Comments on: Being Positive With Rheumatoid Arthritis http://www.rheumatoidarthritisguy.com/2011/05/being-positive-with-rheumatoid-arthritis/ Adventures of a superhero on his journey through chronic pain and debilitating inflammation Sun, 30 Jun 2013 03:49:14 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: Leonie http://www.rheumatoidarthritisguy.com/2011/05/being-positive-with-rheumatoid-arthritis/#comment-7432 Leonie Sun, 07 Oct 2012 17:06:25 +0000 http://www.rheumatoidarthritisguy.com/?p=11920#comment-7432 Dear arthritis guy. Im sorry i do not know yawr name. My name is Leonie and i was diagnosed yesterday with rheumatoid arthritis with a positive rheumatoid factor in my blood. I went for the test a few days ago. I was very afraid of needles but because of the severe pain i made myself go. I felt so hopeless to be diagosed at the age of 19, but after i read this page i feel a spark of hope. Keep the flare lighted. Keep the faith.

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By: Allen kowalski http://www.rheumatoidarthritisguy.com/2011/05/being-positive-with-rheumatoid-arthritis/#comment-5888 Allen kowalski Mon, 16 Jan 2012 03:03:36 +0000 http://www.rheumatoidarthritisguy.com/?p=11920#comment-5888 Thank you all for your post nice to know im not alone out there, as much as it might suck. Im 27 and have been dealing with this now for four years and in that for years have lost my job, house, and family. Everything I worked hard for gone.. taken from me. But Your right I’m still here, thought and still kinda do some times that I’m not but in truth I am. Im not r.a, it will not control me. But the real question is where do I go from here?

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By: Arlene http://www.rheumatoidarthritisguy.com/2011/05/being-positive-with-rheumatoid-arthritis/#comment-3605 Arlene Fri, 03 Jun 2011 20:34:59 +0000 http://www.rheumatoidarthritisguy.com/?p=11920#comment-3605 Positive thinking helped me as well. When I first was diagnosed almost three years ago, I fell in to a deep depresion and needed to take three different types of anti-depressants. I felt stuck. My RA doctor also placed me on Lyrica for my firbromyalgia, but instead of it helping me, it caused me to gain 10 pounds a month for the year and three months I was taking it. This made me feel even more in despair because I felt fat and ugly, and the excessive weight caused too much pressure on my joints an placed me in constant pain. I wanted to crawl in a hole and die. I begged God to take me out of my misery.

After a year and half of this, I knew I needed a change. I started reading up about positive thinking because before my illnesses, I’s always been a positive thinker, but several life traumas after another caused too much stress on me and led me to fibromylagia and then rheumatoid arthritis. I know the constant stress and life tramatic events caused me to become a negative thinker in a deep depression.

After reading about positive thinking, I started practicing it again. One of the first things I did was talk to my RA doctor about getting off y Lyrica, and he agreed. This step alone caused me to start losing weight slowly. Losing weight helped me to start feeling better both physically and emotionally. I felt ready to actually start weaning off one of my three anti-depressants. That process took me 6 months, but I stopped taking it as of October 2010.

Since then, I’ve weaned off my other two anti-depressants. Since August of 2010, I’ve lost a total of 60 pounds, and I feel much better. I still have another 60 pounds to go, but I know I will get there.

How did I start all of this process? It was a commercial for Christus Spohn Cancer Center where the woman with cancer says, “I’m not cancer: I’m a wife and a mother. I’m not cancer: I’m a sister and a best friend. I am not cancer: I’m a fighter…” Although this commercial is about a treatment to help with cancer, I applied it to me and my illnesses of fibromyalgia and RA. I’m not RA or Fibro: I’m a wife and a mother. I’m not RA or fibro: I’m a teacher and a best friend. I am NOT RA or fibro: I am a fighter! I refuse to allow my illnesses to run me. I have a life filled with children, a spouse, friends and family, and I will live it!

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By: M. Allport http://www.rheumatoidarthritisguy.com/2011/05/being-positive-with-rheumatoid-arthritis/#comment-3594 M. Allport Sat, 28 May 2011 01:46:22 +0000 http://www.rheumatoidarthritisguy.com/?p=11920#comment-3594 Dear RA Guy:

I have had Rheumatoid arthritis (severe refractory) for 26 years now. No, I am not that old, I was diagnosed when I was 28. I think treatment and disease management are like climbing up and down a ladder. When there is a lot of pain, you climb up the ladder, take more and stronger medications, and get more rest. When the pain is less, you climb down the ladder, take less medication, and don’t need to rest as often.

I also work out, and because I do I think I am a better noticer of daily joint aches. One day my left knee hurts, the next day my left knee is fine, but my right wrist hurts. Then the next day, my wrist is fine, but then my hip hurts — and the saga continues. I think if you only rest, the aches and pains that travel daily, might go unnoticed.

I also think, as a woman, I get raped daily by this disease. I wanted to have my eyes done because my distance vision is not that great anymore — and I hate glasses. I wear enough armour on the rest of my body (a brace for every joint) I don’t want eye armour also. HOWEVER, I found out that laser surgery is contraindicated for RA. UGH! Are you joking???

However, the good news is, that after such a long period of having the disease, I do have joint damage and my hands look like they’ve been in a war, BUT I still have full range of motion and have avoided surgery to date anyway. The damage slows down quite a bit after the first 5 or so years. Gotta love my rheumatologist.

Everyone needs a hero….Will you be mine?

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By: Cathy http://www.rheumatoidarthritisguy.com/2011/05/being-positive-with-rheumatoid-arthritis/#comment-3578 Cathy Wed, 18 May 2011 00:59:52 +0000 http://www.rheumatoidarthritisguy.com/?p=11920#comment-3578 “Ditto” what Maya said. You are always an inspiration to me.

I hope today is treating you well. Perhaps the sun is shining on your face or you are enjoying a wonderful meal. Whatever it is, I hope something wonderful happened for you today. I am sending the best of thoughts your way RA Guy!

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