Patients For A Moment

Patients For A Moment

Welcome to the first ever Patients for a Moment – a roundup of blog posts for, by, or about patients.

If this is your first time hearing about PFAM, let me explain that the goal is to build connections within the community of people who blog about illness, disease, and disability. This includes doctors, nurses, caregivers, even policy wonks – but especially patients.

My goal in organizing this carnival is to give blogging patients – many of whom focus on a specific disease – a chance to reach out to a broader audience. I recognize that blogging can be an important way to talk and think about a diagnosis. But I also think we as patients ought to engage other patients with different diseases, to explore what we have in common as people with illness. The more we’re able to engage and communicate with one another, the better off we’ll all be.

Be sure to check out this inaugural edition of Patients for a Moment, which presents a collection of thirteen blog posts. Each post provides a different perspective on illness, disease, and disability.

Included in this round-up is RA Guy’s post Survivor: Tierra Del Fuego (Season 19).

One More New RA Blog

RA and Me
Angela was diagnosed with rheumatoid arthritis just a little less than a year ago, and recently started writing her personal RA blog at the end of May. Married for 15 years, Angie and her husband have 2 kids, 2 dogs, and 1 cat. Please be sure to take a look at her blog!

P.S. Not to be confused with Rheumatoid Arthritis and Me. If you ever want to read an inspirational story of knee replacement surgery and recovery, this is the place to go!

More RA Blogs

Rheumatoid Arthritis Sucks
…But Life Still Rocks! Kim launched her blog today with a wonderful post on “those” people. Please welcome Kim to the RA blogosphere!

Gentle Hugs Cafe
An Autoimmune Disease Resource Site. Since February, Sarah has been putting together a lot of information on alternative treatments. Anyone who is interested in this topic should definitely take a closer look at her blog!

Life Is Going To Be OK!
Stephanie too has been blogging since February (I just found her on Facebook), and adds a fresh and energetic voice to the world of RA bloggers!

Why Blog About Chronic Illness?

Kali from Brilliant Mind Broken Body added the following comment to my post The New Normal, where she talks about the benefits of writing and reading chronic illness blogs.

Thank you, Kali. I don’t think it could have been said any better.

I think that in some ways, a blog is a better coping tool than a private journal.

In a blog, you can get support. Sure, it’s from relative strangers in the anonymity of the web…but still, getting that support, and knowing you have people who watch for your entries…that can be a huge boost.

You also get community. Sometimes we just chat with you in your comments, after all – it’s not always support per se, but it’s being able to have conversations about what your illness does with people who get it.

You get suggestions – sometimes it’s a different way to think, sometimes an aid that might help you.

And finally…at some point, you start getting people willing to give you a little tough love when you’ve earned it. Hopefully, what that means is people who listen to what you’re saying you do and gently telling you when you’re being an idiot. Heaven knows, we all need someone willing to do that. And at least this idiot over here is more willing to listen to other people who’ve been there.

I very much agree with what Kim is saying. We have to de-program ourselves from the idea of what strength, productivity, and moving forward mean, and re-write what those words mean in our lives.