Rheumatoid Arthritis Guy Saves The World!

Okay, so maybe I didn’t save the world – yet. But I did launch this blog, and on a Friday afternoon no less. Now I can kick back and relax over the weekend. I’ll go back to saving the world on Monday.

The idea to start my own blog has been simmering around in my head for a while, but upon hearing for the third time in a month “Why don’t you start your own blog?” I finally decided to give it a go.  I put aside my self-paced iPhone application development training (and corresponding new MacBook Air – what a lovely thing) and jumped into the world of Adobe Illustrator (illustrations on the right) and WordPress (blog publishing software, for those who are not familiar).

I hope to have fun sharing adventures of my journey through chronic pain and debilitating inflammation.  My rheumatoid arthritis has undergone a major progression during the past few months, and I need to turn my daily routine of putting on and taking off my wrist guards and ankle protectors into something fun.  Hence, Rheumatoid Arthritis Guy and his tungsten wrist guards and titanium ankle protectors.

And yes, I really do still have a full head of hair.  Although two weeks ago I started taking Arava for my rheumatoid arthritis, and one of the most common side effects of this drug seems to be hair loss.  Here’s hoping that I don’t become follically challenged.  (Although I guess being able to comfortably lift a brush is more important than having a full head of hair – darn those wrists!)

So welcome to my world and welcome to my blog.  Don’t be shy – I would love to hear from you.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

12 Comments
12 comments
  1. Sara says:

    Hey! Really excited to find your blog, and wanted to say welcome to the RA blogosphere. It’s great to hear a different perspective on this disease, and I really appreciate the humor, too!

  2. Prof says:

    RA Guy–You have a novel approach to dealing with your disease. Others who are also living with RA can benefit from your experiences. Thanks for sharing w/ the virtual world!

  3. Miss Waxie says:

    Hi!

    I just found this after wordpress stats told me this site sent someone from your site to mine.

    Honestly, anyone who manages to have an immune system so super that it attacks its own probably is pretty much superhuman in my book , so yeah, I totally dig this! I hope that your hair keep on being superhuman too, though!! (I lost about 1/4 of mine, but i’m of ashkenazi jew decent, so that meant I still had enough hair for 4 people…though once I lowered on pred & imuran, a lot of it came back).

    Looking forward to hearing about your adventures, RA Guy, and thanks for the link! I’ll like back here, too!! Stay well!

    - Miss Waxie
    http://acomiclifeindeed.wordpress.com

  4. Sheryl says:

    RA Guy – welcome to the arthritis blogging world! I look forward to reading more of your posts!
    -Sheryl

  5. Amanda says:

    Oh my gosh, I LOVE the superhero concept. How very true- our immune systems are definitely overachieving…I started losing hair on the highest dose of methotrexate. I lowered that immediately! Good luck and welcome to blogdom!

  6. Clare says:

    hey, thanks for your comment on my blog. i’ll be looking forward to reading more on yours! how long have you had the disease? it certainly can be a b*%ch.

  7. RA Guy says:

    Thanks everyone, for your kind comments and warm welcome. Clare – I have had pronounced RA for a little under five years. Yes, it can be quite challenging at times. I am currently undergoing a strong progression at the moment and hope that my new treatment plan helps bring it under more control.

  8. Jo-Ann says:

    Hi I just found your blog. It’s a cute concept the superhero. I am looking forward to reading your posts. And thanks for adding my blog to your “Superhero” Roll!

  9. Donna says:

    RA Guy,

    Thanks for posting your blog. I love it! I am in my fifth year too with this arthritis monster. I am taking Remicade. MTX, and predinsone. I hang out at arthritis.org/RA Connect. Hope to see you posting there too. Good luck RA Guy with your adventures in arthritisland!

  10. Sherri says:

    Dear R/A guy, I wish I could go back to the super hero I was before r/a my story started with chronic ulceative colitis, being sick,started getting tired all the time, then just as I started to accept this condition,my joints started swelling and the pain was sooo bad that I couldn’t get out of bed, went to the dr.and they started giving me remicade, not to forget that I am already on prednisone,Immuran, and flagyl for the colitis,I developed a side affect that made my eye swell and they stopped treatment, and pretty much said sorry,and I walked away from relief…. so depressed sometimes,I’m sure due to the meds. I have a hard time mostly every day, and just smile at my friends and say tomorrow will be better, you and I know that never is the case, Tonight and every night I ‘ll continue to pray they find a cure for all of us, I wan’t to wake up the super hero I once was again!!! It never hurts to dream right?

  11. Judy Manchester says:

    Hi, I was on Arava for 4 years then the drug company stopped making it for a while. My Dr tried many drugs which we found out I was allergic to. Then after being off all meds for about 7 months she suggested Enbrel. Being drug sensitive I had to start off slowly, but my pain was gone in 5 days after starting it. This is a very expensive med and I do not know how long I can afford it, even with insurance . But it worked. It is to bad the drug companies can’t feel our pain. They really need to come up with better, more affordable meds for people with RA.

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