16 comments
  1. Helen says:

    This is just about how I feel today! Love it. You do have a way with….uh….images? videos? words?

    Thanks for attempting to make others understand.

  2. Janie says:

    I’m glad I didn’t have breakfast before I watched this…:)…WOW what a ride!!….Still workin’ on your cape?

  3. Laurie says:

    My oldest son is the supervisor of rides and attractions here at Universal Studios orlando. That being said I love roller coasters. Now I am wondering if I have a flare and ride the roller coasters if the prednisone I’m taking would be distributed more evenly thru my body, since most of his rollercoasters go upside down, and you are stirred, not shaken.
    Since this whole week has been a flare, I’d go try it out except I have to work next weekend. maybe next flare…altho I do find the rollercoaster screaming rather theraputic!

  4. Angie says:

    This is TOTALLY it. Except it would continue for not just 1:30 but for YEARS and YEARS and YEARS. Another good post from RA Guy. Way to go!

  5. sandymcc says:

    Loved this video! The only part I would add is the surprise that I’m on the roller coaster to begin with. I still wonder what? how? why? and I’ve had RA for years!
    You are my hero RA Guy!
    Sandy

  6. JG says:

    My first thought after finishing hurling was “Not unlike Lyme.” My second thought was, “At the end it should have just automatically started over again.” My third thought, “This is probably the closest I will ever come to really riding a coaster again. And I’m cool with that.” Wretch. Heave.

  7. Angie says:

    RA Guy, you rock! Please don’t get upset anyone but I laughed thru the whole thing because FINALLY I think I can make people understand what the pace and pattern (or lack there of) of the flares can be like. That’s how I felt deurin flares. Except the flat part of the track was the least painful time of the flare. We use the roller coaster analogy for a lot of things. I’m amazed at how well it fits with RA. RA Guy, I hope you don’t mind but I’m going to link this to my blog. I want people to see this.

  8. emily.r.d says:

    ha! best bit: IT’S NOT OVER!!!
    diagnosed with JRA aged 12, now 20, been on MTX for 8 years and humour is where it’s at.

  9. Elizabeth Riggs says:

    I used to be a rollercoaster junkie. But I haven’t been on one in over 20 years. SIGH! Watching that was wonderful – just like a flare, but when it was over at least it stopped on the video. In real life, it’s never over, even when you think it’s over! Thanks, RA Guy! I may embed this in my blog, too!

  10. Elaine says:

    OMG, this made me laugh, because that is exactly what we go through…very good visual!!!!

    P.S. made me a little dizzy, must have been the meds…lol

  11. Kel says:

    Way to put it visually for those that do not suffer from RA and for those family members, friends, and co-workers that don’t know or believe that our flares are that bad and crazy mad. You, my friend are a true RA Superhero!!!!!

    Peace Out~Kel

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