It’s been a rough week, but somehow I am still moving forward.
Even though the list of things that aren’t working quite like I might want them to continues to grow (my hips are locking up, my eyes constantly burn, my left knee is grinding, my hands are increasingly being pulled out of shape, my thigh muscles are a mess, and the list goes on and on), I find myself turning to what has helped me so much during previous crisis moments: focus on what is going right in my life. And just as easily, I find myself building another mental list; a list that motivates me to keep moving forward, no matter what is happening to my body.
For example, I have lost five pounds in the past two weeks. I continue to do fifteen minutes of gentle stretching and range-of-motion exercises, exercises that have already shown great results when it comes to problems in my shoulders, upper arms, and back. I am surrounded by supportive and caring people, both in my real life and in my online activities. I, along with a great team of directors, are in the midst of strategic planning for Show Us Your Hands!…and given the opportunity and the time, I could continue to add an infinite number of items to this list of things that are going right.
That said, dealing with a flare of this nature is still very challenging; so much so that even though I have no doubt that I will continue to get through each new day, I am feeling worn down. Like those of us who live with this know all too well, there is a certain point where no amount of rest will fully re-charge our batteries…we just have to learn to continue to make the best with what we’re given at any moment in time, whether is comes to the amount of energy we have or how much we are (or are not) able to move our bodies.
Yesterday afternoon, I started feeling somewhat startled. Over the past couple of years I’m never had much of an issue when it comes to connecting to the inspiration that resides within me. Now that I continue to face challenges that are both known (in what they are) and unknown (in their severity), I’m starting to find the exact opposite to be true…and while I know I need to allow myself the opportunity to experience this wide range of emotions, I also know that I cannot allow myself to enter into a backward slide towards the darkness, and towards the depression.
I found myself returning to my trusty three-point plan; a plan whose power belies its simplicity.
1. Accept everything exactly as it is right now.
2. Figure out where I want to be, and what I want to change.
3. Do *everything* possible within my control to get there.
And yesterday, at least, step three meant finding an outside story of support and inspiration that I could use to re-build some of those internal feeling that were starting to slip away.
One friend recommended Flying Without Wings: Personal Reflections on Being Disabled by Arnold Beisser. (Unfortunately this book is only available in print format, which means it will be some time before I can get my hands on it.) Another friend recommended Strong at the Broken Places: Voices of Illness, a Chorus of Hope by Richard M. Cohen. My search soon led me to another book by Mr. Cohen, Blindsided: Lifting a Life Above Illness: A Reluctant Memoir. I decided I would start there. (As an added bonus, this book is available in audio format!)
One of the most frequently received comments that I receive from readers of this blog is this: “When I read your words it feels like I am reading my own thoughts.” As I started listening to “Blindsided” yesterday afternoon, while sitting in the back of a taxi on my way to physical therapy, I could not help from thinking the exact same thing.
“I am not just a collection of muscles and nerves, the wiring that has short-circuited my dreams. Who I am, my very identity rests in my head. It is from that fortress, my command post, that my being takes shape. Citizens of sickness, those who suffer from their own assaults on body and spirit, know disappointment. Ours is a common siege. The battle to control our heads is every bit as important as combating the attacks on our bodies.
The psychological war with illness is fought on two fronts, on the battlefield of the mind and in the depths of the heart. Emotional strength must be learned. I am a better person for that struggle. Attitude is a weapon of choice, endlessly worked. The positive impulse must struggle to survive in a troubled mind. I skirmish with myself, in an effort to shield my eyes from the harsh sight of the diminished person I believe I see looking from the mirror.
Self-pity is poison. There is no time. I need a future and refuse to become a victim. Too often we become oblivious to our own prisons, taking the bars and high walls for granted. Sometimes we construct them ourselves, and the barbed wire goes up even higher. Too many of the limitations placed on us are an extension of our own timidity.”
In light of a disconcerting trend that I have noticed over the past few months, where some individuals feel the need to attack others (including myself) for choosing coping methods that are different from the ones they themselves use–an attitude that was clearly demonstrated in a message that I shared on my Facebook page last night–I found the next paragraph to be particularly poignant.
“…this book is not about sickness, but about the search for emotional health. This is not the answer, but only an answer. Coping is a personal art. There is no element of science in coping, no formula or objective standard for measuring proficiency. Coping is measured against only how you want to live and what you think works.”
