Real Profiles of Rheumatoid ArthritisPhotos © Kevin Hewitt
Clifton Park, New York, United States.
How long have you lived with RA?
Officially diagnosed in 2008.
What advice would you give to someone who has just been diagnosed with RA?
Stay positive. It’s a lot to take in at the beginning. Arm yourself with information, not doubt. Find a good support system, believe me, it helps!
Do you use any mobility aids?
How has living with RA helped to improve your life?
It has made me appreciate more of the little things in life. It may sound a little ironic, but it taught me to slow down and enjoy everything.
Do you have any visible signs of RA?
Just swelling at the moment.
Can you please describe some of your favorite coping strategies for living with RA?
The best thing for me is to laugh. My kids always put a smile on my face and make me laugh when I need it the most.
Can you please describe your current medical (traditional and alternative) treatments?
400mg Plaqunil daily, 200mg Celebrex daily, Rituxan infusions every 6 months, vitamin d 3000 I.U. daily.
Is there anything else about yourself that you would like to share?
I still work a full time job. It’s definitely a challenge, but with today’s economy and the bills relating to my RA, I have no choice to push myself until my Rheumy says I can’t do it anymore. My only advice I can give is to stay positive. Learn what you can and can’t do. Somedays you feel you can do everything, so do some. Some days you feel like you can’t do anything, so don’t. Listen to your body most of all.
“SuperBetter is a game that helps you recover from any illness or injury — or achieve any health goal — by increasing your personal resilience. Resilience means staying curious, optimistic and motivated even in the face of the toughest challenges.
SuperBetter creates a private, online space where your closest friends and family become allies in your adventure toward health and wellness. The game is played in two parts: First, a set of 7 guided missions that create the foundation for your journey. Then, an open-ended, self-guided adventure that you play with your family and friends in the real world—not a virtual environment—in an effort to achieve your health goals.
We believe that instead of being diminished by obstacles in our way, we can grow stronger—much stronger. In fact, science tells us that dramatic, positive changes can occur in our lives as a direct result of facing an extreme challenge—whether it be coping with a serious illness, daring to quit smoking, or dealing with depression. We call this getting SuperBetter!”
Read More: https://www.superbetter.us/
This past weekend, I was quite excited to learn about SuperBetter while listening to one of my regular podcasts. Secret identities, missions, secret headquarters, and epic wins–all in the name of a game that creates point systems and incentives for reaching health goals? This sounds like just the thing that Rheumatoid Arthritis Guy would be interested in!
SuperBetter is currently in preview mode, but I would recommend that you request an invite today via this link: https://www.superbetter.us/users/register_beta. Once a few of us are granted access, we can take it for a test drive and see how it works.
Read more about the original concept of SuperBetter – or how to turn recovery into a multi-player experience.
“When people fail to notice accessibility issues, when they fail to notice that their actions in a particular moment create an accessibility issue, when they fail to make accommodations because they have no proof that something’s wrong with you, when they say nothing looks wrong with you, when they make fun of you because they see lazy instead of disabled, when they mock you because they see you as quirky or clumsy or stiff, when they conflate physical and learning and mental disability, when they think learning or mental disability is a failing or a choice, when they privilege one disability over another, when they enthuse about euthanasia for people on ventilators, when they believe reasonable accommodation is an unfair advantage, they make you and your disability invisible, they render you an invisible person. They deny needs that can be met, they deny your humanity, they resist understanding. They in fact don’t want to understand.”
A few days ago, I found myself standing directly in front of another major flare. I knew exactly what was in store for me; there was no way to avoid what was going to happen during the next hour or so.
A funny thing happened though. Instead of getting panicked, I decided to get prepared.
I told myself to latch onto something that would help pull me through the extreme pain that I was soon going to experience; something that I could focus on in order stay oriented while being thrust into the confusion that often accompanies major flares. On this particular morning, that something happened to be the thought of my afternoon tutoring sessions with my students.
And right at that moment, I laughed to myself. You see, my mental thoughts had transformed into visual images of alligators, trap doors, scorpions, and ladders. I could get through this, as long as I concentrated. Grabbing onto that rope that was now hanging in front of me, and swinging across some of the upcoming rough patches, would no doubt make things just a little bit easier.
I was actually living inside a game of ‘Pitfall’, one of my absolutely most favorite video games from the early ’80s. (Let’s hear is for pixelated graphics!) And in a weird sort of way, it was actually sort of fun.
Most importantly, it worked. I got through my flare, more easily that I ever had before.
Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
You might also enjoy Flare! www.rheumatoidarthritisguy.com/2009/06/b-i-n-g-o/
Working to ease the pain of arthritis through humor, sarcasm, and community, and put a face to this debilitating disease. At 26 years old I’ve raised a child. His name is Arthur, Arthr-i-tis. He’s 19 years old, a pain in my ass, and refuses to leave. He’s kind of a cocky SOB, but I think he gets that from his mom. He’s so needy that he keeps me from working currently. I keep on laughing cause that truly is the best medicine.
Read More: http://hurtblogger.tumblr.com/
Finding My Way
A little about me: My name is Christina and I am a young, 26 year old, single mother, diagnosed with Rheumatoid Arthritis. I was diagnosed with Rheumatoid Arthritis at the age of 15 years old but started showing symptoms at the age of 9 years old. I have been living with RA since the 3rd grade (about 17 years) and this is a life long journey for me.
Read More: http://mschrissy85.blog.com/
Day By Day With RA
Approximately one year ago I was noticing pain in my hands, wrist, shoulders, and toes. They kept going numb even when I was doing something. It hurt to hold my baby after 5 minutes, I was extremely tired all the time. But what Mom does not feel tired? I just tried to ignore it. Eventually the pain got the better of me, it became distracting and my exhaustion was limiting everything I did. I went to the doctor. I explained my symptoms, they ran some tests and a few days later…I was diagnosed with Rheumatoid Arthritis. I am only 34 years old.
Read More: http://daybydaywithra.blogspot.com/
Scleroderma, Sarcoidosis And Box Wine
I live with Scleroderma and Sarcoidosis. Since 1994 they have been effecting my simple everyday experiences. I am working on just accepting it by making the right choices to stay healthy. I’m blogging because I want to help spread awareness. I could also have an undiagnosed case of narcism. Either way, sharing seems to help me feel better. Thank you for reading.
Read More: http://sclerodermasarcoidosisandboxwine.blogspot.com/
Views From The Wheelchair
Views and advice about living with a disability. Everyday experiences and opinions showing how things affect the disabled. I’m hoping this blog supports others and there families with disabilities.
Read More: http://disabledramblings.blogspot.com/
More resources and blogs: www.rheumatoidarthritisguy.com/links/
- Accepting Chronic Pain: Is it Necessary?March 27, 2015 - 9:09 am
- Harvard Gazette: A Journey Into IllnessJanuary 12, 2015 - 4:19 pm
- Health.com: 11 Famous People With RAOctober 1, 2014 - 9:50 am
- Arthritis Broadcast Network: Spotlight On Arthritis SuperheroesSeptember 10, 2014 - 7:34 pm
- The New York Times: Actress, Artist, Sometimes Both At OnceMay 20, 2014 - 10:29 am