Wheelchair bound woman speaks on MSNBC after being heckled at Pallone Healthcare Town Hall
I have just two words for you, Marianne: You rocked!!!
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Trapped In A Box, No Longer
Last night, I had one of my longest cries in a long time. On Monday of this week, I called my doctor because my rheumatoid arthritis continues to worsen, even though two weeks ago we upped all of my medications and added a one-month Prednisone boost. One of the worst feelings in the world--even though I know that these meds often ...Knock Me Down, Pick Me Up
After a couple of relatively symptom-free weeks, my rhuematoid arthritis is once again knocking me down. Today I didn't get out of bed until around 1:00 p.m. Even then, I did't much get past first gear...although I am proud to say that even as my day passed by in slow-motion, I was able to make it into the kitchen to ...Cheers To Quality Of Life!
"Quality of Life (QoL) is a phrase used to refer to an individual’s total wellbeing. This includes all emotional, social, and physical aspects of the individual’s life. However, when the phrase is used in reference to medicine and healthcare as Health Related Quality of Life (HRQoL), it refers to how the individual’s wellbeing may be impacted over time by a ...How My Pain And Disability Improved My Life
Nine years ago tomorrow--on the day that I turned 30--I submitted a letter of resignation to my manager. My roaring twenties were over, and I could not be happier. By all practical purposes, the previous decade had been filled with many different successes: I graduated from Columbia, I graduated from Harvard, and only a few years later, I was earning ...Through The Looking Glass
I used to think that accepting the reality of my rheumatoid arthritis meant that I would be giving in to this disease. As long as I grabbed on to the life that I wanted (thus avoiding what was obviously becoming the life that I had), I figured that I would be okay. For a while this actually seemed to work, and ...My Own Personal Serenity Prayer
I had big plans for this morning. First, I was supposed to wake up early to take my dog Alva to the vet, so that we could check her blood sugar levels. Then, later in the morning we were going to do some shopping, followed by lunch at whatever restaurant happened to be in the vicinity of wherever we found ...The Importance Of Having Confidence In Our Decisions
Many readers know that, for almost the past year, I have been treating my rheumatoid arthritis without medications. Some people have interpreted this as me saying that I'm not doing anything for my RA, something which could not be further from the truth. During this past year, I attended physical therapy on a 2x or 3x weekly basis, I successfully incorporated ...Cleanup In Aisle 7, Please
Yesterday morning, I started my Friday in my usual way: I left my house at 10:00 am, in order to go to physical therapy. (I rarely ever make commitments before lunchtime, but I will make an exception for PT.) During my session, we did some of our regular therapies: heat, ultrasound, and electrotherapy. I was a little surprised that toward the ...What Is A Rheumatoid Arthritis Flare?
This is a rheumatoid arthritis flare: January 16, 2011 I woke up crying today. It used to be that I could alleviate some of the pain by staying still…but today, the exact opposite seems to hold true. It hurts to sit down. It hurts to stand up. It hurts to lay down. Pressing my forearms down on a tabletop, placing all of my weight ...Rheumatoid Arthritis And Physical Therapy
"Physical therapists, also known as physiotherapists, comprehensively assess RA patients in an ongoing manner. The evaluation of each patient includes an examination of affected joint flexibility, bony alignment/joint deformity, muscle strength, endurance, mobility, ambulatory status, and the ability to perform activities of daily living. It can be a delicate balance to enhance mobility and strength without fatiguing the patient or ...
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Absolutely!!!
Yes, Marianne you rocked.
RaGuy thanks for posting this.
Marianne has informed me she would like a pink and yellow superhero cape. She rocks!
Mariane you are a true heroine. You were so brave and stood up to those rude, horrible people. Thanks for giving a voice to everyone who suffers with chronic illness.
Thank you RAGuy, and to all my friends from the RA, Fibromyalgia, Sjogrens and MS sites, and sick for profit site, who listened to my call for support, who nurtured me last night when I was scared of going on TV today, and I was having a bad flare. I didnt get to say much that I wanted to say, but my comments on healthcare were all for you. I will continue this fight for a not-for-profit public option and regulation of the pharmaceutical industry until it changes, or they drive me into poverty and make me homeless, whatever comes first. (and if that happens, I’m setting up my cardboard home in front of the White House, and you can all come take my picture!LOL)
I wouldnt have had the courage of doing anything like this if not for the example of RAGuy. Thank you so much, all of you. You are my sisters and brothers in chronic illness, and my sisters and brothers in true inspiration.
Marianne
Gentle hugs Marianne! THANK YOU!
way to go marianne! you were excellent!