Here’s hoping for the best of success for each and every one of us, when it comes to coping with the challenges that chronic illnesses introduces into our lives. Here’s hoping that we all continue to learn and grow, not only as individuals, but also as the wonderfully supportive community that we are.
Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
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Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
Yesterday I was reminded that even though my rheumatoid arthritis is in fact progressing, chances are that with the positive mindset and coping skills that I have developed over the past few years, it probably has not advanced as much as it might have otherwise done so.
I really liked this perspective. Usually, when we enter the unknown or the unquantifiable, I think we often have a tendency to adopt the worst-case scenario. The same thing often happens when we look at some of the more tangible aspects. Hence, “my RA is getting worse” instead of “my RA is not getting as bad was it could, it I weren’t making such a concerted effort to manage my efforts, get lots of rest, and follow-up with all of my medical appointments, no matter how tired or fatigued I might be at any point in time.”
During an office visit a few weeks ago, my rheumatologist started telling my partner what a great patient I was, thus invoking a certain amount of shyness and red cheeks on my part. My doctor mentioned how me surrounding myself with so many positive and supportive people via my blog and Facebook page, and how my continued efforts with Show Us Your Hands!, have given me a hopeful outlook on life–an outlook that is certainly not in the majority, when it comes to the chronic illness patients that he works with on a daily basis.
My rheumatologist then turned to me and said, “because the truth of the matter is that no matter how much I try to help you (and that was a specific you, not a general you), the one thing that is always going to help you the most is that mind of yours.”
This isn’t to say that both my doctor and I aren’t determined to find the medical option that provides me the most relief, and it wasn’t meant to imply that my disease is more psychological than physical. We also were not saying that my thoughts are going to magically fix what is going on with my body. His words were putting a voice to the one thought that has gotten me through (and continues to get me through) the absolute most challenging moments, which is: the mind is a powerful tool, and I *must* use it to my advantage.
So as I got absolutely thrashed last evening, with a flare that would be off of all my previous charts, I was pleasantly surprised with how I was not only totally aware of my thought process, but I actually managed to remain in control it…even as I continued to experience pain and emotions that were completely new to me.
As my body started to shut down, and as my entire world shrunk down to the six feet between the top of my head and the tip of my toes, my thought process went just like this:
I know exactly what is going on, and I know exactly what will happen over the next hour or two.
Everything is going to be okay. (Which quickly got rewritten to: Everything is okay.)
This is me. This is my body.
My mind tried to go back to some of its old tricks. An inside/outside voice started to tell me that my body was in too much pain and that I needed to find a way to escape my body.
I countered this immediately. I told myself that trying to run away from the pain would not help my situation any. I told myself that I would turn into, and embrace my pain…a pain completely unlike anything I had ever experienced before.
I found a point of equilibrium, a point where even though I had lost almost full use of my entire body, I was at peace.
And as if that wasn’t a big enough payoff, I then heard a voice telling me:
If you can embrace this level of pain, there will never be another level of pain that you will not be able to embrace.
This, I am pleased to share, is how I managed to emerge from my most challenging flare yet (oh, how many times have I said those words!?) feeling not weakened, but instead feeling more empowered than ever before.
Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
Based on the following list of items that have been submitted by readers of this blog, no one can doubt that we are a powerful group of superheroes!
