Comments on: AdverseEvents: Why Big Pharma Is Scared Of This Startup http://www.rheumatoidarthritisguy.com/2011/10/adverseevents-why-big-pharma-is-scared-of-this-startup/ Thu, 03 Sep 2015 17:55:04 +0000 hourly 1 http://wordpress.org/?v=4.3 By: Scarletkate http://www.rheumatoidarthritisguy.com/2011/10/adverseevents-why-big-pharma-is-scared-of-this-startup/#comment-5013 Mon, 17 Oct 2011 22:44:12 +0000 http://www.rheumatoidarthritisguy.com/?p=14926#comment-5013 Thank you so very much. I am starting on Cimzia a week from today and I was grateful to be able to go to the website and check it out. I was feeling pretty apprehensive about starting it, but it seems to be among the safest of the biologics listed.
Thanks again :)

]]> By: Murfomurf http://www.rheumatoidarthritisguy.com/2011/10/adverseevents-why-big-pharma-is-scared-of-this-startup/#comment-4921 Mon, 10 Oct 2011 00:58:03 +0000 http://www.rheumatoidarthritisguy.com/?p=14926#comment-4921 Great- I’m so glad the AdverseEvents has started up. I think someone should start one in Australia (or a branch of the California one). It’s wellnigh impossible to get true frequencies of drug-related adverse events in Oz- I’ve been trying to do some research for years. It first started when I explored some hospital admissions data I was given for another purpose (BADD ME) because I had experienced a really wet chest while on Vioxx for tennis elbow. As I don’t ever get a bad chest except with a cold etc, I decided to see if the symptoms had been reported more on hospital admissions since the introduction of Vioxx to the local government pharmaceutical schedule. I looked up any ICD codes I could think of where excess fluid on the chest occurred NOT due to a respiratory admission. Lots of “heart failure”- associated cases came up. Sure enough there was steady rise in these cases parallel with the number of scripts for Vioxx. I’ve tried to get figures from the TGA here, but they send all their data to the international db in Helsinki & force yoou to pay for access (bummer for Masters’ students like me). The local hospital incidents db is quite good for the last few years, but the drug side effects are only selectively recorded according to nurse observations. I’ve been held up for more than 12 months trying to get access to state health data I have been approved to view & use for my dissertation (nominally a 6mth program) & have become quite depressed- which could easily be cured by a local AdverseEvents branch!

]]> By: Deb aka murphthesurf http://www.rheumatoidarthritisguy.com/2011/10/adverseevents-why-big-pharma-is-scared-of-this-startup/#comment-4920 Sun, 09 Oct 2011 23:59:49 +0000 http://www.rheumatoidarthritisguy.com/?p=14926#comment-4920 What a great resource for us! What I didn’t see was the total number of patients that have used a medication. 40K of adverse reports for a medication may appear high but one needs the total number of patients that have used a medication to get a percentage. What I found fascinating was the deaths. That was scary indeed!

]]> By: Frank http://www.rheumatoidarthritisguy.com/2011/10/adverseevents-why-big-pharma-is-scared-of-this-startup/#comment-4919 Sun, 09 Oct 2011 19:57:44 +0000 http://www.rheumatoidarthritisguy.com/?p=14926#comment-4919 I must be a lucky guy, I have been using Enbrel for nearly two years and have had no adverse reactions. I am so happy not to be in the kind of pain I had before it. When I was using Celebrex I broke out with small red spots just around my chest and back.

]]> By: RA Guy http://www.rheumatoidarthritisguy.com/2011/10/adverseevents-why-big-pharma-is-scared-of-this-startup/#comment-4918 Sun, 09 Oct 2011 19:33:48 +0000 http://www.rheumatoidarthritisguy.com/?p=14926#comment-4918 The #1 condition with highest number of adverse drug events reported: Rheumatoid Arthritis.

The #1 drug with highest number of adverse drug events reported:
Enbrel.

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