The Seated View: Real RA The Great Pretender

This blog post really struck close to home, especially since a week ago–the night before I took off on my extended trip here to the U.S.–I wrote the following to a friend:

“Honestly I’ve been even more of an emotional mess than I let on in my previous email, and have only been projecting that I’m doing well–it’s the only thing that’s been keeping me moving forward. But now it’s time for both my body and my mind to get back to where they need to be. I have no doubt that a lot of good will come from this trip.”

People with RA lie all the time.

How are you? 
Fine. You?

How’s the pain today?
Not bad.

Are you worried?
Not at all. I’m sure everything will be OK.

It’s a necessity of life with this damn disease. If you’re honest, not only will your friends and family start avoiding you, but you’ll start to bore yourself, too. There’s only so much unrelenting crap anyone can deal with before it gets old and miserable and you want to run screaming for the hills. But when you live inside the crap, there’s no way to run.

And so you lie.

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Fortunately, admitting and accepting those words that I wrote–as well as successfully completing my long international travel day–have gone a long way in terms of getting me back on the right path.


New Book: Your Life With Rheumatoid Arthritis

Your Life with Rheumatoid Arthritis: Tools for Managing Treatment, Side Effects and Pain is the ultimate guide to living well with this chronic, at times debilitating, autoimmune disease.

Your Life with Rheumatoid Arthritis covers medication and treatment options, questions of opioids and addiction, down-to-earth tips to manage side effects, and techniques to control the pain that is often part and parcel of RA.

This is an informative, honest and often very funny book. It offers hope, comfort and help to empower both the newly diagnosed and those who have had the disease for years.

Your Life with Rheumatoid Arthritis: Tools for Managing Treatment, Side Effects and Pain is the essential companion to creating a good life with rheumatoid arthritis.

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About Lene

Lene Andersen is an award-winning writer living in Toronto, Canada. Born and raised in Denmark, Lene — pronounced Lena — has had rheumatoid arthritis since she was four years old. This gives her over four decades of experience with the disease and everything that comes with it.


Live. Art.fully: She Chose to {Rise Above}: Art Journaling

Jennifer LeBlanc | Live Art.fully | | All rights reserved.

“I love the layers of meaning in this spread. The lady has lassoed her dreams that are seemingly unattainable. She is holding them like balloons or flying them like kites. They are pulling her up, hot air balloon style, in her cage of difficulty, helping her soar above the stones that could trip her.

She’s using her dreams to help her rise above.

Another thought I had while working on this spread is that our stones of difficulty can either be stumbling blocks or stepping stones in life. Which are yours?”

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RAthlete An Optimist Blogger: We Can Be Happy

“When you suffer from a chronic disease, it often times complicates our happiness; blurs the goals and hopes for our future as we become slightly convinced RA will get the best of us. As Agnes Repplier stated, “It is not easy to find happiness in ourselves, and it is not possible to find it elsewhere”.

It is a never-ending battle between success and joy. I think it is important to remember only you can dictate your success and I hope your happiness guides the answer.”

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