Finding peace and happiness despite the physical issues. Living with RA. Writing this blog. Ability to smile through it and enjoy the moments. Design. Living with RA all by myself. A woman learning to appreciate who she is, and much much more. Photography. Traveling the world. Ride off-road motorcycles. Living with RA-but not suffering from it. Putting a smile on people’s faces. Cooking. DRAMA MAMA. Approaching my health issues with a positive outlook. Enjoying one day at a time. Does not try to let RA stop her from joining in on everything that life throws at me. Informing the world of the wonders of homeschooling two children. Knowing what I can and can not do. More are added everyday as I realize what my mind and body are capable of! Organizing this league of superheroes. Fighting the evil forces of RA medication free. Trying to get my pre RA fitness back! Super Mom. Dealing with bent fingers. Running a home. Learning how to deal. I love my life, R.A. or not. I have a positive attitude & freely share it. Speaks Japanese. Baking cookies. Blogger wannabe. Making my life count for something more than RA, OA and being old. Staying chipper despite wanting to go back to bed. Super Daughter. Dispenser of ((((HUGS)))). Random thoughts. On this new quest to conquer RA. Supporting the work of contemporary artists in a capitalist world. Cheerleader. A wife (pretty amazing one too if you ask me). On a mission to control RA and not to let RA control me. Takes care of disabled husband. Tough broad that doesn’t let anything get her down! Baking. Loves to cook and to can Salsas. Encourager, cheerleader, shoulder to lean on for young people with arthritis and RA. Being a comic strip character. Writing a blog/column. Care, love & keep up with my husband who started this journey with me only a few months after we married. Stopping the painkillers before I get addicted. Mom of 2 (1 preteen boy and 1 teenage GIRL). Ability to always make my daughter laugh and smile despite what my body feels like. Nurse by profession, medical researcher by necessity. Counting my blessings and staying positive on this unexpected journey with many rocky roads and steep hills to climb. I can take super naps!! Recent subscriber of “Arthritis Today” which I thought was for “old” people. Super Hyper-Hyperactivity (can clean house, cook food, care for children all without succumbing to the dreaded Uber Fatigue). Writing a blog. We are survivors of many thing including ails and pains. Super Wife. ‘Multi media artist’ (ok, I have ADD…I do a little of this, a little of that…). Crafting. Mom to 2 grown boys and 3 felines. Staying Positive. Wonderful kids and grandkids! Blogging about the ups and downs of RA and alternative medicine among many other things. Good Listener. I live with and care for my autistic brother. Spreading the word about good blogs. Crochet. Independence is a state of mind, not a list of tasks to be completed. Being a dad of a 12, 6, and 5 y/o. I’m also glad to be an advocate and voice for people with invisible disease to people of my age group. Single mom of three superkids who manages to juggle soccer hockey baseball and golf schedules around flares, infusions and therapy. Wife of 26 years. More of my powers are realized each and every day. Super Strength (can amazingly hold 2 toddlers during a flare of Lupus and Fibro pain). Loving two puppies. Just trying to get my body back in fighting order so I can finish college. Supporting my 60 year old mum who has a brand new RA diagnosis. Continued service while working as a firefighter. Making it through each day with RA, Fibromyalgia, Grave’s Disease, and Sjogren’s syndrome while working full time. Loving life. It’s a challenge that is worth fighting! Gardener. Excellent wife and mom and learning to be an excellent nana. Student. Wife. Listener for the older crowd who have arthritis and RA. Writing. Always good for a few laughs. Losing weight, despite the Prednisolone. Knitting. Wife of 10 years (!). Spreading the word about my arch nemesis…the disease of Rheumatoid Arthritis! Raised a daughter. Living with RA and Fibro. I can make anyone laugh!! Cooks, cleans, shops, gardens, and is a freelance writer and editor. Patient. I love to sew and read books. CABG X6 survivor! Living a full, active, happy life with RA, scoliosis and cardiomyopathy. Lots of hugs to give. Swimmer (lapsed). Laughing at the absurd. Cheerleader. Mom to 2 dogs, 2 cats, an assorted bunch of fish and any stray that happens our way. Distraction. Mom of a fabulous daughter with Down Syndrome who will always live with me! Having a wonderful husband. Loves to explore new cities. Restoring order in the kingdom is the primary objective of my “job”– disabled stay at home mom/taxi driver…hehe. Knowledge is POWER! Traveler on the RA journey, meeting new superheroes every day. Husband of 40 years. Learning how to accept RA. Became Autoimmune Girl my freshman year of college and most recently leveled up to FM Girl. Wife to one full time construction worker/college student. Nurse (lapsed). Good mother. Musician. MOPS steering team. Concentrating on the many joys and blessings in my life. Have more hobbies