Comments on: Walk With Me Daddy! A Children’s Book Project About RA

By: Laura Burdey

Laura Burdey — Thu, 01 Aug 2013 02:09:31 +0000

I think this is a great way to help children understand the disease and help out people with it all at the same time. I myself got diagnosed with RA three weeks ago, so far the Doctor said its only done damage to my neck and that my back looks ok, but that I have had to have had this disease a while for it to do that already, my last doctor didn’t believe me. I’m praying they put me on something that helps for the last two months I have been in constant pain everyday, I’m finding it hard to get up and go to work or even eat at times, and at my job I am required to work 50 hrs a week so I don’t know what I am going to do. Definitely think I should cut my hours back to part time, but that would mean giving up the managment position I am in. I am trying to explain it to my little girl but I don’t know how to put it… any suggestions?

By: Shan

Shan — Thu, 16 Feb 2012 12:59:19 +0000

This brought tears to my eyes. There are so many emotions in this little clip for me. I think children who have a parent with RA are much empathetic to other people in pain or who are sad. They have an appreciation for how hard life can be – with that said, I’m riddled with guilt that my daughters (4 and 1) have to join me in such hardship. Childhood is meant to be fun, free and spirited. Sometimes I’m just too sore, too tired, too short of patience – each day these thoughts cross my mind. Shan xo
http://www.lifeandtimeswithart.wordpress.com

By: Deb aka abcsofra

Deb aka abcsofra — Tue, 14 Feb 2012 09:42:58 +0000

A wonderful gift for any family living with ra and children. The more that is said, written or televised about ra, the more the word gets out there and hopefully the research dollars used for a cure. More then anything, I would love to see a cure for ra in my lifetime.

By: George Siebelink

George Siebelink — Tue, 14 Feb 2012 00:41:35 +0000

Good story, I myself am finding it hard at the moment, I’m 34 and got told a month ago I have RA, I used to do so much with my 8 year old daughter and now I’m to sore or tied to do anything. As a family we are slowly coming to terms with it.

By: Rebecca Ridgick

Rebecca Ridgick — Mon, 13 Feb 2012 23:04:53 +0000

Good story & article, thanks for sharing!!