Comments on: Trapped In A Box, No Longer

By: vickie greenhill

vickie greenhill — Tue, 18 Dec 2012 03:14:57 +0000

My hands are pretty knarlly, but iam making plans to add my hands to picture and for the cause. I never think about my hands unless they are hurting or someone mentions them. We RA people are tough. We hhave to be.

By: Della

Della — Sat, 24 Nov 2012 17:57:12 +0000

My husband has recently been diagnosed with RA. It seems to have come on with a vengeance. His ankles and wrists are the worst joints, but his stomach hurts so bad he has went to ER 3 times in April (before he learned in early May that he has RA) and 2 times since. There is nothing they can do, yet I take him because I can’t do anything about his RA myself – but pray. He also has acid reflux and won’t listen to the Drs about not laying down right after eating. What can I do but pray! Your statements were wonderfully written. Thank you. Della

By: Loretta Tweed

Loretta Tweed — Wed, 07 Nov 2012 23:18:25 +0000

I loved this!
It’s like we wear a “Mask”…
I don’t want to do that anymore.
I hurt, and sometimes I Cry…actually “Bawl”…like a Baby!
I am Strong, and Courageous, but I am Human, you are, we ALL are!
Love your honesty and candour.
If it’s not my feet it’s my hands.
I explain it like having something that just does not want to co-operate usually at the most inopportune times.
Functioning becomes like running a marathon and I ONLY WANTED TO GET TO THE BATHROOM, OF COURSE IT SEEMS LIKE IT IS HALF-WAY ACROSS THE WORLD INSTEAD OF ACROSS THE HALL.
Sorry about the caps wasn’t intentional!…;)…See mind of their own!!!
I am having trouble closing mine.
My dad wants me to write to him, I can barely sign my name!

By: Jaana Vähäsalo

Jaana Vähäsalo — Wed, 07 Nov 2012 18:24:31 +0000

Hi! First of all,thank you <3
Thank you so much for sharing your experience and feelings. You express yourself beautifully.
As you sed Ra is a " friend" that makes your life so small, and it makes you feel like you are in the box.I have thoughs similary as you and I do understan what you go trough.My seropositive RA makes my life difficult and is it not my only illness.Im 55 years old and I have to say, you are somethin,very beautiful brave young woman <3 Lots of greetings and loving wishes from Finland <3

By: abcsofra

abcsofra — Tue, 06 Nov 2012 22:42:03 +0000

(((HUGS))). Everyone has pretty much said what I was thinking. Pregnisone will make you very emotional, try Dragon Speak but it does take some time to “Train your Dragon” and the muscle cramps can be caused by alot of things. Do check into your meds and medicine net has pretty good coverage on muscle cramps and causes. Vitamin deficiency can also be a cause. They can be horrific to deal with. I am just so sorry to hear you are being trapped in that terrible box we all know so well. Just so very sorry…