Comments on: Cheers To Quality Of Life!

By: Tanya

Tanya — Fri, 30 Nov 2012 03:21:14 +0000

I always appreciate your perspective and providing us with humor, understanding and compassion. I wish others would not be so quick to judge. I try hard not to let my RA get me down but I have been struggling more lately with depression to the point where I cried during my rheumatologist office visit before my last infusion. It is about quality of life and each person has to make that determination. Without these medicines, my life would be completely different and I wouldn’t be able to play and attempt to catch my 3 little boys. I know you and your readers understand and I turn to online support so often because although my family is concerned and supportive when joints flare, they don’t (nor do I want them to) know what it feels like for the simplest things to be impossible to do. Anyway thanks for providing a forum where we can share our successes and our fears and not be judged.

By: Cathy

Cathy — Tue, 20 Nov 2012 12:20:33 +0000

I loved this post. One of the greatest learning experiences for me has been understanding that we each have our own journey to follow with this disease and with life in general. Following a path that is exactly right for me has helped me grow as a person and has kept me grounded, knowing no one knows me better than myself. So when it all comes down to it, I am the expert on myself. Cheers!

By: Jennifer Dye Visscher

Jennifer Dye Visscher — Mon, 19 Nov 2012 19:12:53 +0000

I am so glad you wrote this. As a blogger sharing about Ankylosing Spondylitis I often feel the pressure of “doing it the right way” and what the heck is that anyway? I too have come to the conclusion that I will make the best choices I can but that they are mine and mine alone. If I share about getting Remicade it is because that is what I’ve decided to do and I will tell you how it has impacted my life. I will share that I also believe in diet approached and exercise and being positive. These are the things I do and I share them to help others and to help myself through a life with autoimmune arthritis and I am fine with discussing different views and different approaches I am not fine with people judging or criticizing one another for our personal approach. Goodness, don’t we have enough to deal with! When I feel support and when I give support it increases my quality of life exponentially but negative and critical comments hold no place in my life. I focus on the good and life is so much better. Thanks RA Guy for a great post! Love, Jenna

By: Andrea

Andrea — Mon, 19 Nov 2012 13:09:35 +0000

Finding the treatment that will work for you at that moment feels like trying to balance on an ever changing gyroscope. I needed to hear all that you said today, and I’m thankful that you share your experience so honestly. It really helps to know I am not alone!

By: Beth

Beth — Sat, 17 Nov 2012 14:46:57 +0000

Thanks for writing. My 16th anniversary was last Thursday and my shot was Friday. My son takes MTX shots and doesn’t drink… cuz he’s 11…..so I forgot that you can’t drink on MTX. 2 bottles of wine and a late golf cart ride was so much fun for us. I have just been diagnosed and had 1 shot the week before. We needed that wonderful night. It was good to let go and not be mom for a night but to be a teenager on a wicked ride with my beau. Next morning I realized that I did a bad thing…seriously sound like a teenager getting busted. I was reminded about not drinking by a friend…already took my shot and worried most of the day. Ok…I did a NoNo. I’m hoping my liver and my labs won’t show and my Dr won’t give me a stern warning. UGH…..Nice site RA GUY
Beth… mom to Bruce And fellow blogger