RA Guy Real Profiles of RA 5 Comments

Real Profile Annie

Photos © Annie






Plainfield, Indiana, United States

How long have you lived with RA?

I had gotten very sick with RA around 7 years ago and finally got diagnosed 6 years ago.

What advice would you give to someone who has just been diagnosed with RA?

I would advise people no matter what age they may be is not to be scared. This is just a “speed bump” in life. By having this disease, I believe it only makes us stronger. Also, don’t let people degrade you for it. This makes you special.

Do you use any mobility aids?


How has living with RA helped to improve your life?

I’ve had numerous people came up to me and telling me that they never knew arthritis can happen in younger people. I’m ready to be an advocate for those my age to tell people that I’m not even half the population with people my age that has a form of Arthritis.

Do you have any visible signs of RA?

As of right now my fingers are turning to the side, but I have “ring straighteners” that veer them back to being straight. My fingers and toes are like normally very swollen. Thankfully, I have no more visible deformities. Unfortunately, the RA had gotten into my joints such as my shoulders and hips.

Can you please describe some of your favorite coping strategies for living with RA?

I absolutely love to cry. I believe it can be the best way to let out frustration. When I am stressed because my doctor’s appointments are not going the way that I want to go, or I just feel like a blob, I just sit in my bed and listen to music.

Can you please describe your current medical (traditional and alternative) treatments?

Currently, I am taking plaquenil, along with B-12 injections. Other than that, I like to be on less medication as possible.

Is there anything else about yourself that you would like to share?

Along with RA I was diagnosed with multiple other health problems. I was diagnosed with Sjogren’s syndrome, Lupus (yay for Rupus!), and Crohn’s disease. Thankfully I was diagnosed with RA so I can handle all these other “speed bumps”! I love to joke around about my diseases’, but I will never let them tear me down.

Comments 5

  1. Shelly Klag

    What a wonderful outlook on life you have. Your energy and outlook are a true inspiration to me. It’s been 8 years or so since I was diagnosed and I can truly relate. Crying does seem to be a huge release some times.
    PS…you have a great smile!

  2. abcsofra

    You are being an advocate by sharing your story! Thank you. Your strength and determination jump off the page and I have no doubt that many reading your story can relate and will gain strength from your strength. You are truly a courageous young woman!

  3. Amanda

    Even though I’ve heard your story from you before, it still gets to me. You are an amazingly strong person!

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  5. Rhonda

    You are a dear and courageous young woman. I am much older than you and acquired this about 3 years ago. I have what they call MCTD (Mixed Connective Tissue Disease)which includes, Lupus, RA,Sjogren’s, and Fibromyalgia. I have found that certain foods and stress trigger flare ups. I’m beginning to believe we were all meant to eat nuts,fruits and berries like the ones further down the food chain do. Salt and soft drinks (Pepsi) are terrible for me and I found decreasing them in my diet helps immensely. I try to think positive about things which helps too. Yes, I get the weepers and depressed..mostly because I’m so tired all the time. I guess that’s part of the joy of having this. I wish you well. Thanks for sharing your story.

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