Comments on: The Tale Of A Superhero In New York City http://www.rheumatoidarthritisguy.com/2013/05/the-tale-of-a-superhero-in-new-york-city/ Thu, 03 Sep 2015 17:55:04 +0000 hourly 1 http://wordpress.org/?v=4.3 By: Cindy http://www.rheumatoidarthritisguy.com/2013/05/the-tale-of-a-superhero-in-new-york-city/#comment-8387 Sat, 22 Jun 2013 14:57:28 +0000 http://www.rheumatoidarthritisguy.com/?p=20022#comment-8387 As much as I love my rheumatologist, he rolls his eyes when I tell him that food will trigger my symptoms. It’s good to hear that you have people that listen to you.

]]> By: Jennifer http://www.rheumatoidarthritisguy.com/2013/05/the-tale-of-a-superhero-in-new-york-city/#comment-8371 Wed, 19 Jun 2013 02:41:22 +0000 http://www.rheumatoidarthritisguy.com/?p=20022#comment-8371 Hi Angie!

I am 37 and was diagnosed with RA at 30. I tried many, many medsbefore ending up with Rituxan – the last stop on the RA med train, lol. It sounds like your med combo or dosage isn’t working. There are many, many combinations. Have you told your rheumatologist this just isn’t managing your pain? I have issues with the ball of my right foot too. Sometimes it will swell from only very light stress (like walking too far the day before or wearing a certain pair of high heels). RA guy has it right when he talks about having or needing to do certain things each day to manage your RA. Exercise and yoga or mediation are MUSTS as is managing your diet. I wish you the best. I hope you can find better meds and a better method of managing pain with help from your docs or other holistic providers. Take care and good luck!

]]> By: Sally http://www.rheumatoidarthritisguy.com/2013/05/the-tale-of-a-superhero-in-new-york-city/#comment-8340 Wed, 12 Jun 2013 21:05:45 +0000 http://www.rheumatoidarthritisguy.com/?p=20022#comment-8340 Hi Angie, it does get better. It’s a disease of ups and downs. I remember the very beginning of the disease as being the worst for me – everyone is different. Right now you haven’t been put on some of the newer drugs for RA. If you have insurance and your current meds aren’t working, look into “biologics” such as Humira and Enbrel. If your current doctor is not open to the new meds, find one who is. Keep searching the internet for ideas — there’s a lot out there. Most of all, don’t give up! It’s easy to get discouraged, but there is a huge range of how people live with RA – some people feel very little pain after going on biologic drugs and some even go into remission! – some have more challenges with pain and mobility, but as RA guy demonstrates, you can still lead an excellent life. Good luck! Praying for you. Sally

]]> By: Marianna Paulson http://www.rheumatoidarthritisguy.com/2013/05/the-tale-of-a-superhero-in-new-york-city/#comment-8331 Mon, 10 Jun 2013 23:25:41 +0000 http://www.rheumatoidarthritisguy.com/?p=20022#comment-8331 A big round of applause and an Auntie Stress award to you, RA Guy!

Some might call all those things you are doing to support your health “adjunct” – they are much more. They’re the essentials – for everyone. Cornerstones that not only support us in health, but also in well-being.

Sometimes we have to go through the pain before we pay enough attention to make the changes that allow us to live – well – even with a chronic condition.

Travel well – daily.

Warmly,
Marianna

]]> By: Marianna Paulson http://www.rheumatoidarthritisguy.com/2013/05/the-tale-of-a-superhero-in-new-york-city/#comment-8330 Mon, 10 Jun 2013 23:19:00 +0000 http://www.rheumatoidarthritisguy.com/?p=20022#comment-8330 Angie,
Have you been back to see your rheumatologist? It’s important to talk with him/her and explain how you are feeling and see what else can be offered to you.

Also, one of the biggest things that has helped me is to transform my stress. Soaking in negative thoughts and feelings, like fear (which is normal in this situation), triggers the stress response, which contributes to inflammation. This becomes a vicious cycle, so the question is how to get off that hamster wheel of pain, inflammation, fear, insomnia, depression, frustration, more pain, and around it goes.

On my blog, I suggest a number of proactive things you can do to help yourself. One of them is what I first suggested – call your rheumatologist.

On this post, is a little trick I use when I notice some swelling, which is far rarer than it has been in decades past (THANKFULLY!): http://rheumfuloftips.wordpress.com/2012/08/17/pain-pain-go-away/.

Warmly,
Marianna

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