Resources and Blogs

Autoimmune Portrait Project by Jodi McKee
My hope for this project is to show the world that there are a lot of younger people out there who are dealing with complicated and often painful chronic illnesses. Also, I think it is so important for the newly diagnosed to be able to see all of these beautiful, happy faces and know that they are not alone.
More Info: www.jodimckee.com/portrait-project/

BJC Health
Our unique approach, Connected Care, is about honing the collective expertise of our specialists and allied health professionals to offer holistic diagnosis and treatment. This approach has come about because our main objective has always been to treat the whole person, not just the site of pain. We achieve this by encouraging our specialists and allied health professionals to work together in connecting the treatment of our clients’ health issues where appropriate.
More Info: http://bjchealth.com.au/

Show Us Your Hands!
The mission of Show Us Your Hands! is to unite and inspire people who live with inflammatory arthritis. We carry out this mission through creative community projects and awareness campaigns aimed at increasing public understanding of inflammatory arthritis. Our community members, program participants, volunteers, donors, directors and staff work together to build hope for the inflammatory arthritis community, one hand at a time.
More Info: www.showusyourhands.org

Superhero Blogroll

World Arthritis Day
World Arthritis Day was established in 1996 by Arthritis and Rheumatism International (ARI) and is celebrated each year on 12 October. Now, people with rheumatic and musculoskeletal diseases (RMDs) from around the world can join together to make their voices heard on this day. World Arthritis Day is an ideal focus for organisations to raise awareness of issues affecting people with RMDs and for individuals to support campaigns. Although 12 October is the official World Arthritis Day, this is a year round campaign.
More Info: http://www.worldarthritisday.org/

- Trapped In A Box, No Longer
  Last night, I had one of my longest cries in a long time. On Monday of this week, I called my doctor because my rheumatoid arthritis continues to worsen, even though two weeks ago we upped all of my medications and added a one-month Prednisone boost. One of the worst feelings in the world--even though I know that these meds often ...
- Knock Me Down, Pick Me Up
  After a couple of relatively symptom-free weeks, my rhuematoid arthritis is once again knocking me down. Today I didn't get out of bed until around 1:00 p.m. Even then, I did't much get past first gear...although I am proud to say that even as my day passed by in slow-motion, I was able to make it into the kitchen to ...
- Cheers To Quality Of Life!
  "Quality of Life (QoL) is a phrase used to refer to an individual’s total wellbeing. This includes all emotional, social, and physical aspects of the individual’s life. However, when the phrase is used in reference to medicine and healthcare as Health Related Quality of Life (HRQoL), it refers to how the individual’s wellbeing may be impacted over time by a ...
- How My Pain And Disability Improved My Life
  Nine years ago tomorrow--on the day that I turned 30--I submitted a letter of resignation to my manager. My roaring twenties were over, and I could not be happier. By all practical purposes, the previous decade had been filled with many different successes: I graduated from Columbia, I graduated from Harvard, and only a few years later, I was earning ...
- Through The Looking Glass
  I used to think that accepting the reality of my rheumatoid arthritis meant that I would be giving in to this disease. As long as I grabbed on to the life that I wanted (thus avoiding what was obviously becoming the life that I had), I figured that I would be okay. For a while this actually seemed to work, and ...
- My Own Personal Serenity Prayer
  I had big plans for this morning. First, I was supposed to wake up early to take my dog Alva to the vet, so that we could check her blood sugar levels. Then, later in the morning we were going to do some shopping, followed by lunch at whatever restaurant happened to be in the vicinity of wherever we found ...
- The Importance Of Having Confidence In Our Decisions
  Many readers know that, for almost the past year, I have been treating my rheumatoid arthritis without medications. Some people have interpreted this as me saying that I'm not doing anything for my RA, something which could not be further from the truth. During this past year, I attended physical therapy on a 2x or 3x weekly basis, I successfully incorporated ...
- Cleanup In Aisle 7, Please
  Yesterday morning, I started my Friday in my usual way: I left my house at 10:00 am, in order to go to physical therapy. (I rarely ever make commitments before lunchtime, but I will make an exception for PT.) During my session, we did some of our regular therapies: heat, ultrasound, and electrotherapy. I was a little surprised that toward the ...
- What Is A Rheumatoid Arthritis Flare?
  This is a rheumatoid arthritis flare: January 16, 2011 I woke up crying today. It used to be that I could alleviate some of the pain by staying still…but today, the exact opposite seems to hold true. It hurts to sit down. It hurts to stand up. It hurts to lay down. Pressing my forearms down on a tabletop, placing all of my weight ...
- Rheumatoid Arthritis And Physical Therapy
  "Physical therapists, also known as physiotherapists, comprehensively assess RA patients in an ongoing manner. The evaluation of each patient includes an examination of affected joint flexibility, bony alignment/joint deformity, muscle strength, endurance, mobility, ambulatory status, and the ability to perform activities of daily living. It can be a delicate balance to enhance mobility and strength without fatiguing the patient or ...
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