Rheumatoid Arthritis Guy Unplugged

UnpluggedYesterday was an encore performance of Rheumatoid Arthritis Guy Unplugged. No, I was not in a cozy little MTV studio, singing along as I played my acoustic guitar. (I was blessed with many talents, but music or voice talent are definitely not on that list!)

I’ve come to realize that about once a month (sometimes more, sometimes less) I have a day where I am completely unplugged – as in having absolutely no energy supply. It sometimes seems that I don’t even have enough energy to sleep. It sounds like an oxymoron, I know, but I have no doubt that those of us who live with chronic fatigue know this feeling all too well.

So from around 12 noon until 7 in the evening, with a few breaks here and there, I was out cold. Luckily my class yesterday was online, so my mega-nap didn’t interfere with any of my commitments.

The weather turned last night. It’s currently in the low 30′s, and a light drizzle has been falling for hours. Normally my living room would be flooded in sunlight at the moment, but with so many clouds in the sky everything has that “muted” feel.

In half an hour, I’m going into work. On top of my class, I have office hours in the morning. Here’s hoping that I won’t have another repeat performance of yesterday’s unplugged session. I think it’s time I start looking into winter batteries!

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

3 Comments
3 comments
  1. MissDazey says:

    I seem to have missed some blogs. You are teaching where and what? Office hours, have you started a business?

    You are right, there are days we have no energy and need recharged. For me anyway, nothing seems to help and have to just let it pass. I am lucky now I’m retired.

  2. marianne hoynes says:

    Good post, RAGuy, as usual.
    I hope you get to feeling better. I understand that kind of fatigue. I was tested for vitamin deficiencies, which are common with people who have auto immune diseases. i take extra vit D, a really good, balanced B complex, and iron supplements. I think the Orencia i take has contributed to a persistent anemia, and the other stuff i think is just the illness. I cannot say that i feel great and dont have draining fatigue on some days, but i do think it helps overall. Some days i’m just grateful i can take a long nap, or lie in bed and veg. I hope you have the time to do so, too. Thanks for your blog – it really makes me feel connected, and reminds me to love myself.

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