than there are hours in the day. Taking care of our 5 pets and a husband! Good company. Mother of two grown children. Disabled nurse. Mother to my three boys. Balancing life after college, my new career, a boyfriend, friendships, and family – all while maintaining the millennial pace. Coupon shopping queen. Photography as a hobby & stress reliever. Dancer. Studying in the week. Managing pain through meditation. Open to trying every unconventional RA treatment under the sun. I work a 12 hour shift 4 days a week as a pressman (printing). Reffing roller derby when I can. 2 kiddies under 3 (who understand that sometimes Mumma can’t wrestle!) Working full time in sales & marketing. Running a home. I have a very large vegetable garden which brings me peace & self-worth. Work long hours in a warehouse pulling orders. Photography. Mother of three college age boys. I can read, write and speak Spanish. Owner of two titanium shoulders, with cadaver bone grafts, one fused wrist with metal rods, one foot with screws, the other foot-soon to be fused. Super Grandma. Homeschooling my kids. Daughter of Diabetes Gal and niece to her sister, RA/FM Gal. Accepting RA as a part of who I am. Workout 4 days a week. Supersonic hearing (Can hear any of her 3 children turn over in bed across a house). Care, love & keep up with my 2 Doberman Pinschers. Staying positive and happy is the best medicine! Working full-time as a nurse. I am a wanna be blogger and an ultimate crafter. Sabbath School teacher. Knitter. Being a good wife, friend and daughter! Working as much as I can. Mom of three boys. Living with RA. Cooking & baking. Being a PROUD military wife. Power four wheeler. Carrying on a semi-normal lifestyle while living with RA. Good enough mother and wife. Having a positive outlook on life. Multilingual. Good grandmother. Enjoy gardening, decorating and photography. Loving daughter. Working full time with children. Keeping my sidekick (hubby with fibro) on his toes. Mom to a 9 yr. old. Blogging. Momma to a wonderful furbaby. Living with ∞itis (RA, etc). Eternal student. Every superhero has a sidekick …right? My sidekick buddy that helps me is a Great Pyrenees with a mohawk named Frankie. Being a mom. Wonderful mom to 3 pom fur-kids. Take care of a 3.5 acre yard. Expert pinochle player. Great wife, mother, cook, clean, taxi driver, and fairy godmother. Keeping sane through a lot of uncertainty. Homeschool. Figuring which medical concoction works for now. Living with RA. Trying not to get fat. Gardening. Working full-time in the crazy hr/telecom world. Cat lover. Camping. Kissing my lovely husband. Epidemiologist (lapsed). Worked full time as a journalist. Good cook. Going back to work in January…to be a great nurse again. Have a great sense of humor when it comes to most things. Working to support myself and being a student is hard but my will is strong. Mom of 8 great kids. Ability to make it through the tough times. Cooking. A-1 wife. Spent 20+ years as a nurse practitioner treating folks with R.A. Quilter. Regularly uprooting myself and moving around the world. I love to read, swim, cook, bake, and take care of my home. EFL Teacher (just started full-time work again after a couple of years off). Wife. Learning how to deal. RA advocate. Working 12 hour shifts in the ER on my feet for 13 hours. Worrying…lots of worrying. Living with RA. Writing a blog. Living a God-centric lifestyle. Running a business from home. Great sense of humor. Continue the RA journey refusing to let it ruin my happy life. Licensed Ins Agent. Keeping track of 12 grandchildren. Working with service dog. Excellent wife. Blogging. Keeping sidekick (husband with heart problems and fibromyalgia) entertained. Disabled nurse. Mum to 3 year old girl and 8 month old boy. Living with RA away from home. Understanding kids. Making popcorn. Taking long drives with hubby. Fighting fatigue to keep going. Refusing extra painkillers. Working my butt off and hopefully getting my phd. Dog walker (sometimes). Smiling in the face of adversity. Enjoying what I have. Taking care of family, husband and 2 daughters. Appreciates the gifts that the world offers each day to those who take the time to look. Trying to adjust to freelancing as a graphic designer and photographer. Working at Target. Running a small business full time. Educating people that disability is not something to be scared of! High tolerance toward pain. Mother of two active boys (10 & 8). Juggling a Uni degree with “aunty candi” duties and the prospect of joint replacement whilst keeping a smile on my face. Drawing. No human partner, but living with her 3 Superhero Cats (Spider, Lugosi & Ruby) who she finds tolerate her chronic illness so much better than any human that she has met. All sorts of needle-crafts. Getting up and going to work each day. Killing zombies. Loves music and photography. Living with (mild) RA. A law school graduate. Getting dressed, bathing and walking without assistance. My ability to mind surf as I can’t physically , YET. Being married. Embroidery. Toughing out life without medication so we can get preggers. Feeling pretty well and praying to stay that way. Full-time