Juvenile Rheumatoid Arthritis: The Biggest Superheroes Of Them All!

A Nation Unaware: We Need To Increase Juvenile Arthritis Awareness
by Ashley Boynes

“She’s just a hypochondriac.”

“He’s lying.”

“It’s all in their head. They just want attention.”

“You’re faking!”

“Oh, you’re too young for arthritis.”

These are all phrases that children and teens with juvenile arthritis will, unfortunately, come across many times during the course of their lives and their illness.

Even the adults that these kids look up to – parents, teachers, doctors – tend to lack the understanding and/or knowledge needed when dealing with a juvenile arthritis patient.

As a whole, the general public is still vastly unaware of juvenile arthritis, despite the work that JA advocates like myself and many countless others put in to increase awareness – and, despite the fact that it is the 6th most common childhood disease, affecting some 300,000 kids in the United States.

Read More: http://midatlanticarthritis.wordpress.com/2011/01/06/a-nation-unaware-we-need-to-increase-juvenile-arthritis-awareness-by-ashley-boynes/

JA Alliance

Juvenile arthritis (JA) refers to any form of arthritis or an arthritis-related condition that develops in children or teenagers who are less than 18 years of age.

Impact of Juvenile Arthritis:

  • Approximately 294,000 children under the age of 18 are affected by pediatric arthritis and rheumatologic conditions.
  • State prevalence numbers for pediatric arthritis and rheumatologic conditions are available in the “Prevalence of and Annual Ambulatory Health Care Visits for Pediatric Arthritis and Other Rheumatologic Conditions in the US in 2001-2004”.
  • Ambulatory care visits for pediatric arthritis and rheumatologic conditions averaged 827,000 annually.
  • Juvenile arthritis is one of the most common childhood diseases in the United States.
  • Arthritis and related conditions, such as juvenile arthritis, cost the U.S. economy nearly $128 billion per year in medical care and indirect expenses, including lost wages and productivity.

Read More: Arthritis Foundation: Juvenile Arthritis Fact Sheet

JRA Blogs

Jenna’s JRA & Uveitis
This is the story of Jenna. Diagnosed at four years old with Juvenile Rheumatoid Arthritis and Uveitis. This is her journey….
Read More: http://jennabeansjourney.blogspot.com/

Kids get arthritis too!
Jess was diagnosed with JRA (juivinile rhuemitude arthritis) when she was 18 months old, but has had it all her life. We created this blog to spread awarness about arthritis in children.
Read More: http://findacureforjra.blogspot.com/

Gavin’s Story! Living with Juvenile Arthritis…
Gavin was diagnosed with Juvenile Rheumatoid Arthritis when he was 21 months old. He also has Uveitis.
Read More: http://gavinsstorylivingwithja.blogspot.com/

Arthritis and Bruce
A year in the life of Bruce with Arthritis.
Read More: http://bjdarthritis.blogspot.com/

Our Journey with Juvenile Arthritis
I am setting up this blog so that friends and family members can follow our journey with JA [juvenile arthritis] Jackson was diagnosed in November of 2009.
Read More: http://thearmstrongjourneywithja.blogspot.com/

Brianna’s Journey with JRA
This is the journey of Brianna (who was diagnosed with Juvenile Rheumatoid Arthritis at the age of 16 months) and her Sisters & Brothers! For those of you who are following our journey please start reading from the bottom of the blog. This will bring you to the first day.
Read More: http://tonsoftoes.blogspot.com/

The Sloan Siblings JRA Journey
Many of our close friends and family often ask “how are the kids doing”? Most people do not understand what Juvenile Rheumatoid Arthritis (JRA) really is and how it deeply affects Jake, Hannah, and our entire family! Sometimes all I can do is walk away, hide my tears, and just pretend all is okay! We share this JRA Journey with you and hope you can pray for Jake and Hannah and the other 300,000 children who suffer from JRA.
Read More: http://thesloansiblings-myjraheros.blogspot.com/

