Autoimmune Wellness Center

When you live with a chronic illness like rheumatoid arthritis, going to all of your different health care appointments can easily feel like a full time job. And to make the situation even more complicated, everything is usually in a different place. You have to go one place to see your rheumatologist, another place to get physical therapy, another place to exercise, another place to get your lab work done, another place to see your psychologist, and so on, and so on.

As I commute from one place to another day after day, I often start to daydream. Wouldn’t it be nice to have all of these services in one place? After all, many of the biggest challenges that I encounter on a daily basis are often related to mobility issues.  And, if I’m going to have to spend the rest of my life continually getting the health care that I need, wouldn’t it be nice to do so in an environment that places more emphasis on the “care” part and less emphasis on the “medical” part?

The result would be sort of like an integrated health spa, a wellness center. This concept is not completely new, as it has already been applied to some children’s health centers, cancer treatment centers, assisted living centers, and outpatient services such as dialysis and infusions. Even though the needs of those of us who live with autoimmune disorders cover a wide expanse, wouldn’t it be wonderful to have such a place of our own? A place where a complete support team has already been established, where patients can choose from the wide range of different services that are available.

Background

This is not the first time I have explored this idea. When I was in grad school, my thesis project was actually the design of a museum of prosthetic devices and mobility devices. I wanted to research the concepts of accessible/universal design, body augmentation, and physical movement. (Trust me, I had absolutely no idea how personal these issues would become just a few short years later, when RA entered my life.) I wanted to study the differences between a) buildings that incorporate ramps and other accessible elements into the actual design and primary circulation paths, and b) buildings that met accessibility requirements by merely adding a ramp to the rear entrance or off to the side. I wanted to learn as much as possible about Universal Design.

Design Inspiration

Shadow puppetry really fascinates me. Over the past decade, I have gone from seeing some of the most amazing shows ever that combine both human actors and puppet actors, to working with some digital shadow puppetry myself (as shown below.) I think there is something really exciting about being able to see something that you cannot actually see. You can see the shadow, but you can’t see the puppet…but in a way, you can see the puppet. Some shadow puppets are works of art in and of themselves, such as the ones from the country of Bali. Some shadow puppets are jointed; you can see tiny metal circles that mark the place where two limbs meet. The emphasis on movement–the beauty of these flat shapes coming alive as they float around the screen, is what I think makes me most interested in shadow theater.

RAGuy_ShadowPuppet
Previous experiments with digital shadow puppetry.

What’s Included?

  • Floor 1: The “Waiting Room” Cafe – This is probably one of the aspects I would enjoy the most about such a center. A double-height, well lit space on the ground level which includes a coffee shop and lots of comfortable seating. You can drop by and meet a friend, or you could actually be waiting for an appointment in one of the many offices located in the building. Don’t suffer anymore through long waits in  boring, stuffy waiting rooms. Have a coffee or a glass of fresh-squeezed juice instead, while you read the latest news. How will you know when your doctor is ready for you? Simple. You’d receive a text message a few minutes ahead of time, asking you to please proceed to the appropriate office.
  • Floor 2: Advocacy Center – Meet a social worker, help raise awareness about the need to increase research funds, or join with others to advocate for laws which protect the rights of those living with autoimmune disorders and other disabilities.
  • Floor 3: Arts and Culture – Exhibit and performance spaces for artists and musicians in the autoimmune community, including a library of books, magazines, and other media items related to disability.
  • Floor 4: Therapy and Support – Attend your weekly session with your psychologist, or attend one of the many support groups that is held at this wellness center.
  • Floor 5: Body & Mind Spa – Massage therapy, Reiki therapy, Acupuncture, and so on. If you’re not familiar with some of these “alternative” therapies, stop on by and see what they are all about!
  • Floor 6: Medical Support Services – Do you need to get your blood drawn, have an X-ray or MRI taken, or get your monthly infusion? All of these services, and more, are conveniently located here.
  • Floor 7: Children’s Medical Center – Rheumatologists and other medical professionals dedicated especially to the care and treatment of young superheroes.
  • Floor 8: Adult’s Medical Center – Rheumatologists and other medical professionals dedicated especially to the care and treatment of adult superheroes.
  • Floor 9: The “Gym” – A “traditional” fitness center, but even better. Located on the same floor are physical therapists and occupational therapists. Get some exercise, or do your physical therapy. You might even want to invite your rheumatologist to stop by, so that he/she can see how well you are doing!
  • Floor 10: The “Patio” – All things water. A covered heated swimming pool that can become open-air on particularly nice days. Sauna. Jacuzzi. Hydrotherapy. This deck could even play host to Friday afternoon happy hours (with non-alcoholic options as well, of course.) Just like the chic sky pool bars in Los Angeles…but even more “exclusive”!