college student at a university. Photography. Educating people that not all people with Arthritis have Rheumatoid… ahem …anyways. Loving my husband. Pink Energy that allows me to go back to school. Work as a consultant. Continue walking on the beach. Spending quality time with my family. Using a supercool electric toothbrush, because a regular one hurts to hold. Positive Thinking. Feline & other animal communications. Works from home as a web & graphic designer. Defying stupid RA-beating suggestions from well-meaning friends with a single squawk. Surviving 2 hip replacements. Working full time. Into Goth/Metal/Rock music. Getting on with life. Painting. Sitting at home while my friends go out and party/shop/be normal, continue living my life when I just want to amputate my body from my head and put it on Jessica Alba’s body. Smiling through that Enbrel sting. Learning about myself through travel and introspection. Having a dead guy (cadaver bone) in my ‘boo boo’ arm. Would be
marathon walker. Hobby (and sometimes paid) photographer (has a couple of photography websites to show off her pictures). Living with RA. College Student. Fatigue fighting and staying healthy are two Superhero Powers that I need work on. Close relationships with several amazing doctors/friends! Writing my blog. Chilling with friends. Research, research and more research, saving the world one germ at a time (in the military). Employing Personal Assistants. Being just a little odd… being perpetually young at heart. Working as a waiter in the weekend with my colleague RA. Only taking otc drugs. Watcher of Star Trek, especially Voyager. Do talks about RA to medical students and generally try to raise awareness. Being married. Believing that I can. Making sure that everyone I know knows about RA and knows that WE can. Keeping weight on this body and running when my right foot will allow it! Mother of two gorgeous and brilliant children (boy – 13, girl – 12) and one 3 year old Yorkie who sits on my lap and comforts me on my bad days. Being. Abandoning walking stick…not knowing how long it’ll last. Photography. Crochet. Working full time and being a waterman! Enjoying every single day as you never know what life will bring. Complete and utter geek lover of computers and video games. Working full time. Loving husband. Convincing NHS that I need anti-TNF therapy. Getting anti-TNF therapy and have it revolutionize my physical. I’m a teenager living life to the fullest; no matter what my disease sends my way. Artist and writer, even on days when my hands hurt almost too badly to pick up a pencil. Part-time feline management (three cats, one wonderful hubby who job-shares on the cat front). Living with RA (mild to moderate these days). Working for the Government. Cooking. Smiling, having fun and simply being fabulous…no matter what!! Big/little sister, and soon-to-be aunt. I’ve overcome my fear of needles with Enbrel. Raising awareness about all types of arthritis. Crafting. Being crazy I love to make folks laugh and smile as it’s a great medicine. Taking care of my family. Teaching. Having a bionic knee, hip, screws in feet, waiting on new shoulders and knuckles. Being a mom. Being a scientist. My cat Rosie. Start dancing again. Pouring from a gallon of milk, by using the edge of a table or countertop. Great sense of humour. Fighting fatigue. Getting out of bed in the AM. Taking one day at a time. Ability to make a pun about just about anything (it’s called Pununciation Disorder); love my friends and family, still working (though wish it wasn’t so hard to wake up in the mornings), love my crazy cat Willow, and wish that I had the time and energy to write that novel that’s been banging around in my head for years. One titanium knuckle, every limb decorated with delightful scarring from operations to straighten and fix limbs/joints, awaiting my first hip replacement. I am also a superhero because I survived two burst brain aneurysms 4 years ago – with no damage, unlike the RA. So hoorah for all of our superhero powers! Academics (I want to be a rheumatologist), staying happy through everything (including giving up sports), taking painful Humira shots, and loving life. Invisibility and positivity cloak; a more than full time exec at a fortune 500 that keeps a smile on her face and can find the silver lining in any situation; spurred on by the faces and love of two small grandchildren that remind me of what really matters in life – staying strong and positive so I can enjoy them for years to come Former attorney practicing in the toughest area of law there is…family and matrimonial law. Currently a college professor corrupting young legal minds at an undergraduate college. Loving wife to the world’s greatest husband/caregiver and mom to the world’s coolest dog. Upbeat and nearly always smiling and happy. Work full-time and love it. I have 3 fabulous grandchildren who love me to bits and are my very heart and soul. RA will not take that away from me! Communicating how I’m feeling and what I’m going through to the people in my life, without guilt. Not being afraid to tell my non-loved ones (co-workers, acquaintances) that I