Real Profiles of Rheumatoid ArthritisPhotos © Jody
Cascais, Portugal (Europe) Born in New York City.
How long have you lived with RA?
Since 1995 but only diagnosed as having Psoriatic Arthritis in 1998…..I was inspired to profile myself after ready about Kate who also has PA.
What advice would you give to someone who has just been diagnosed with RA?
Read, inform yourself like crazy and never stop, find a good Rheumy AND a good natural doctor who can compliment the medical doctor. Talk to other people with inflammatory autoimmune disease…join groups with people with similar problems…in person or on the net. Early diagnosis and treatment can stop joint destruction…I waited too long to get proper medicine trying to treat it naturally when I should have been on the disease modifying drugs to stop the destruction…so unfortunately I have a knee replacement and a fusion of some joints in my foot and a very crunchy elbow and my other knee is a bit dodgy and various bits and my back are sensitive if I over do it…and until I was stabilized by my Rheumy I was in intense pain all the time and could hardly walk and would wake up in the morning with fingers that were stuck and very painful.
Do you use any mobility aids?
Hardly at all now…used to have to use crutches, wheel chair, splints for my wrists.
How has living with RA helped to improve your life?
I am more humble, less arrogant, more patient, more accepting of me and others…and I can relate better to my patients…I am a doctor myself…I used to be a real sports guy…always doing sport when I could, very fit…I had to change that image of myself…I miss the intense physical activity and still live vicariously through my friends tennis and golf exploits…
Do you have any visible signs of RA?
No…not to the average person. In fact even many of my close friends find it hard to believe that I have had such pain and that I have a serious disease and I am on strong medicine…I try to be graceful with my problems…and also its not such good advertising if the doctor has bone and joint problems himself!! When my friends find out they say I have courage and show me respect and admiration for overcoming such difficulties…I like that…its satisfying to know that people respect me and know that I have overcome immense hurdles.
Can you please describe some of your favorite coping strategies for living with RA?
Talking, sharing with a good friend about my limitations, hugging somebody, good sex with my wife. Listening to music, helping others with similar problems…I used to see a psychologist and that was helpful. She helped to accept myself and see the disease as a gift. She also gave me permission to feel sorry for myself sometimes!
Can you please describe your current medical (traditional and alternative) treatments?
Methotrexate once a week, Meticoten 5mg daily, Paracetamol 500mg twice daily, Ibuprofene 400mg once daily…paracetamol with codeine from time to time. I try to have a regular massage, acupuncture, I try to have a sauna and a swim twice a week (but I have not had time for this lately.)
Is there anything else about yourself that you would like to share?
Yes…I have 7 kids from 31 to 6…one boy the rest are girls…4 still live at home. The teens drive me crazy! I love kids but sometimes need a break from them. Because I have so many mouths to feed I had to work full time through all the pain and discomfort. I was and am the main money earner so just had to do it. I am fortunate that I can still regularly work 8-10 hour day…I love my work, and live only 5 minutes from the office. My team at the clinic is very supportive and enables me to do my best. Good healthy food and regular sleep are really important to staying in remission.