Comments on: How Do You Do It?

By: Matt

Matt — Fri, 31 Dec 2010 05:47:44 +0000

RA Guy – Great posts. I’m also in my 30s living with RA. We probably have a lot in common. I have also decided to Blog my story to not only help others, but to use it as a daily affirmation and a log to help me figure out what works when, how and why. I’d like to be on your blogroll if possible, my site is:
http://managingra.blogspot.com/

Thanks for the posts, keep on keepin’ on and let’s beat the RA down and help others in the process.

Thanks,
Matt

By: Leigh

Leigh — Mon, 06 Dec 2010 00:31:23 +0000

Nice post. I’m in remission right now, but have had about 6 years of bad flare in the 11 years since I was diagnosed. Like you, I learned that being busy and “keep on keeping on” was the best choice for me both physically and mentally. I didn’t see that I had a choice. I recall those days of wearing slip on sneakers to my office, hobbling in, leaving early, napping on my office floor, working the phone from my bed and doing whatever to get thru life. Yeah, things suffered, but all in all I’m proud of all I’ve overcome.

Initially I was infused with Remicade in an office with about 8 patients at a time. I saw a lot of RA people and knew that many had given in to the disease, unlike me that just decided to not let it take all of me. Perhaps that helped motivate me as well, and perhaps its something inherent. Mind over matter and I know that I won’t let this disease get the best of me.

Thanks for the great post.

Leigh

By: Cathy

Cathy — Sun, 05 Dec 2010 15:11:05 +0000

I find that even during the worst of my flares I have to keep going…just like you. I find that when I go ahead and get up and share moments of laughter or deep conversation with friends and family that the pain lessens a bit during that time. I find that blogging allows me to share my feelings and that helps a lot. In my opinion, we have to keep going, otherwise this disease destroys us.

By: Dennis P

Dennis P — Sun, 05 Dec 2010 05:35:55 +0000

Hi, I was hoping I could talk to you about RA. I believe that I have RA, but the blood work doesn’t show it. I had Ulcerative colitis as a young man(since had my colon removed.) My mother has Lupus, so I have the prerequisite autoimmune disorders covered. I have the pain in my joints, the fatigue that sets in, basically all of the symptoms of RA that I have read about. My problem is that I no longer have insurance. So, to continue testing is too costly, especially when my gut tells me it’s RA. Do you have any thoughts on how I can get this properly diagnosed, or any help at all?
I would like to thank you in advance for any thoughts you may have.
Dennis

By: Joan

Joan — Sun, 05 Dec 2010 00:23:36 +0000

Same thing you do… I just keep going.