have RA, and explaining what it is so that they might better understand me. Living with RA. Working full time. Loving my baby sister “Hermanita” (Spanish version of “Sis” – pronounced like air-mon-eat-ah). Learning to speak Spanish. Gardening (when I can). Taking care of my 1 and 3 year old boys and a husband with massive heart problems. Learning how RA works and fighting it in my mind and body. Learning to live with RA, Positive thinking, Telling people about RA, Loving life, My pets, Finding the right treatment so I can go back to work, My very understanding partner and friends, My walking stick and wheelchair. Living with RA, coping with non-understanding people around me, helping others, hoping. Living with Fibromyalgia, RA, IBS, CFS, and anemia, working as a full-time high school English teacher and a mother of 6 children, coping with people who lack understanding about the degree of my pain and how debilitating it can be at times, helping others, and thinking positively. Ultra runner turned weightlifter when possible – even if the weights have to be strapped on when the grip strength isn’t there! Martial artist who’s figuring out how to practice from an occasional wheelchair. It’s cane-fu. Super powers of patience recently learned, mainly used to explain RA. New powers also include the ability to work full time whilst really just wanting a job in a sleep lab. Learning to live with RA and my new “needs”. Learning that medication is a “need” now. No more missed doses. Learning to make exercise a “need” now. The wrong kind does do harm. Learning to eat specific foods is a “need” now. Learning that I “need” help in that catagory. Learning I need help with not being so afraid of the future RA has for me. Learning to live with pain. Loving my active life in spite of this stupid disease. Counting my blessings and thanking God for each and every day. Living with pain and major fatigue. Having patience with the people around me trying to understand my disease, Learning my new limitations and learning how to not let them limit me! Loving life in so much pain, patience with understanding and explaining RA, self-forgiveness when I have to do less than I’d like, laughing, laughing, laughing! Playing guitar, writing songs I sing only for me and close friends and family, teaching 2nd grade at an international private school in the Middle East, having the energy to wake up at 5AM every morning to teach 22 needy 7 year-olds life-long learning skills, writing a blog about my travels and experiences abroad. Living with RA, Psoriasis & Fibromyalgia. I love to paint with acrylics and enjoy photography. And adore my grandson who’s 2 and brightens my day more than anything else can. Learning to except that I may not be able to work much longer and trying to figure out what will I do if disability don’t kick in quick enough. One thing for sure, the pain reminds me that I’m very much ALIVE. Counting my BLESSINGS. Wonderwoman Nana of 6 incredible grandchildren whom I adore, proud mother of 2 fantastic grownup children, Flea Market junkie, treasure hunting at thrift store maniac, collector extraordinaire, techno freak, lover of learning, Facebook fanatic finding old friends galore and Farmvilling myself to death, avid reader and online searcher for RA information and waiting for THE CURE! Most of my RA days are not so bad at all, taking MTX and occasionally prednisone for flare ups, ignoring any pain until it gets too bad to ignore any longer, going on about my life as best I can, keeping my glass half full rather than half empty, looking forward to warm weather. I have been working in education for a number of years until I lost my most recent position at a college via the underground, beaurocratic railroad I didn’t know existed until then. Finished a Master’s Degree in educational technology in May 2010 in an attempt to find a better paying job which has been elusive since my graduation. Mommy to the best kid ever, Ability to escape death-defying medical crisis, Making broke-down and pathetic look good since 1999. Still working as PR director for a national hospital company and traveling as much as possible with my wonderful hubby. Teaching at a small liberal arts college and not missing one day of work. Sign Language interpreter working with deaf students in grades K-12, also interpreting for the Deaf at church and in various settings. My husband is Deaf and I have a son getting ready to graduate from High School and go into the Marines. Being on swim team and color guard even though the doctors said I wouldn’t be able to, being able to get through weekly methotrexate treatments, and getting through a solid 7 year flare with no remissions or breaks. Having the smarts to get to a MD pdq, When I hear the tornado coming! Didn’t do that one time, woke up in ICU with a intubation tube in my throat. I had been there three days, after an overdose of sleeping pills. I am sorry, and I’ll never do it again, but I never thought I’d do it the first time. I found a great psychiatrist that helped me understand the chemical changes in the brain when you have chronic disease, I am on Meds, and I do call her immediately, if