“When you live with a chronic illness for any length of time, you become an expert in what it does to your body and your life. You know what you can do, what other people can safely do to you and most definitely, you become an expert in what shouldn’t be done. When a medical kind of person treats someone who has a chronic illness it is beyond essential to approach it knowing that they are dealing with that person’s reality. Not the medical person’s version of their reality, not what they accumulated through books or practice about what Chronic Illness A or B usually does to a body and most definitely not ignoring expressly stated instructions.”
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