The “Ramp”

Along the lines of universal design, I’ve always wondered what it would be like to have a mid-rise building whose focal piece was a vertical circulation system that was comprised completely of accessible ramps. After tossing around ideas in my head for more that a year, I decided that it was time to finally put (digital) pen to paper. And what better place to incorporate this concept than an Autoimmune Wellness Center? There would still be the usual elevators and stairs, but I wanted to put such a ramp front and center.

Because then, the facade becomes all about movement. Movement of a person who is in a physical therapy session and who is actually walking up or down a ramp. Movement of a person who is walking between appointments, and who is motivated to take this “scenic route” instead of the elevator or the stairs. Movement of a medical person who is running down two floors to get a latest copy of a patient’s lab reports. Movement of a visitor who after drinking a coffee in the “waiting room” cafe, decides to walk up to the exhibit space on the third floor. Movement of all types.

All of the ramps are double-width. There will be no more backing up or waiting for someone else to pass, as there’s room for everyone. The landing on the end are more than just landings; they also serve as places to meet and talk. These spaces include wooden benches that can be used if you want to stop and rest, benches that do not interfere with the normal circulation that is taking place. If you want, you can just take a moment to meditate and clear your mind, while looking out over the surrounding city. Or, you can sit in the sun and read a book, as you wait for your next appointment.

RAGuy_Concept_WellnessCenterRamp

The Theater of Movement

With the placement of clear, frosted, and illuminated walls of glass, movement within this space would become even more theatrical, even more beautiful, than it already is. This building is constantly animated by the three-dimensional and two-dimensional visual images of the people who are using the space. Our bodies might be seen as a shadow on the stage, or as a silhouette against the wall. And in those occasional moments when our selves become flat projections, just like the human actors in shadow puppet theater, the boundaries between our bodies and our crutches, canes, and wheelchairs will no longer be visible.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

28 Comments
28 comments
  1. Ann says:

    To the first floor I would add an Insurance consultant to help navigate the ins and outs of the everchanging world of the Medical business.

  2. MamaNym says:

    Excellent concept – I hope this dream is realized, and soon!!!

    I totally had visions of “Star Trek doors” when reading this. ;) And I second the Insurance consult and possibly add Legal services to the mix to aid people in filing for disability and such. Once I get my Level II or Masters, I’d love to do Reiki in a place like this!!!

  3. Laurie says:

    This place would be so cool. They are actually building a medical city south of Orlando that incorporates Nemours Children’s Clinic, the University of Central Florida medical school, a large VA hospital and outpatient center, and the Burnham research institute.

    An Autoimmune center would bring a new aspect to the playing field, as frankly, we are overlooked. I’d love to work in a center like that, and think of all the jobs that could open for different abled people! Count me in!

  4. Michelle says:

    I could use a place like this… right now! Let me know if you’ll need a PR person anytime in the future!

