A Few Truths About Living With Chronic Illness

RA Guy Adventures of RA Guy

A few truths about living with chronic illness: many people (including certain healthcare professionals) do not understand the reality of our illnesses; few people will know how much it really hurts (*all* the time!); and some people, upon discovering that a person receives disability assistance and other benefits, will try to make said person out to be a cheat or an irresponsible moocher.

A few other truths: nothing is more important than understanding your body and your illness, no matter what others say; there are many people out there who know exactly what the chronic pain feels like (and those who live well know the importance of not making this pain the center of their lives); and those of us who live with the challenges of chronic illness, and who struggle to be able to afford access to continual healthcare on top of trying to keep up with basic living expenses, are some of the kindest, most giving, and most responsible souls that exist on this planet.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

Health.com: 11 Famous People With RA

RA Guy Community News

Famous RAArchaeological investigations have turned up evidence of injuries, degenerative disease, infections, and tumors in ancient skeletons, but no signs (yet) of rheumatoid arthritis (RA).

“It isn’t clear how old rheumatoid arthritis is,” says Nortin Hadler, MD, a professor of rheumatology and microbiology/immunology at the University of North Carolina at Chapel Hill. “The more you look for it in history, the less you find it.”

Here is a list of famous people who’ve battled the disease in recent history. (The first confirmed cases of RA were probably in the late 1800s.)

Read More: http://www.health.com/health/m/gallery/0,,20496769,00.html

Arthritis Broadcast Network: Spotlight On Arthritis Superheroes

RA Guy Community News

superheroToday, the “Spotlight on Arthritis Superheroes” is directed on Rheumatoid Arthritis Guy.

RA Guy’s rheumatoid arthritis started when he was in his 20’s. His heels were in pain and his knees creaked. In the winter time, his RA symptoms became worse. In his 30’s, his pain never went away and he was unable to use his knees. Finally, after many visits to a doctor, he came across a rheumatologist who confirmed that he had rheumatoid arthritis.

Join RA Guy as he shares his ups and downs and continues his journey through chronic pain and debilitating inflammation. Our favourite part about his blogs is that he uses humor to shed light onto matters that others may consider serious.

Read More: http://arthritisbroadcastnetwork.org/2014/09/spotlight-arthritis-superheroes-2/

Canyons, Bridges, And Waves

RA Guy Adventures of RA Guy

Canyons-Bridges-and-Waves

People often ask me, what do you do? Depending upon my mood, I have many different answers. I am an architect. I am a photographer. I am a teacher. I am a writer. I am a designer.

But there is one response that remains constant, no matter how I am feeling.

I am a walker.

When I was a graduate student, the one professor that taught me some of my most important lessons–both in design, and in life–was best known for encouraging his students to open their eyes; to explore the world around them.

“The whole concatenation of wild and artificial things, the natural ecosystem as modified by people over the centuries, the built environment layered over layers, the eerie mix of sounds and smells and glimpses neither natural nor crafted–all of it is free for the taking, for the taking in. Take it, take it in, take in more every weekend, every day, and quickly it becomes the theater that intrigues, relaxes, fascinates, seduces, and above all expands any mind focused on it. Outside lies utterly ordinary space open to any casual explorer willing to find the extraordinary. Outside lies unprogrammed awareness that at times becomes directed serendipity. Outside lies magic.” —John R. Stilgoe

Even when rheumatoid arthritis took away my ability to walk with my body, I continued to walk with my mind. For years, I was determined to leave my bed, and to get back out in the open.

I am now there, back out in the open…and whether I’m walking through the mountains of South America, or through the skyscrapers of New York City, I quietly smile on the inside, because I know I’m doing exactly what I was meant to do.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

(Originally posted on CreakyJoints Poet’s Corner.)