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RA Guy Community News 1 Comment

Perpetual Exclusivity RA Guy on January 13th, 2011 A year and a half ago, during the great “health care reform” debate, I was startled by a little-discussed provision in the proposed legislation that was going to grant an extended period of exclusivity (i.e. protection from generic competition) to biotech firms. According to what I was reading in the press, the …

Deb

Deb

RA Guy Real Profiles of RA 8 Comments

Real Profiles of Rheumatoid Arthritis Photos © Deb Name? Deb aka murphthesurf Age? 54 Location? Wilmington, North Carolina, United States How long have you lived with RA? 13 years. What advice would you give to someone who has just been diagnosed with RA? First, find the best doctor you can! Find a doctor that will not judge how you feel …

Warrior For JRA

RA Guy Community News 6 Comments

Every 6 weeks Jordan, 9, has to have Remicade infusions for juvenile *autoimmune* arthritis & uveitis. She was diagnosed a month before she turned 3. ***There is no cure for these diseases.*** Remission is possible but highly unlikely for J. She has been on Enbrel & Humira but failed both. Current meds include Remicade, methotrexate injections, leucovorin, zofran & naproxen. …

What’s Right With Your Life?

RA Guy Adventures of RA Guy 12 Comments

Earlier today, I started my day by reading the following words on the Facebook page for Toni Bernhard’s book “How To Be Sick”: I awoke to an email from a woman who finds comfort in the same words I do from Zen teacher Charlotte Joko Beck in Chapter 3 of the book: “Our life is always all right. There’s nothing …