Salisbury woman writes book to honor her mother’s battle with rheumatoid arthritis
Carla Jones yearns for those conversations with her mom. Those moments when she could bare her soul and know that she was being understood.
That was one of Celia Veno’s gifts. She had the ability to listen keenly and empathize.
“No matter what you told her,” Jones says, “you felt validated.”
When Veno died from complications associated with rheumatoid arthritis at age 74, Jones felt compelled to understand and tell her mother’s story. It was the only way to deal with her void. The result is an e-book in which Jones pays tribute to her mother and warns others about the dangers of a disease that affects more than 1.3 million Americans, most of whom are women.
It is not considered a fatal disease, but its complications can make the body susceptible to conditions that can cause a person’s death. In Veno’s case, the disease eroded the vertebra of her cervical spine. This deterioration resulted in spinal cord syndrome, which was the catalyst to her death
More than a million Americans suffer from rheumatoid arthritis. The numbers of deaths from this disease continues to climb each year. Late diagnosis and treatment for arthritis related, cervical spine deterioration, is one reason for some of these deaths. Celia Veno, a Bucks County retired woman and mother was one of those fatalities.
Celia Veno, a woman in her 70’s, began, experiencing mysterious migraine-like headaches and atrophy. After her general doctor and neurologist failed to determine the cause of these symptoms, a new rheumatologist was called upon. He immediately diagnosed from a previous cervical spine x-ray, that she had advanced spinal cord syndrome. Unfortunately, the findings came critically late. She died two months later.
Eighty-six percent of people with rheumatoid arthritis have the disease in their neck. (cervical spine). “Death by Rheumatoid Arthritis”, lists signs and symptoms of spinal instability, due to advancement of the disease.
Carla Jones is dedicated to bringing awareness to the undisputed fact, that anyone can die from complications related to rheumatoid arthritis, and to promote early detection of cervical collar damage, for those with the disease.