Comments on: Rediscovering (My Soul)

By: Carla

Carla — Mon, 19 Jan 2015 16:44:20 +0000

What an amazing journey you’ve had. It is said that we live our lives, not in years, but in moments. You certainly had two significant moments conjoined by the same place. I know it’s been tough, but we’re glad you’re here.

By: ann b wall

ann b wall — Sun, 11 Jan 2015 21:26:26 +0000

I am glad you have your soul back. I wish you a happy healthier new year . I have had RA for 3 1/2 yrs and am always trying not to feel depressed with limitations. I am doing a desk job for th first time in 36 yrs but so grateful to have a job-I’m a RN and I talk to patients all day . I wish that I can help them not to give up and to have access to care. I admire your energy and enjoyed reading your story. I find it hard to let go of the scars from severe flares and to live joyfully thank you ann

By: Cindy

Cindy — Sun, 11 Jan 2015 14:12:37 +0000

Hi. A few weeks ago you mentioned using magnets to help with inflammation. Did you try it and did you have any success?

By: garman

garman — Fri, 09 Jan 2015 17:58:20 +0000

Have you ever been to an Oncology Clinic? I find that there’s a façade of something positive and hopeful in the décor, the signs, the art and the literature and pamphlets laying about. But most human contact there, with registration, lab techs, nurses and doctors isn’t quite so fuzzy and warm. Lets face it many of the people with Cancer, the patients, are in for one hell of a treatment regimen or are very possibly not going to outlive the disease. So how much of an emotional investment can the staff, being human themselves, invest in these patients. I’ve seen the same thing in my Rheumatologist’s office and I can’t say I’ve ever left there feeling emotionally better about my health or hopeful that things would improve enough to make a significant difference in my life with RA. I wonder if your experience at your NYC arthritis clinic was like this when you felt hopeless and as though you lost your soul? I’m so tired and feeling quite soulless myself, I don’t want to be this way, but don’t know what to do about it or how to find the energy to fight a while longer… what do you do?

By: Rebecca Genin

Rebecca Genin — Fri, 09 Jan 2015 00:18:15 +0000

Beautiful. Thank you, as always, for sharing.