Jackson’s Journey with Juvenile Rheumatoid Arthritis
A few months before Jackson’s 3rd birthday he was diagnoised with Pauciarticular Juvenile Rheumatoid Arthritis and Uveitis. Our lives would be forever changed and I could have never prepared for what we were about to go thru!
Read More: http://jacksonmpohl.blogspot.com/

My 9 yr old is an old lady that turns purple (& other fun stuff)
*Raising Awareness* My 9 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. Her skin also gets extra tight in places, called scleroderma. She can’t wear any shoes without socks unless the sides are open. Join us on our journey of learning, dealing and living with these issues.
Read More: http://deetipton.blogspot.com/

Chicken’s JRA Story
My name is Lana and I’m a loving wife to my husband, Matthew, and proud mother of two amazing children. My son, Daniel is 10 and our daughter, Sami is 6, and being the mother of my children has been tough but I wouldn’t change a second of it. Daniel has severe allergies and asthma and Sami has Juvenile Arthritis. And since I’m just now starting this blog I’m going to start from the beginning.
Read More: http://chickensjrastory.blogspot.com/

Jacob’s uveitis and JRA Journey
Jacob’s diagnosis of Juvenile Rheumatoid Arthritis at age 5 until present day. The everyday journey of living with a child that has a chronic illness.
Read More:
http://jacobsuveitisandjrajourney.blogspot.com/

We Shall Overcome
This is the story of a four-year-old girl who was diagnosed with juvenile rheumatoid arthritis (JRA) when she was 22 months old. This is her journey to complete and total health. This little girl is brave, fearless and an overcomer. She is my daughter, Mia, and I am so proud of her!
Read More: http://weshallovercome1215.blogspot.com/

One Day At A Time…
Hi, this blog was initially started to document my daughter’s trials and triumphs as she lives and copes with an auto immune disease, Juvenile Rheumatoid Arthritis. Although I often update on Ayla’s condition, this blog has become our “family blog” as well. Ayla was diagnosed at the age of 18 months old, she is now three and we are still fighting this battle.
Read More: http://lesli-onedayatatime.blogspot.com/

Abby’s JRA
At the beginning of the summer of 2008, we noticed that Abby would “walk funny” from time to time. We couldn’t really put our fingers on exactly what she was doing but we knew that it wasn’t right. She would only do it for a day or two and would be fine for a few weeks and then she would do it again.
Read More: http://abbys-jra.blogspot.com/

My Teeny Tiny Champion
I have decided to copy specific entries from my private blog in order to share my daughter’s story in a public but annonymous environment. Many people, even friends, have little idea what managing juvenile arthritis really involves. My hope is that the next time you meet a child with arthritis you are just a little more sensitive and don’t say, “isn’t that just growing pains?”
Read More: http://kidsgetarthritis2.blogspot.com/

8 Comments
8 comments
  1. Lene says:

    When I first started having symptoms of JRA, no one believed us, either. I don’t remember anyone saying that I was malingering (it’s been a while), but they did send my mother to a psychiatrist. It took five years for me to get diagnosed.

    That this is still happening today, 40 years later boggles my mind. Kids should not have to go through this.

  2. tracey says:

    my soon is 5 years old and just recently been diagnosed with JRA. some days he seems in alot of pain and others he doesn’t seem so bad. He still wants to be in school but i worry a hell of alot while he is there as his teachers don’t seem to understand. It was a big shock as i had never heard of it in childern so young before and at first i didn’t know what to do but seing my son just getting on with it gives me all the strength that i need. Just wish his teachers would understand.

  3. deborah says:

    Yesterday my 18 year old beautiful daughter was diagnosed with it. She has spent many years in pain and lost her energy fast. Then we got the results from an MRI and an X_ray, the told us she has the bones of a 65 year old woman.

  4. madison says:

    my name is madison and i had JRA since i was 4 i am ten now. people would make fun of me when i would walk up the stairs so i had to take the elevator i never wanted to go to school since. i was in remission for two years and then it just came back. but the people who have JRA have faith, i still do.

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