RA Guy’s Secret To Exercising With Rheumatoid Arthritis

On days like today, when the pain sometimes seems like it’s too much to handle even when I’m staying still, I’m always on the lookout for a good source of humor. I’m pleased to announce that I just found such a source…a source which gave me a good, hearty chuckle.

You see, I always thought that walkers were for individuals who had difficulty standing and moving around (much like myself, at the moment).

But I was wrong. Little did I know, but apparently these walkers can also double as a total home workout center. Twist a knob here, increase your biceps. Turn it on its side, do some push ups. Flatten it, rip your abs. And so on, and so on.

Don’t believe me? Take a look for yourself. (And in case you’re wondering, yes this is a real product!)

Hahaha!

Later this afternoon I had an appointment with my rheumatologist. In the meantime, I think I’ll work up a sweat by creating a workout routine with my mobility aids. I must be honest. I personally don’t own a walker…but after seeing the commercial above, I want to. Except I wouldn’t call it a walker…I’d call it “The Rack”.

Prednisone pounds beware!

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

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Let SSA Know RA Can Be Disabling

Today, the Arthritis Foundation is speaking out! Today, we are telling the Social Security Administration (SSA) that it is unacceptable that it can take months if not years for people with disabling rheumatoid arthritis to get through the disability claims process (watch testimony). Today we are asking you to join us!

The Social Security Administration is considering that for certain autoimmune diseases, people with rheumatoid arthritis, lupus, and scleroderma would be eligible for possible expedited claims review, also known as “compassionate allowance”. If SSA makes this change for autoimmune conditions such as rheumatoid arthritis, those disabled with RA would not have to wait so long for a decision regarding disability benefits.

Read More: http://www.facebook.com/notes/arthritis-foundation/let-ssa-know…

Arthritis Foundation LogoThe Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions.  Founded in 1948, with headquarters in Atlanta, the Arthritis Foundation has multiple service points located throughout the country. The Arthritis Foundation is the largest private, not-for-profit contributor to arthritis research in the world, funding more than $380 million in research grants since 1948. The foundation helps people take control of arthritis by providing public health education; pursuing public policy and legislation; and conducting evidence-based programs to improve the quality of life for those living with arthritis.

More Info: http://www.arthritis.org

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More Rheumatoid Arthritis Blogs

JRA…Journal Of A Radical Arthritis, Chick
Hello everyone! I am 25 years old and was diagnosed with JRA (Juvenile Rheumatoid Arthritis) when I was just 3 years old. I’ve had my battles with this disease over the years, and have decided to create a blog. I want to share my stories and adivce with other RA chicks, or anyone interested, to raise awareness and get insight from others. Feel free to comment/question me about anything. Thanks, and I hope you enjoy!
Read More: http://maybeitsmallory.blogspot.com/

Kids Get Arthritis Too: Living With Juvenile Rheumatoid Arthritis
Ok, so it all started about six years ago from now – when I was 12 – in the last week of May, 2004…We waited for a long time again at the waiting rooms in emergency; as I remember being told at 2:00am in the morning, that I was diagnosed with: Systemic Onset of Juvenile Arthritis. To my family and me, these words baffled us. Immediately after diagnosis, I was put on 50mg of cortezone – including numerous other medications - and spent a week in hospital. It was the worst week of my life, where I was in pain every minute of the day and where no amount of medication could treat the pain. I couldn’t walk and just screamed due to the overwhelming agony. I mean, I wasn’t moving - but my body ached and ached and ached – and I couldn’t understand why.
Read More: http://kidsgetarthritistoo.wordpress.com/

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Simple Explanations

Walking DiagramAs I sit here typing on the computer at my desk, my knees and ankles are barely working. A few days ago, upon arriving at my afternoon physical therapy session, I quietly wondered to myself how I was even walking. I was soon after informed that my right (good) leg was in a worse condition than my left (bad) leg.

Even with the constantly-changing baseline and corresponding confusion of living with rheumatoid arthritis, some things still make sense. Some things still have simple explanations. By overcompensating for my weak leg, my strong leg had become even weaker than the limb it was attempting to help.

Although my mind wants to start racing around (and is sending messages that I should walk around as much as possible in order to stave off the current period of  immobility), I continue to stay calm (and still). I’m not going to panic, as doing so would only make things worse. Hard as it might be, I will continue to use each one of theses episodes to grow more accustomed to not being able to move at certain times.

Just yesterday, as I was rummaging through a box of childhood items, I came across a notebook from 1978. The author: my mother. The topic of each entry: things that I, a five-year-old child, said or asked. (I’ve been told that not only did I talk a lot, but that I asked lots and lots and lots of questions.) One entry in particular, from December of that year, stood out:

“Mom, how is it that one walks?” I tried to explain how our legs have bones and muscles, which are used when a person walks. “But how do we move them?” I explain how our brain sends out messages picked up by the body and we walk. “What is this bone called?” Luckily it’s one I know and tell him it’s called the ankle. From there here goes on to ask about others. “This? This?”  I answer the knee, the shoulder blades, etc. Then he starts in on asking the name of each finger’s bone. “What is each one called?” I tell him I don’t know and will try to get a picture of the bones in the body and show it to him later.

As a little kid, I was obviously very fascinated with figuring out what the musculoskeletal system was and understanding how it worked. (♫ Head bone connected from your neck bone, neck bone connected from your shoulder bone…) The funny thing is, more than three decades later, I am still just as fascinated with the muscoskeletal system.

The question that I am asking now, however, is quite different.

Why can’t I walk?

And while I know the simple explanation (my rheumatoid arthritis is quite active, and the resulting inflammation is preventing my joints from working correctly), it’s still difficult to understand what is really going on.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

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RA Scholarship Program

Reach Beyond RA

The 2011 UCB RA Family Scholarship Program

The UCB RA Scholarship Program recognizes and rewards exceptional students who take control of their rheumatoid arthritis (RA) and do not allow it to control them. In 2011, UCB is awarding 30 scholarships of up to $10,000 to students who are not held back by their RA. If you or a loved one is living beyond the boundaries of RA, we encourage you to apply!

The deadline for application submission is March 18, 2011.

More Info: http://www.reachbeyondra.com/scholarship/Default.aspx

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