It’s hard to recall when I was first diagnosed because it was over 10 years ago, but there are a few things that do stick out in my memory. It all started when I was in 6th grade and had a very swollen knee. It was painful and I couldn’t bend it. I remember limping around. As a dancer, my family just figured there are plenty of ways I could have injured my knee. When the swelling went down and I woke up with giant, swollen hands, my mother (an RN) knew something was wrong. When we arrived at the pediatrician’s office I knew it was something serious by how frantic the doctor and staff were.
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