Comments on: RheumaBlog: Working On It

By: Dee

Dee — Sun, 22 Apr 2012 13:47:36 +0000

Something I started doing last summer, that seems to take the edge off of mornings: set my alarm for [at least] 2 hours before I HAVE TO be up. Grab the snack (usually a Planter’s Nut-trition pack) on my night stand & take my meloxicam, tramadol and flexeril (I have an undifferentiated connective tissue component that causes intercostal muscle spasms; hip-hip-horray for extra articular symptoms). Go back to sleep, wake up w/ three snoozes… To allow me time to stretch and drift in and out … It still isn’t easy, but I find it helpful. I then take the other handful of DMARDs, vitamins, supplements, etc with breakfast!

By: Jean

Jean — Sun, 15 Apr 2012 23:37:35 +0000

I too understand what you are going thru. I wish mine was only pain but 6 months ago, whatever auto-immune disorder I have, decided to attack my lungs too. Like waking up with pain everyday and just wishing for a little vacation wasn’t enough. I also found that while the medications took a little of the edge off the pain never left. I had weaned off of all my meds since I decided that having a brain might be more fun than being a druggged out veggie. I have found that my pain is about the same as it was on all my meds. It just that I now can function even on a somewhat limited basis. Make your pain your friend, is all I can suggest. It won’t go away, it will wax and wan, but will remain constant. Above all, don’t let it win.
Now that I am unable to breathe, any chemical or flower sets me off, I now wish all I had was pain. I guess we have to remember that we are dealt the hand we have been dealt and make the most of our lives. Keep positive. Also I enjoy your blog very much.

By: Cheryl

Cheryl — Sun, 15 Apr 2012 22:08:48 +0000

Take comfort in knowing that there are others of us who experience the same things. Taking my granddaughters to the zoo is a 3 day experience one day there and 2 to recover. But we fight on. Keep a good attitude and do whatever we have to do to make life more bearable. I admire your fight keep up the good work.