Comments on: Cleanup In Aisle 7, Please

By: Linda

Linda — Thu, 06 Dec 2012 03:26:56 +0000

Ps I have laid on floors that I shouldn’t have

By: Linda

Linda — Thu, 06 Dec 2012 03:25:57 +0000

Oh my this happened to me yesterday in Kmart with my seven year old! It was very hard to explain to her we had to go now! It Was so frightening as not only was I worried about getting me home safely but more importantly her. i am fairly new to ra and need to give my husband the heads up now I know it really does happen and I’m not just being soft

By: Raini

Raini — Sat, 25 Feb 2012 06:51:08 +0000

I’m sorry you had such a terrible experience…especially in public. We can handle these things when we are home, but in public makes them so much harder, as you said.
When I was still working, before my dx, but after my symptoms started, most days I would have this period of time where my mind would be ‘gone’! I’d be sitting at my desk, and it was almost like a fugue. I would “come to” after a period of time and not know how long I was gone or what had happened. It was so bizarre!! I had no idea what was going on with me, of course, and thought I was losing my mind! For an hour or two after I “came back”, my body felt so heavy, it was an effort to turn my head! Man I hated that. I’m so glad I don’t have to work anymore. I don’t know how those of us do it. God bless, all <3

By: Beth

Beth — Fri, 24 Feb 2012 22:12:57 +0000

I read your post with such sympathy for you and such surprise as well because this happens to me and nobody seems to believe it, not even my rheumatologist. It comes on so fast and there’s not a thing you can do but stop in your tracks. I don’t have a partner to call so usually end up leaning on my cart until i can shuffle to the restroom and collapse in the stall in private. Eventually i can make my way back to the car and get home, but it’s so frightening and frustrating. I’ve never gotten a good explanation why this happens so out of the blue an without any real warning. Does anyone know? And people wonder why i don’t like going places anymore!
Take care everyone,
Beth

By: Judith Clark

Judith Clark — Fri, 24 Feb 2012 17:52:13 +0000

RA Guy, sooo sorry this happened to you. It’s just not fair at all. There ought to be a warning light that comes on 15 or 20 minutes in advance that flashes “IMMENENT SYSTEMS FAILURE,” but there isn’t. I’ve had a diagnosis of fibromyalgia since 2009. I’m not sure that’s all that’s wrong with me. The sudden attacks of bone-crushing fatigue that occur without warning just started in the last 3 months. OMG! How does a person deal with this? Before, I was good or bad, Now, I’m generally not so good, but never know when I’m gonna be FLATTENED! My hubby of 41 years is a Vietnam Vet with lots of problems of his own, disabled, and now has some kind of auto-immune disease. I was a social worker and college professor before my illness. So we are some pair! He can go out some. I am now scared to go out at all due to the sudden crashes.