Comments on: Hope Is A One Way Street http://www.rheumatoidarthritisguy.com/2011/01/hope-is-a-one-way-street/ Thu, 03 Sep 2015 17:55:04 +0000 hourly 1 http://wordpress.org/?v=4.3 By: Maya http://www.rheumatoidarthritisguy.com/2011/01/hope-is-a-one-way-street/#comment-3233 Thu, 20 Jan 2011 18:48:02 +0000 http://www.rheumatoidarthritisguy.com/?p=10968#comment-3233 I’m only just reading this post…and I’m so very sorry to hear you’re going through this painfu time. Believe me, I can relate. You have an incredibly strong and amazing spirit and your words have helped me through painful flares. Keep your head up, but also allow yourself to feel however you may feel – you don’t always have to be the superhero you are.

Finally, please check out Cathy’s short, but poignant post and try to keep remembering it will pass:

http://thelifeandadventuresofcatepoo.blogspot.com/2010/05/like-storm.html

Hugs,
Maya (www.lovingwithchronicillness.blogspot.com)

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By: Tracey au http://www.rheumatoidarthritisguy.com/2011/01/hope-is-a-one-way-street/#comment-3196 Mon, 17 Jan 2011 02:30:14 +0000 http://www.rheumatoidarthritisguy.com/?p=10968#comment-3196 Hi all,

I’ve never taken DMARDs in any great quantity. I’ve had juvenile RA since I was 12, I’m now 46. Pain is a constant but not often overpowering. Depression is a far greater enemy. But I’ve found it’s OK to have a bit of a wimp-out here and there, then come back later when if feels a bit better.

I take slow release paracetamol for the bulk of my pain management – it works well to give me back the important bits of my life. I also take serrapeptase (dietary suppliament) for inflamation and extra pain relief. I know dietary supplements are frowned upon by the medical profession, but this one has 35 years of research in Germany and is currently a prescription drug in Japan where it is used for post operative pain relief and anti-inflamatory purposes in particular for women suffering from mastitis. Anyway this combination works as well as large doses of Celebrex without the nasty side effects.

I’ve seen a number of rheumatologist and doctors, tried a lot of different drugs and I’m just over all the side effects.So effectively I self medicate (neither of my medications requires a prescription) and I’m much happier and feel much better.

I’ve accepted that the deformities will continue, I’ve already been lucky to have almost 15 years of remission, I’m not expecting any more.

I don’t know exactly what methotrexate does to alleviate pain, or help RA. I’m having a hard time understanding from various blogs, because I don’t read many positive write ups from RA users. Perhaps someone can let me know exactly what it does to help, from the point of view of someone with RA, rather than a clinical perspective?

Cheers

Tracey

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By: Cathy http://www.rheumatoidarthritisguy.com/2011/01/hope-is-a-one-way-street/#comment-3194 Mon, 17 Jan 2011 01:19:01 +0000 http://www.rheumatoidarthritisguy.com/?p=10968#comment-3194 Cry, scream, get angry, feel sad, feel vulnerable, feel weak……but don’t give up hope. Today is just one day of your journey. Prayers of hope are coming from all over the world for you today. Feel them. Know that you are loved completely and that this day will end and better ones will be on their way. You know you are always in my thoughts and I feel deep sadness for your pain today. But I also see sunshine in your future. Feel it!

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By: Arthritis http://www.rheumatoidarthritisguy.com/2011/01/hope-is-a-one-way-street/#comment-3192 Mon, 17 Jan 2011 00:42:19 +0000 http://www.rheumatoidarthritisguy.com/?p=10968#comment-3192 Thanks for sharing your pain with us. If anything, hopefully the venting relieves some internal frustration. I hope you find something that helps just for an extra minute or two.

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By: Kim http://www.rheumatoidarthritisguy.com/2011/01/hope-is-a-one-way-street/#comment-3191 Sun, 16 Jan 2011 22:52:31 +0000 http://www.rheumatoidarthritisguy.com/?p=10968#comment-3191 Hang in there!!

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