Comments on: Perpetual Exclusivity

By: deb aka murphthesurf

deb aka murphthesurf — Tue, 05 Jul 2011 14:05:53 +0000

You have opened a very big can of worms. Worms meaning the pharma companies, politicians accepting donations from said companies, and lobbyist prowling Washington streets for influence. It just sickens me to see what continues to unfold here in the US. Just sickens me and not just figuratively…physically as well. And throw into the mix that the FDA only voluntarily tracks adverse medication reactions and we are one big can of worms. Great article!

By: Lizz

Lizz — Sat, 22 Jan 2011 03:52:39 +0000

This is such a great post!!! Though it makes me wanna scream at these ppl. I am not blessed with good insurance…I get $50 a month for Rx’s….That is soooooo not even close to covering anything. I have tried most of the med.s that I can afford and none seem to work very well. I am in a clinical trial for the sub-dermal form of a medicine allready aproved in an iv infusion. It seems to have finally started working but the study is allmost over and I don’t know what I will do then.
I know some ppl wouldn’t chose the generic option even if it was available but as someone who doesn’t have a choice, I don’t understand why I don’t get to feel better because the biotech companies want to make a buck. If anything, once the med. is approved, it should just be the standard to offer a generic so that people like myself can have some relief!!!
This has acctually been on my mind for a while but I feel like this post was able to let me vent it…Thank You Soooooooooo Much Rheumatoid Arthritis Guy!!!!!!!!!

By: Joe

Joe — Sun, 16 Jan 2011 05:43:59 +0000

Great post. You are a brave soul. Thanks for having the courage to share this.

By: Laurie

Laurie — Fri, 14 Jan 2011 14:10:50 +0000

Good morning, RAGuy…as usual another thought provoking blog.

I thank God that there are folks like you who do research RA related things that we might not have known about otherwise.

Having been on 6 biologics and knowing that they “failed” me, I would hate to see the alter/repeat cycle that benefits only the drug companies..would be interested to know how many of their employees/reasearchers have RA.

As for the generic/proprietary debate, as a nurse I have seen good and bad generics. With a biologic I would probably chosen the brand name…however on Tuesday the OB unit where I work announced that as of 1//31 the unit will be closing and over 35 nurses are losing our jobs. There are 3 OB jobs at our other branch that we could transfer to. So, due to the generous severence package they are offering I have insurance until the end of February, when I get to COBRA it at a higher cost. I guess in March I’d wish Enbrel was generic. In the meantime I am trying to get 3 month refills on all my meds so I will at least have those.

Keep up the good work!

By: Rod

Rod — Fri, 14 Jan 2011 09:08:13 +0000

Situation is so dramatic. And this is the result of the extreme liberalism that we’re living on this days. Now, in order to get those drugs that all the rheumatologists say that will make a difference in your prognosis, you have to get yourself subject to the decisions on the insurances companies,the pharma lobbys and their goverment allies.

Basically, think this as you will have to work just for feeling better. Not to live. This is so unfair..almost make me cry makes me loosing the hope on the human being.

For humanity’s sake, I hope that law about reseting the clock never gets approved.

Really inspiring post RA dude. IDK if your lack of biologic treatment is because the place of the world you’re living in, hope I’m wrong. Nobody with this horrible disease should not be treated because economical or political reasons.

Have a nice day