While sitting in the infusion clinic a few days ago receiving my first dose of Actemra (see photo), I began to wonder about the extra costs of having RA that aren’t covered by insurance or planned for in my budget. This thought came to mind as I pulled my parking ticket out of my pocket and wondered how much I was spending on parking per year. Then the thought expanded to all RA related costs that are’t included in insurance coverage and I decided to make an accounting of these costs.
I was diagnosed with rheumatoid arthritis in Feb 2012 (at age 29) after about 3 years of mild symptoms and 1 year of aggressively active disease. I’ve now developed secondary fibromyalgia as well. It has turned my life upside down. Before RA, I was a full-time student majoring in molecular biology, dreaming of a PhD down the road. I hope to still do that some day, but for now I have to take things one day at a time. Some day I’d love to research climate change and possibly help develop new energy/fuel and bioremediation solutions. I love nature and don’t want to see it destroyed.
Read More: http://cytokineswithin.blogspot.com/
When I was 7 years old I got strep throat, mostly I was disappointed because I was wasn’t able to stay in summer camp that week. Then 2 months later I fell off my bike and cracked my skull, the ER thought I had been hit by a car – I did that good of a number on myself. Before I knew it everything went haywire. My neck began growing a nasty red lump that local docs termed “mini mumps” – that’s not even real. They eventually slapped a gown on me and threw me in the hospital, and when the bump wouldn’t leave they cut it out, still perplexed. After about a month of weird symptoms I finally woke up in the middle of the night with my ankles and wrists locked so tight that I couldn’t walk. Reactive arthritis. Rhuematic fever. But this was all debated! My parents and I were called hypochondriacs and told “we didn’t want me to have this disease.” No shit.
Read More: http://www.thehurtblogger.com/
Ra Ra Rad Life
I was diagnosed with RA in May 2012 and since my world has fallen and crashed into a million pieces. I will write as I pick up, rearrange, and create a new masterpiece. If Steve Wynn can stick his elbow through a Picasso and survive I think I can get through this too!
Read More: http://rararadlife.wordpress.com/
The Life of a Porcelain Doll
I’m 20 years old and I’m a fourth year student at the University of Toronto. I was diagnosed with juvenile rheumatoid arthritis when I was eleven and fibromyalgia when I was fifteen.
Read More: http://kiranchattha.wordpress.com/
RAthlete: An Optimist Blogger
With Arthritis we are confronted with many decisions, many obstacles, and many defeats. However, we are also met with challenges, opportunities to rise above, and moments of pure happiness. Accompanied with defeat is our true self, the person forced to show due to adversity. I have found that in the darkest of moments I discover my priorities; I finally understand why I’m doing what I do.
Read More: http://rathlete.blogspot.com/
I keep forgetting I am ill. I forget it for days at a time. I run around at a speed reminiscent of my 30’s. I feel twenty years younger, which is a nice change of pace. I used to feel ancient, ready for death. Not anymore. My illness brings me up short. Literally. It stops me cold and won’t let me forget for long. It is selfish and narcissistic. It likes to be front and center; it doesn’t appreciate being shoved aside. It derives its satisfaction from reminding me of my limitations.
Read More: http://beatingrheumatoidarthritis.wordpress.com/
RA My Way
A diagnosis of Rheumatoid Arthritis (RA) can be scary. Being diagnosed as a child or at a young age can be downright daunting and terrifying. I saw it as a lifetime sentence of increasing pain and immobility compounded with cocktails of medication.
Read More: http://ramyway.me/
Chronic Brevity: Living with Scleroderma
The focus of my blog is going to change a bit and I ask for your patience as I navigate through this new world of “online blogging.” I still intend to spread awareness of these terrible disease(s), keep you posted on my progress and pitfalls and more importantly I hope to now provide a forum where others who suffer from chronic illness can come get support, advice, or just a good laugh cause they know where I’m coming from.
Read More: http://chronicbrevity.blogspot.com/
Rude Awakenings: Life with Rheumatoid Arthritis
My name is Jessica Hawk-Tillman. In January 2010, I was officially diagnosed with Rheumatoid Arthritis. At that time, I knew nothing about the disease, or autoimmune illness in general, but that changed quickly.
Read More: http://rudeawakenings.org/
More resources and blogs: www.rheumatoidarthritisguy.com/links/
Millions of people suffer from chronic pain every day. Some are able to overcome their pain problem; and we are interested in learning from these individuals in order to help others.
This study has been constructed to allow individuals to record their own stories of overcoming chronic pain. These stories will be studied to search for common themes and patterns. It is our hope these stories will help us develop future therapeutic regimens for chronic pain sufferers.
To be eligible to participate in the study, candidates should be at least 21 years old and have overcome a daily pain problem that lasted a year or longer. Interviews typically last from 30 to 60 minutes and can take place in person (Columbia, Missouri) or on the phone.
For more information, visit studychronicpain.com or call (573) 303-6886.
GRAFTON, N.D. — The family of Brian and Ranell Hanson is helping the most respected researchers in the nation find a cure for juvenile arthritis.
Four of the couple’s five children have the disease. It is thought that genetics may be a factor in its cause.
Medical records and blood samples from all seven members of the family have been sent by Altru Health System in Grand Forks to Cincinnati Children’s Hospital Medical Center in Ohio for use in ongoing studies.
The family became involved because the children’s pediatric rheumatologist, Dr. Thomas Mason of Mayo Clinic in Rochester, Minn., “was puzzled by (the disease) popping up with all the kids,” said Ranell.
Read More: http://www.wdaz.com/event/article/id/15380/
In a Special Guest Blog Post, RA Guy answers the question he is most frequently asked by his readers: How does he manage to stay so positive, despite the challenges he faces on a daily basis?
“For me, a positive attitude doesn’t mean that I hope my pain goes away; it means that I hope to be able to cope with this pain even better.” —RA Guy
Over the many years of blogging as Rheumatoid Arthritis Guy I have received many messages from readers, more so than most people might be able to imagine. A majority of these messages can easily be divided into two groups. The first are from people who appreciate the sense of humor that I continually apply to my life with RA. (Because sometimes, a wicked sense of humor is the only way forward!) The second are from readers who tell me that they are inspired by my ability to maintain a positive attitude, despite the challenges that I face on a daily basis.
While I make it a point to respond to each and every email personally, I must admit that there are times—especially when my rheumatoid arthritis symptoms are at their worst—that some of these messages start to slip through. So I would like to take this opportunity to respond publicly to the one question that I am asked most frequently: How do you continue to stay so positive?