Real Profiles of Rheumatoid ArthritisPhotos © Tim
Coventry, United Kingdom
How long have you lived with RA?
What advice would you give to someone who has just been diagnosed with RA?
Never let it get you down, I always find my mood and pain are somehow inter-related, so stiff upper lip as it were! Be pro-active and set yourself goals to work towards, discuss the right medications with for you with a specialist, see a nutritionist or get food allergy tests. For example 10 years ago I had things like ‘be able to open a soda bottle or car door’ now it’s things like ’2 years to train for a 32km run and about the same time to become a Jiu Jitsu instructor.’ Once one target is met, you can set a new target and although for some people the limit may be much more than mine, I would hope for someone that is freshly diagnosed with RA, they too might know that although it is hard work they can achieve a relatively normal life.
Do you use any mobility aids?
How has living with RA helped to improve your life?
If I hadn’t have had a horrible debilitating auto-immune disease teach me to have mental and emotional strength, to cope with and be determined to get going when the going got tough, to stand up under massive strain and say “bring it on, I got plenty left!” I would never have got as far as I have now in life. Aside from that I probably have a much greater appreciation for little things in life that if I had never been ill I would have taken for granted. I also am probably far less judgemental and I try to think from other peoples perspectives before I get critical of them, you just never know what people are going through!
Do you have any visible signs of RA?
Can you please describe some of your favorite coping strategies for living with RA?
Ask my mother, I more often than not have actually forgotten I am chronically, it’s only when someone out-performs me physically who shouldn’t that I remember. Then I use my injured pride as a driving force to achieve ever greater physical feats, I don’t recommend trying that one at home though and everyone else is probably much more mature about it than I am.
Can you please describe your current medical (traditional and alternative) treatments?
Is there anything else about yourself that you would like to share?
Despite it all I live a vaguely normal life, I have an engineering degree in Aerospace Tech and hopefully soon a job with which to put my knowledge and skills to good use. Better for my health than a desk job I suspect! As a side result of having an auto-immune disease and meeting the goal of overcoming it, life is no longer fun if it isn’t challenging, so I am much into the outdoors and doing things like survival courses with field craft and camp craft, cross country cycling and hiking. If I am not putting stupid demands on my mind and body, then I am probably reading or playing video games, or having good times with friends and family!
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- Harvard Gazette: A Journey Into IllnessJanuary 12, 2015 - 4:19 pm
- Health.com: 11 Famous People With RAOctober 1, 2014 - 9:50 am
- Arthritis Broadcast Network: Spotlight On Arthritis SuperheroesSeptember 10, 2014 - 7:34 pm
- The New York Times: Actress, Artist, Sometimes Both At OnceMay 20, 2014 - 10:29 am
- The Columbian: Arthritis Not stopping 20-Year-Old Nursing StudentApril 15, 2014 - 3:25 pm