Comments for Rheumatoid Arthritis Guy http://www.rheumatoidarthritisguy.com Adventures of a superhero on his journey through chronic pain and debilitating inflammation Wed, 22 Feb 2012 16:43:12 +0000 hourly 1 http://wordpress.org/?v=3.3 Comment on Cleanup In Aisle 7, Please by Ann Brazeel http://www.rheumatoidarthritisguy.com/2012/02/cleanup-in-aisle-7-please/#comment-6339 Ann Brazeel Wed, 22 Feb 2012 16:43:12 +0000 http://www.rheumatoidarthritisguy.com/?p=17698#comment-6339 I feel so bad that you had to experience this, but glad you have someone special to come to your rescue. This has happened to me to some extent since before my official RA diagnosis. Profound fatigue was my first symptom. But now, 5 yrs later, these episodes are much worse, it's like someone flipping a lightswitch and I go from being somewhat OK to "I've got to lay down NOW!". I almost never go out by myself and when I do it's to do something like go to the drive-up window at the pharmacy. Sorry this happened, but learn from it and be safe and have someone with you. You could have fallen and...........well,let's not even go there! I feel so bad that you had to experience this, but glad you have someone special to come to your rescue. This has happened to me to some extent since before my official RA diagnosis. Profound fatigue was my first symptom. But now, 5 yrs later, these episodes are much worse, it’s like someone flipping a lightswitch and I go from being somewhat OK to “I’ve got to lay down NOW!”. I almost never go out by myself and when I do it’s to do something like go to the drive-up window at the pharmacy. Sorry this happened, but learn from it and be safe and have someone with you. You could have fallen and………..well,let’s not even go there!

]]> Comment on How To Be Sick: Discussion 7 by Janine http://www.rheumatoidarthritisguy.com/2012/02/how-to-be-sick-discussion-7/#comment-6338 Janine Wed, 22 Feb 2012 15:42:27 +0000 http://www.rheumatoidarthritisguy.com/2012/02/how-to-be-sick-discussion-7/#comment-6338 Thank you, Toni! Thank you, Toni!

]]> Comment on How To Be Sick: Discussion 7 by Kat Radi http://www.rheumatoidarthritisguy.com/2012/02/how-to-be-sick-discussion-7/#comment-6337 Kat Radi Wed, 22 Feb 2012 11:34:34 +0000 http://www.rheumatoidarthritisguy.com/2012/02/how-to-be-sick-discussion-7/#comment-6337 Recently (since reading Tonis book) I had an experience where I was getting frustrated with someone who was asking me to do a job for them. Our conversation was via txt, which made it difficult to explain and to understand. The other person was changing the delivery date and I began to react and get upset, and feel as though I had to accommodate them and explain myself. All of a sudden I began to notice I was reacting. I asked myself what was wrong? why am I getting so upset? I was able to realise that I was over-reacting, and look again at the real situation and therefore let go of what was not my responsibility. This happened quite quickly - within minutes, rather than my usual practice of letting go in a few days or even weeks! It was quite exciting to see my progress. I reckon I spend 80-90% of my time alone, so I find it quite difficult to practice mindfulness when around other people. I find it is so in-congruent with how the majority of the society works that my mind has to be strong to remember. And also the more I practice it the better I get. I hope to get to a "default" setting eventually. At first the concept of breathing in pain and suffering was confronting and frightening and quite frankly ludicrous! But I have tried it, and have continued. I see it now as a gift I can give, rather than take. Byron Katy's 4 questions made SO much sense to me. What a revelation. I looked her up immediately. Not sure I have addressed the questions posed. At the moment when searching my brain for info all I can see is cobwebs....but I reckon its the "gist" that counts! Recently (since reading Tonis book) I had an experience where I was getting frustrated with someone who was asking me to do a job for them. Our conversation was via txt, which made it difficult to explain and to understand. The other person was changing the delivery date and I began to react and get upset, and feel as though I had to accommodate them and explain myself. All of a sudden I began to notice I was reacting. I asked myself what was wrong? why am I getting so upset? I was able to realise that I was over-reacting, and look again at the real situation and therefore let go of what was not my responsibility. This happened quite quickly – within minutes, rather than my usual practice of letting go in a few days or even weeks! It was quite exciting to see my progress.

I reckon I spend 80-90% of my time alone, so I find it quite difficult to practice mindfulness when around other people. I find it is so in-congruent with how the majority of the society works that my mind has to be strong to remember. And also the more I practice it the better I get. I hope to get to a “default” setting eventually.

At first the concept of breathing in pain and suffering was confronting and frightening and quite frankly ludicrous! But I have tried it, and have continued. I see it now as a gift I can give, rather than take. Byron Katy’s 4 questions made SO much sense to me. What a revelation. I looked her up immediately.

Not sure I have addressed the questions posed. At the moment when searching my brain for info all I can see is cobwebs….but I reckon its the “gist” that counts!

]]> Comment on You Know You Have Rheumatoid Arthritis When… by Libby Schou-Kristensen http://www.rheumatoidarthritisguy.com/2011/06/you-know-you-have-rheumatoid-arthritis-when/#comment-6336 Libby Schou-Kristensen Wed, 22 Feb 2012 06:14:48 +0000 http://www.rheumatoidarthritisguy.com/?p=12418#comment-6336 ...when your tupperware containers have teeth marks! ...when you experience joy unspeakable at a public toilet that is high enough! ...when you have to ask for a higher chair in the changeroom before you can try on clothes! ...when you sit on the arms of chairs in waitingrooms because all the seats are too low! …when your tupperware containers have teeth marks!

…when you experience joy unspeakable at a public toilet that is high enough!

…when you have to ask for a higher chair in the changeroom before you can try on clothes!

…when you sit on the arms of chairs in waitingrooms because all the seats are too low!

]]> Comment on Cleanup In Aisle 7, Please by Daniel W. http://www.rheumatoidarthritisguy.com/2012/02/cleanup-in-aisle-7-please/#comment-6335 Daniel W. Wed, 22 Feb 2012 03:08:35 +0000 http://www.rheumatoidarthritisguy.com/?p=17698#comment-6335 i have been having these same issues lately. I have had R/A for 29 years and never had this problem till recently. Was driving car when one hit I was 5 miles from home and at 40 miles per hour didn't think I was going to make it. Scary as hell. Glad your partner was there for you. Hang tough it gets worse. lol Is it possible? i have been having these same issues lately. I have had R/A for 29 years and never had this problem till recently. Was driving car when one hit I was 5 miles from home and at 40 miles per hour didn’t think I was going to make it. Scary as hell. Glad your partner was there for you. Hang tough it gets worse. lol Is it possible?

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