  5. Deb aka murphthesurf says:

    Can we make this a city :-) And we could all move into houses, apartments, duplexes compatible to our needs. When I lived in sunny California, the closest I came to such a concept but not architecturally so was a building that housed all doctors, all labs and xrays, etc. It was wonderful because they all shared the same medical records and I didn’t have to ensure they knew what was going on from one doc to the next…they played on the same team. And what a way to reduce the cost of medical administration…talk about cutting down on paperwork, repeat testing, etc. etc. I love this concept and only wish our politicians or even profit driven centers here in the US would pick up on it and run. Of course you should be the designer. Love this post…thank you for sharing one of your visions.

  6. Dottie says:

    I want to work there!!!!¿ayudo para que sea una realidad?..count me in…I love this idea!!!

  7. Christine says:

    Just Brilliant!!!!! Wish your concept was reality. I would really love to see the ramps be more like automated “people movers” as in airports. Again, just brilliant.

  8. Leslie says:

    Loving the ramp design! Show me the inside! What a great concept! I am soooo tired of running from place to place for all this crap – I would love this place and your design looks great. My brother is an architect, I may have to share!

  9. Nan says:

    RA Guy you continue to amaze with your creative and innovative ideas! If you ever need anyone to market your concepts, call me!

  10. Carla says:

    Love this. I think it’s an amazing idea. I’m very fortunate that all my doctors are basically in one place — professional offices connected to a major hospital. But this would be so much better.

  11. Irwin Lim says:

    I was really glad to see this piece as its our group’s vision to create this. We’re on our way on a much more modest scale but the concept of CONNECTED CARE, co-located & multidisciplinary is alive.

    We combine Rheumatologists, Physiotherapists, Exercise Physiologists, Dietitian, Massage therapy, Nurse Educator, Infusion Centre, some imaging, pathology collection, an exercise gym area with classes designed for patients with chronic illness. Present in a 2-storey house but we’d love the 10-storey building if there are rich benefactors out there!

  12. rheumerhasit says:

    This is SUCH a great idea! I am 1/2 way thru my RN nursing program and this would be a dream place for me, not only as an RN but as a patient dealing with RA. This is and should be the future of medicine/wellness care. Beautiful design!

  13. autoimmunegirl says:

    This is a fantastic idea!
    I totally get the schlepping from dr appt to dr appt and that’s why I have changed all of my doctors to one Major Boston area hospital. Not exactly as nice as your concept, but all of my Doctors have instant access to my medical records. Now if only I could get them to open up an acupuncture and Reiki center in the building….. hmmmmm.

  14. Naomi Creek says:

    This is excellent, so creative and thoughtful :)

    This will sound like “Oh sure you did” – but I have had a “wellness centre” dream idea before, but no where near to the extent and design you have thought about, and mine stayed in my head.

    My centre was going to be for all the people who were not finding treatments that work, not finding a good rheumatologist, not coping and not knowing where to turn. Sort of a solutions centre. I know so many people with RA and other forms of arthritis who are not coping too great. It would be a true wellness centre where they could be pampered a little so they feel special again, but also be educated and receive care and support and leave there in a new frame of mind. They may spend a week there.

    However if everyone could attend an autoimmune wellness centre like yours RA Guy, they would be totally taken care of and not need a Solution! My idea sounds quite lame now! LOL.

    Naomi :)

  15. Trish says:

    What a lovely fantasy! I hope I live long enough to see this come to fruition! Lovely, simply lovely!
    Trish ♥

  16. Danielle Tipton says:

    Why, oh why, is this not already in existence??? This is perfect!

    We have many appointments in many places. It makes things very difficult.

    To Laurie who discussed Nemours in Orlando- I have heard that a pediatric rheumy from CHOP is coming to you :) I can’t for the life of me remember who it as right now, but she spoke at the 2010 JA Conference. She hosted the genetics seminar. She was brilliant, sweet and very unintimidating.

  17. Cynthia says:

    I literally was just laying here wishing there was a wellness center of some sort that I could actually check into just so I can be evaluated 24/7 and not run here and there trying to explain things that aren’t showing up that day. I do a Google search for the heck of it AND YOUR VISION is #1 on the search results!!! PHENOMENAL ! Make it Happen! So many need this . Thank you

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