Comments on: Do You Ever Feel Like A Burden?

By: Tracy

Tracy — Sat, 03 Dec 2011 02:28:31 +0000

Thank you for being so eloquent and saying what is in my heart!

By: SKRDad

SKRDad — Sat, 17 Sep 2011 13:27:44 +0000

When I talk to my wife about how I worry about being a burden, she always asks me to turn it around. If the sick one were her, would I not stand by her and do my best for her? Would I think her a burden? Because fair is fair. She knows that she is the light of my life and I would do anything for her, how can I think it would be any different for her?… I won’t lie, it isn’t always easy. But I believe her.

The hardest thing for me is that when I say “tomorrow, I will ___” then I am never sure that I will be up for it tomorrow. I hate it. I used to be the most dependable guy you ever met. If you needed my help, you had it. If you were counting on me, I was there. You could set your watch by me… That has of course changed… A bit. For the most part I am still me and I do my best to be that guy…

By: Laura

Laura — Sat, 30 Jul 2011 16:07:58 +0000

I used to feel a burden, in that transition from being a child with Still’s Disease to an adult with Still’s Disease there were many things I found hard to deal with. But with those years well behind me, I have realised that I am who I am (and who I am needs no excuses lalala). Luckily I have a lot of support from friends and family, anyone who wasn’t supportive has been lost along the way…but I agree, usually it is other people’s bad attitudes that trigger the sense of being a burden and if they do, maybe it’s time you show them the door.

Great post as always,
L

By: Brandy de Cusack

Brandy de Cusack — Sat, 30 Jul 2011 12:32:27 +0000

I often feel like a burden but mostly I feel that way because of other people’s attitudes.

Take work, for example. Because I challenged an unfair demand which will put my health at risk I’m now in the position of having to take legal advice to protect my job. I’m also having to be careful what I say in emails and make sure my work is of an extremely high standard because I know the second I’m a financial burden they’ll get me out on a capability procedure. It’s vindictive and discriminatory but I’ve a hell of a fight on my hands.

And I work for a charity.

By: Dawn

Dawn — Sat, 30 Jul 2011 10:50:21 +0000

Yes, I certainly DO feel like a burden ALL the time. It gets me upset, I cry a lot over it, etc. I have Rheumatoid Arthritis, Fibromyalgia, Cerebral Vascular Disease (which has the joy of SEVERE hospitalizing Basilar migraines because of all the lesions on my brain from the RA), Prothrombin Mutation Heterozygote (hyper blood clotting disorder for which I have to take Coumadin every day & test once a week) and 2 days ago I was diagnosed with Emphysema and I have NEVER smoked a day in my life. I had mobility problems already but the CVD mimics symptoms of MS (so, I walk like I am drunk a lot [balance probs], drag my left foot [which leads to my falling-about twice a week & I’ve already broken my right hip in 2 places], incontinence problems, tremors, severe vision probs (mostly double vision), etc…. Now with the emphysema, I have a nebulizer I have to use all the time plus 2 different inhalers. We’ve been having to take my wheelchair everywhere we go cuz I just cannot walk for very long. It just sickens me. I never thought at 45 I would be staring death in the face (but I never thought I would have had RA for 24 years by now either). Well, I have been proactive and already planned my cremation details, picked our urns, and planned my celebration of life partay!!! I’m going out with a bang!!