you’re not getting too depressed. I must admit to just taking Diclofenac when it gets really bad…and sometimes I cry, especially when I feel I can’t move. Methotrexate and Leflunomide didn’t agree with me. Humira seems to be having a positive effect…at least so far. You mustn’t get consumed with this thing. You’re a strong lad.
Love Sunita

By: Remicade Dream

Remicade Dream — Thu, 21 Jan 2010 03:53:41 +0000

I have the same problem as Ness – I can’t seem to cry. I would like to. I think it would help. I never had problems crying before, and hadn’t considered that it could be the medications.

Thank you for sharing this!

By: Kara

Kara — Thu, 21 Jan 2010 03:32:54 +0000

same happens to me–