Comments on: Bad Flare Day

By: Elaine

Elaine — Thu, 10 Jan 2013 15:17:24 +0000

1/10/13

This if the first time I have been on this site.

I’ve had RA/pmr for 12 months and was beginning to think what a “whoose” I am. It seems as though I only have a part of one day that is livable every week (or more).

I hate the idea that a lot of people have the continual flares, but the other side of the coin is “I’m not such a baby” as I thought I was! The pain over rides all other thoughts. When will it stop!

I start on Orencia next week and am hoping for a miracle.

I hope you all find some relief soon.

By: Gabriela - Living La Vida Normal

Gabriela - Living La Vida Normal — Fri, 24 Jun 2011 19:47:25 +0000

I’m sorry you had a rough day.

I agree that each pain episode can pass and the mind can have selective amnesia about it. That’s why I had two kids. I forgot how painful the first birth was.

Now it’s not birthing kids but it’s surviving flares. Each one is unique and individual and when it passes it’s “forgotten” until the next bad flare that reminds me of a previous one but it has it’s own flavor.

By: Beth

Beth — Tue, 21 Jun 2011 14:30:11 +0000

I am sorry you had a rough day. I hope today is better for you. Pain sucks.

Thanks so much for writing. It’s so nice to have someone who is able to articulate and explain the way I feel a lot of the time. You are such an important part of this community.

By: Cathy

Cathy — Tue, 21 Jun 2011 11:59:10 +0000

I hope today brings some relief. Keep writing and sharing with us because not only are you making yourself feel better, but you always have a way of making others feel better too, despite the pain you are feeling at the time. You are actually kind of magical that way.

By: ca42

ca42 — Tue, 21 Jun 2011 01:21:44 +0000

For the last year I’ve been on Enbrel, I’ve become spoiled with being almost pain free. When the flares come, it’s like a kick in the pants. Out of the blue, and makes me realize how very lucky I am the rest of the time. It was 10 years of almost constant pain and then BAM! Now the pain seems to hurt much worse when it comes, BUT, I’m still grateful it’s not all of the time anymore. Today was a rough day. I could barely get out of bed. The storms here have been relentless lately, and they’ve caused a prolonged flare. Boo! This is the first day I’ve missed work because of a flare in a very long time. Hoping that tomorrow is better. No one I know REALLY TRULY understands what it’s like. I really appreciate blogs like this!