Poet and memoirist Meghan O’Rourke is devoting her time as a Radcliffe Fellow to a new book, “What’s Wrong with Me? The Mysteries of Chronic Illness” after a diagnosis last year of Lyme disease. “It’s not a medical book, but it is trying to bring together a literary and cultural story of disease and how we think about disease and the experience of disease with some portrait of the contemporary medical culture,” she said.
Today, the “Spotlight on Arthritis Superheroes” is directed on Rheumatoid Arthritis Guy.
RA Guy’s rheumatoid arthritis started when he was in his 20’s. His heels were in pain and his knees creaked. In the winter time, his RA symptoms became worse. In his 30’s, his pain never went away and he was unable to use his knees. Finally, after many visits to a doctor, he came across a rheumatologist who confirmed that he had rheumatoid arthritis.
Join RA Guy as he shares his ups and downs and continues his journey through chronic pain and debilitating inflammation. Our favourite part about his blogs is that he uses humor to shed light onto matters that others may consider serious.
Thanks to the hundreds of people who suggested a name for my cane. (You can see all of the wonderful ideas here and here.) I have created a short list of my favorites, and would like you–my friends and supporters–to make the final decision!
Update: The winning name is Eileen-as in I lean! Thanks to everyone who took part in the Name My Cane contest–it was a lot of fun, and I now have a great story to share whenever someone asks why my cane is named Eileen.
Don’t forget, when it comes to stuff like having to use canes, crutches, or any other assistive device, be sure to have as much fun as you possible can!
This film features young people discussing what it’s really like to have an ‘older person’s illness’ at such a young age and the impact that it has on their everyday lives.
The young people talk very openly and honestly about some very sensitive and difficult issues, including coping with treatments, hidden disability and their experience of being a long term patient.
At Arthritis Care, we believe that people with arthritis need much more than well-meaning sympathy. They, and their families and friends, need support, understanding, information and expertise, so that they can cope better and get the most out of life.
That’s exactly what our organisation does, through a wide range of services designed to improve life for everyone with arthritis.
If you are affected by arthritis we can support you through our helplines and self-management courses; our information and booklets; our local groups; and our campaigns to change attitudes and improve services.
People with arthritis are central to everything we do, and are involved at every level of the organisation. We need your support to represent people with arthritis, and to maintain and develop our services. You can beinvolved as a member, a donor, a subscriber or a volunteer. Your support is vital.
Arthritis Care works on behalf of over 700,000 people in Scotland who are affected by arthritis. It provides services and support for people with all types of arthritis, their families, and those who work with them.
More Information: http://www.arthritiscarescotland.org/
- Harvard Gazette: A Journey Into IllnessJanuary 12, 2015 - 4:19 pm
- Health.com: 11 Famous People With RAOctober 1, 2014 - 9:50 am
- Arthritis Broadcast Network: Spotlight On Arthritis SuperheroesSeptember 10, 2014 - 7:34 pm
- The New York Times: Actress, Artist, Sometimes Both At OnceMay 20, 2014 - 10:29 am
- The Columbian: Arthritis Not stopping 20-Year-Old Nursing StudentApril 15, 2014 - 3:25 pm