I feel out of control at all. Sooo, I guess using the phone is my super power!!! Living with r.a. and it’s deformities, fatigue, taking care of my family (3 kiddos), baking:), cooking, managing to exercise and eat right (even though I love my sweets:)) Still wishing I could make some people understand some days I just can’t do as much as I’d like. Patience, patience, patience. I’ve been living with the deformities and the fatigue for years but i don’t let it stop me…I’m a single mom of two beautiful kids and a nurse and I will continue to fight this illness with all have for as long as I can. Finding the strength to entertain my 9 month old baby brother. Trying to stay positive. NOT laying in bed all the time even though I am so tired. Getting through the day without sleep. Being able to continue my day even though I could scream from the pain. I am unbreakable . Resilience, and managing to look ok despite being wonky and slightly deformed! Loving all creatures big and small. Being absurdly and at times, annoyingly positive. Making fun of bad situations. Seeing the potential joy in every day. Painfully working 25 hours every week while caring for a large family. Enjoying Life, Laughing, Loving. Wife, mother, grandmother; working 20 hours a week as a fundraiser for a non-profit; trying to accept that I cannot do what I used to do BUT can still do a lot and thankful for that. Blessed with a wonderful family, great friends and a very supportive church family. The feat of doing things that have become difficult and somehow managing most of the time. I am also an avid crafter. Scrapbooking, cross stitching, etc. Just went through having my right foot completely re constructed. Hopefully in a month I am waling again and not on wheels! Wrists, shoulders, knees, feet, ankles, and any other joint that decides to join the battle! Mom to two, heartbreaker to many. Professional swearing machine, and people watcher. I can twitter faster than the speed of light, I make a better BBQ than Bobby Flay, My mom powers rival that of June Cleaver, I swear better than any trucker I know and my pop culture knowledge is mind-bending. Being a WSU alumni (GO COUGS!), enjoying the beautiful Pacific Northwest, and getting a one up on my disease instead of the other way around! Prayer, Family and Friends that care, Love, Cooking, never believing in the word “incurable”. Not letting it drag you down. Hacer feliz a mi familia, jugar sin importar nada más, sonreir siempre, hablar sin parar, mirar en lo profundo del alma de las personas, dar abrazos que te dan profunda paz y te alegran el corazón. Dad, husband, writer, translator, belief in exercise, wish the Force could be used to banish RA… Mum, wife, friend jewelry maker, Fab Xbox gamer, love of family, friends and nature. Loving & accepting what I have (except RA!). Love of learning, especially (now) RA. Also, sharing what I learn through blogging and teaching. Learning to accept the present moment. Kicking RA’s a$$, mom, wife, lover of corgis, teacher of English to 13 year olds. Being in remission (kind of). Love to learn, traveling with ra, blogging, Mom, Wife, Gramma, Auntie, believing that the glass is always half full and laughter truly is the best medicine. Teaching high school, coaching soccer, working out to keep active, running on very little sleep, laughing a lot. Living life to the fullest, having a sense of humor, beach bum, and lover of animals. “Denial” it gets me through some days, having a warped sense of humor, loving and living life to the fullest. “Steriod Strength”……just like Popeye and his spinach, when I take my Prednisone I am invincible. You combine those with all my pain pills….MOVE OVER Superman. Unless I am fighting my nemesis “Sir Flash Flare”, I am down for the count and the battle is over. Live,Love and definitely laugh…I have RA, RA does NOT have me! I have a life to live regardless of the pain, Single momma of two beautiful boys, full-time employee for a preschool! Wife, mother, mema and sister. Get up every day no matter how hard it is and make the best of my day. Try to spread the truth about autoimmune diseases….now if I could just get people to listen!!! And helping my daughter and son in law run our very fun dog business. Mom to 2 cats, studying to be a teacher, currently web developer. It’s my hope to one day work with superheroes of all different sorts at the elementary level. Working, writing horrific gore and sci-fi, photography, organic gardening, dressing up as movie characters and supervillains (!) to scare people for charity.
Do you want to add your own superhero powers to this list? You can do so by adding your name to the Superhero Wall Of Fame!
Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
- People Magazine: Megan Park: Living With Rheumatoid Arthritis Has Made Me ‘More Empathetic’ As An ActorJune 5, 2015 - 10:30 am
- Accepting Chronic Pain: Is it Necessary?March 27, 2015 - 9:09 am
- Harvard Gazette: A Journey Into IllnessJanuary 12, 2015 - 4:19 pm
- Health.com: 11 Famous People With RAOctober 1, 2014 - 9:50 am
- Arthritis Broadcast Network: Spotlight On Arthritis SuperheroesSeptember 10, 2014 - 7:34 pm