X Days Since…

RA Guy Adventures of RA Guy 7 Comments

Flare Sign 15
From November of last year, until around the beginning of this current month, Rheumatoid Arthritis Guy has basically been in one big flare. The most challenging periods, those times when the extreme pain and stiffness could be measured in weeks and not in months, still stand out clearly in my mind: January, March, and July.

While each and every day during these past ten months was not necessarily marked by a flare, ‘good’ days such as these were definitely the exception. Having one day every week or so, during which I could sit back and catch my breath from this non-stop marathon, became much more of the pattern.

These periods of low-level pain and disease activity were often of such short duration, that I could often feel the next flare coming on just as soon as the last flare was tapering down. It felt like I was constantly trapped between two sine curves. (Okay, the mathematician geek in me is coming out!)

At times, I really did feel like a marathon runner (although ‘hobbler’ or ‘limper’ might be a more appropriate description.) As long as I tried to stay one step ahead of the worst of my pain and disability, I felt okay. Problem was that I had to run and run and run and run until my illness gave me a break. (10K marathons, step aside…10 Day marathons are where it’s at!) I never knew either when they would come, or how long they would last. But I did learn one important lesson: enjoy these breaks as much as possible, no matter how short or long they might last.

(And by ‘enjoy’, I don’t mean go out and overdo everything. I’ve definitely learned this lesson on more than one occasion.)

During this almost past year, there were also the occasional–and even more rare–two ‘good’ days in a row. I remember those mornings well, waking up practically prepared to jump right back into a flare, and being pleasantly surprised when this did not happen. But inevitably my flare would return…it had taken its weekend off (which never corresponded to my actual weekend, of course) and my RA was more than ready to get back to work.

And while I continued to focus as much as possible on improving my levels of acceptance and coping skills, what I dreamed about, what I yearned for, was that perfect trifecta: not the first- second- and third-place of horse races, or the Triple Crown, but those three wonderful, almost magical, days in a row where my rheumatoid arthritis symptoms were at the bottom of the range. I wasn’t asking for too much, I often told myself…just three days!

Alas, month after month passed without such a thing happening…but I never seemed to lose hope, no matter how bad things actually got.

Which makes the past two weeks even more special than they have already been. You see, it’s been fifteen days since my last major flare…and in my head, I find myself keeping count, like a “this company has not had an accident in X number of days’ sign that often hangs on the side of a factory wall.

But this time, I’m not keeping count because I’m worried about how much longer this break might or might not last.

I’m keeping count to remind myself that once again, no matter how much is seems like things will never get better, they eventually do.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

Comments 7

  1. Johanna

    I agree – it’s been about two weeks for me as well – I overanalyze everything I’ve done to get here (food,meds,exercise) to make sure I keep doing it exactly. I’ve had RA for 18 years and it’s still always strange when you encounter periods where you CAN get out of bed in the morning right away and walk fairly easily, and you think “huh, I’m not in excruciating pain, I can pick up the milk (and open it 😛 ) I wonder why?”… I’ll take a little bit of nagging pain and fatigue over the “flare” mode any day. A toast to staying in the semi-normal zone… well, RA related anyway 😉 I hope we can stay here a while.

  2. Thrive With RA™

    Congrats RA Guy for such a long stretch of optimal mobility and decreased pain for you. Sending you positive thoughts this stretch will be an endless one. I too have a lot to be thankful for; I was able to bend my right pinky finger for the first time yesterday since swan neck deformity showed up on the scene. Pretty exciting times! 🙂

  3. kim

    YEAY for you RA Guy- hope the 2 weeks turn into 2 months, and then 2 years, and then 2 decades- swollen fingers crossed for you, and for all of us!

  4. Deb aka murphthesurf

    Doing the painless dance right now! OK…I am doing it in my head but it is your victory dance non the less 🙂 I wish we all could have pain free lives and I know you will enjoy the days/weeks and let us hope months of somewhat being normal. Enjoy! You truly deserve this stretch and much more.

  5. Carla

    I am so happy for you and the relief you’ve enjoyed. (If you were in AA, they would give you a “chip”.) Here’s hoping you have continued relief.

  6. Cathy

    “I’m keeping count to remind myself that once again, no matter how much is seems like things will never get better, they eventually do.” This is SO true and I am SO happy that you are experiencing the “better” part of RA right now. Keeping my fingers crossed that the trend continues. Enjoy the good days to the fullest and keep the memories of these good days nestled in your heart and mind to bring out and focus on if a rainy day should return. Sending you a happy smile today!

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