Respecting Limits

RA Guy Adventures of RA Guy 12 Comments

I have about a dozen memories from a very young age that I’m able to recall with such clarity, that it almost feels like these events took place just a few minutes ago. One of them was having my first grade teacher read a story to the class, as she held up the book over her shoulder for everyone to see. This was back in the 1970’s, before commercial cartoon characters had taken over many children’s books. Instead, we were treated to classical myths and timeless storylines, set against a backdrop of beautiful visual images which were printed on museum-quality paper; these books were indeed fine works of art.

And in this instance, I still remember the brightly colored feathers, the big burning sun, and the graceful patterns of motion swooping against the blue sky. By now some of you may already recognize the story that was being told to us; we were reading about the legend of Icarus.

Icarus: Son of Daedalus who dared to fly too near the sun on wings of feathers and wax. Daedalus had been imprisoned by King Minos of Crete within the walls of his own invention, the Labyrinth. But the great craftsman’s genius would not suffer captivity. He made two pairs of wings by adhering feathers to a wooden frame with wax. Giving one pair to his son, he cautioned him that flying too near the sun would cause the wax to melt. But Icarus became ecstatic with the ability to fly and forgot his father’s warning. The feathers came loose and Icarus plunged to his death in the sea. —Encyclopedia of Greek Mythology

I find it telling that this is one of my few childhood memories that still stands out clearly in my mind. On many occasions over the past few years–after I once again pushed myself too hard against my illness, only to fall back even further into the pain and sadness–I have been transported back to that moment when I was a young kid sitting on the classroom floor, mesmerized by the images that were being shown and the words that were being spoken. I was struck by the irony: when I was only a few years old, I completely understood the moral of the story; as a grown adult, I refused to accept what actually made so much sense.

I think that my reaction of “I’m not going to let my chronic illness change me one bit,” in the year or two after the shock of my initial diagnosis wore off, was a pretty normal reaction–at the time. I’ve since learned a new reality, though. My rheumatoid arthritis *is* going to change me, in more ways that I could have ever imagined. This is beyond my control, and by not accepting this I’m definitely not making things any easier for myself.

It’s up to me, however, to decide if my chronic illness will change me for the better, or for the worse. Certain changes will always beyond my control, but how I react to them is something that will always remain within my control. Realizing that the answer to this question–change for the better or change for the worse?–is indeed within my control only serves to remind me how much I, and not my illness, am in charge of my life.

Over the past few months, I’ve started to experience the beauty (and improved health!) that results from not bumping up against my limits. I intentionally break down any size project into smaller parts, to be accomplished over a matter of days or sometimes even weeks. I use periods when my disease activity is lowered not to go out and do everything that I had previously been unable to do, but instead to just relax, and rest even more. At any one moment it may seem that I’m doing much less than I once used to be able to do, but as a whole it’s clearly obvious that I’m actually doing more than ever before.

And this lesson, which I first heard decades ago when I was a bright eyed kid sitting in front of my first grade teacher, is finally being driven home to me today. The more I respect certain limits, the longer I’ll be able to fly. And the longer I’m able to fly without crashing, the happier and healthier I’ll be.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

Comments 12

  1. Yael

    This is so true and your description is perfect …. I often have to remind myself I still have wings they are just different and to embrace them and flourish… We can not control our diagnosis but we can control how we approach it each day …. Some days I just have to focus on getting through that day !

  2. Tracy Richards

    That was a great read, loved the way you wrote about your childhood memory and how it has had an impact on your present life, good to hear you have slowed down too..

  3. Lisa

    Thank you RA Guy. I needed this today. My hubby had heart bypass surgery last week and the stress caused me to badly flare. I realized I had my limitations and could not care for him as I needed to. I bit the bullet, called my rheumy at the first sign of the flare and got some steroids. Feeling much better but taking it slowly, but getting done what I need to. I’m not giving in to RA. You’re so right. I can control how I look at the disease and not letting it define who I am. Thanks for all of your tips!

  4. Gillian Pidler

    That last paragraph made me cry! That is such a beautiful way to think of it RA Guy. Pacing has to become our way of life, I learned that the hard way as I think most of us with RA tend to do. That was a beautifully written article, thank you for sharing your memory with us.
    Lisa I wish your hubby a very swift recovery x

  5. Deb aka abcsofra

    Such a beautiful illustration of how we can continue to fly. Thank you for sharing this. Even after years with ra I forget to pace myself and wind up paying dearly in the days after. Now I can invision your story from childhood to remind me to pace myself.

  6. Cammie

    A beautiful illustration. My mother always used to say that the hard situations that we face in life can either make us better or make us bitter. We must decide which it will be. RA has certainly changed my life in so many ways. I may be down on many occasions but I refuse to let RA make me bitter. I am trying to let it be an opportunity to help me be a better person. I try not to let RA define who I am as a person. Even though the road to better isn’t easy I keep trying everyday.

    Thanks also, RA Guy for the reminder to pace ourselves. This has been a hard thing for me to learn. Haven’t mastered it, but I am working at it. Thanks for all you do to help those living with RA.

  7. NatureChick

    Hi, I have reactive arthritis, not RA, but it’s similar in a lot of ways and I take a lot of the same meds. I have to focus a lot on not overdoing it. It can save me days of pain. It’s the hardest thing to do, after being very active all my life. Thanks for your site, I really enjoy it.

  8. Christine

    I have had R.A.for 10 yrs and take Meth. and steroids, still have days when i feel sorry for myself.I have learnt to pace myself as i help to care for my 3 yr. grandchild so that my daughter can work which sometimes i find difficult, but days in between i rest to conserve my energy. I have learnt to do other things that arent too physical like researching my family tree, knitting or craft work{when my hands are working}I have always been physically active but now use my rest periods to do things that i once used to put off, turning a negative to a positive!!

  9. sharon

    That’s a brilliant story! Think in perhaps related to icarus! Fell out a tree last weekend, cracked a rib! Often think in superwoman, rather than R A girl lol.

  10. Derek Durham

    Not an easy lesson to learn, I think most of us overdo it at some time as the guilt factor kicks in knowing you’re loading your loved one with more while you’re ‘relaxing’.

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